Has anyone had surgery to remove scar tissue?
I have a lot of scar tissue from radiation leaving me with a challenged airway - it has also ratcheted down on my vocal cords taking my voice as well as painful- I live in an area that the Drs tell me to find a specialist (it’s over their heads) but the idea that I could have improvement would be incredible. I have been seen by 2 ENT surgeons in my state but I don’t think the information was there. So has anyone surviving throat cancer had radiation and surgery to remove scar tissue or anyone with some advice I don’t know where to go from here?
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I underwent a similar treatment plan as you did, and was told flippantly that there is no way my trachea tube is coming out. I am not willing to believe that.
We have a perspective these specialists will probably never understand.
More importance has to be focused on the wake of damage done by the 'treatments' used. I was recovering from radiation nicely, returning to my previous lifestyle...until one day I was told I must have a Tracheotomy immediately or I might die.
A complete surprise as I had never had trouble breathing. I am now suffering from issues directly resulting from that insertion. Radiation...the gift that keeps on giving.
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1 Reactionlilyann here. i too have been referred to emory voice after my 2 thyroid surgeries. thing is: i have been told that my loss of voice is permanent. i do have trouble swallowing and have been told by the ENT, that my epiglottis is not flat covering over the vocal chords and i am at rish of getting food into my lungs.....what little i eat. please keep in touch on how things work out for you at emory. it is a very, long way for us to travel to downtown atlanta and with the traffic, so scary. wish you the best. take care.
@annette77, it must be so difficult to see your brother in so much pain. Has he seen a pain management specialist?
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1 ReactionMy brother had radiation for throat cancer. Now the scar tissue is hurting and causing intense ear pain. He said no one at radiology told him this would happen and if they did, he would never have done it. His thyroid, pituitary and adrenals were also damaged and has to wear a sensor to alert him when his blood sugar gets too low. This is not quality of life and he wishes he would have just let go and died. Has anyone here had intense ear pain from throat scar tissue, and does anyone know if there's a solution for this?
I had lingual tonsil cancer 2006 with chemo and radiation treatment. all went well until two years ago. Started to have issues swallowing and noticed aspirating food into lungs causing pneumonia. Finally after one year i have been referred to Emory Voice center Dr T. Hopeful of direction so can get on with life!
Thanks for reading
There has to be some kind if scar tissue removal..I mean they do it other places.... to me I refuse to have a permanent threachea..I lett them put one in for treatments and a feeding tube I had stage 4 my radiation was 15 minutes for 48 days and chemo 12 :45 mins long every 5 days for 4 months ... I feel like crap 3/4 of the time ... but, apparently the doctors says I don't feel that bad .. I can't figure how they know how we feel when they didn't go through it. But, everything had to come out if I wasn't cancer free .. said I will only go through it once.
Thanks so much, Lilyann! You're right--when life becomes mostly one struggle or another--waking up at night (me, too--not coughing, but this sense of almost strangling with the dry throat) and eating the way you are--that can't taste good or be very appealing--what are we fighting so hard to survive for? Knowing the cancer has reached your vocal chords has to be heart-breaking. Having come this far and faced the aftermath of treatments, none of the options look really good. Thanks for taking the time to respond!! Thinking of YOU this evening, too!
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3 Reactionshi pegimac, i truly feel for you. i understand your negativity. i'm not doing any radiation or anything right now. i just had to write to let you know. so far i can breathe, eat, swallow. thing is i just seen the general surgeon who says he won't do my thyroidectomy because he feels the cancer has reached my vocal chords. so he has said he will arrange for me to see a specialist but i have to drive further away. so who knows what will be next for me. i do know that there will be a lot of things i won't consider. things is, when your going through stuff like you are going through, who knows how you will feel as far as trying to survive. its hard.. i have been mashing up alot of my food with the food processor, i have to watch the dry foods. i wake up about every hr. on the hr. have to get something to drink as i have these coughing spells. always feel so tired. can you find another dr. who does not shrug! i don't like shrugs! should not be. wishing you the best this evening. you will be in my prayers.
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1 ReactionI can feel myself turning a frightening corner--toward a negative outlook for the future. Feels like there will always be more Long-term Effects of Radiation to battle, and that my doctors will always just shrug and say, but you're alive. Yes, but it's beginning to feel like I'm going to watch myself slowly suffocate as my throat loses elasticity and the ability to function.
I hate to admit that every night is a struggle to sleep for an hour or so before waking to try and lubricate the throat, to no avail--and all day I struggle to eat because it's so hard to swallow and nothing tastes good. It's hard to take in enough calories to maintain a weight nearly 20 pounds less than my doctor prefers. And for what?
Sorry to be so negative!
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