Has anyone had surgery to remove scar tissue?
I have a lot of scar tissue from radiation leaving me with a challenged airway - it has also ratcheted down on my vocal cords taking my voice as well as painful- I live in an area that the Drs tell me to find a specialist (it’s over their heads) but the idea that I could have improvement would be incredible. I have been seen by 2 ENT surgeons in my state but I don’t think the information was there. So has anyone surviving throat cancer had radiation and surgery to remove scar tissue or anyone with some advice I don’t know where to go from here?
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Thank you - I just want cancer survivors to know it can get better and you should seek many opinions. I wish I had done this from the getgo because I didn’t realize I had other treatment options.
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4 ReactionsVery good news to hear. Sorry it took so long but at least brighter days ahead. You are a good example of someone taking charge and seeking the results you needed.
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5 ReactionsI haven’t commented for a while but I wanted to update everyone after almost 4 years in a trachea- no voice for 3 years - remission for 3.5 years from stage 4 laryngeal cancer with radiation and chemo therapy. I am free of the trachea- I am able to talk normal again - I am able to eat normally again. It’s been a miracle- I found the right Drs and they do this all day everyday. I was at the point of giving in to a laryngectomy- I was in pain unable to sleep - unable to talk living in isolation from friends and family but I wanted another opinion. I went to NYU Langone Otolaryngology Assoc - cancer center then worked with the Speach center. I started with Dr Jacobson who referred me to Dr Amin who specializes in Vocal Cords - my first surgery I had 3 surgeons but it works - I had Dr Jacobson - Dr Cosby - Dr Amin - it went on from there - that first surgery was to see what was possible that was in Feb and now in September it looks like I have made it through and it’s a miracle.
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12 ReactionsYou all are great with the information flowing in this sub-discussion of dealing with breathing. My experience with a trach is limited to only a few months so I had nothing to add to the experiences of all of you. Great ideas from you all on how you just deal with what you have and go on living. Ultimately our healthcare is up to us and this is an excellent example.
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2 ReactionsThanks. I'm looking into something, but it looks a little different.
Here is an image of one. Yes, it just presses right on the opening (is that the stoma?!!)
Like the inner canula, it does hinder breathing, but not as bad as the canula.
When the air is dry, I put one on at bedtime. Usually, around 1:00 a.m. or 2:00 a.m., I remove it. At that point, the humidity is created will cause the mucus to greatly loosen for an easy expel. That is good, because at that time of night, who wants to be cleaning out a tube?
Let me know how it works out for you if you decide to get some.
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1 ReactionWhat kind of HME do you use?
And...does it just fit on the end of the stoma?
Thanks for that. I like your attitude. Yes...the mucous in the inner canula is an ongoing annoyance. And it doesn't take much to affect breathing.
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2 Reactions@imaginus, you are in my thoughts for a positive outcome. There is so much mucus on a constant basis inside my trach tube, that very little debris gets through. That inner canula was supposed to be there to catch the mucus to prevent clogs (they told me), yet it did the exact opposite. It clogged up all the time making it almost impossible to breathe. So no, I don't wear it, going on years now without incident. The suction machine was a pain, so my ENT showed me how to remove the tube to clean it. He said to me in a surprised tone, "You brush your teeth twice a day, so why wouldn't you clean the tube?" He is a gem! To each his own...It sounds like you may progress to having the tube removed. I am rooting for you. Oh yeah...the HME is like a mini humidifier/filter in itself. Does wonders with an electric bill.
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1 ReactionFunny...no one ever mentioned HME to me. I want to atv again, but I'm worried about dust and dirt getting in the damn thing.
I can breath through my nose, but with some restriction. Am hoping it can improve.