Has anyone had surgery to remove scar tissue?

Posted by mindyt @mindyt, Oct 24, 2021

I have a lot of scar tissue from radiation leaving me with a challenged airway - it has also ratcheted down on my vocal cords taking my voice as well as painful- I live in an area that the Drs tell me to find a specialist (it’s over their heads) but the idea that I could have improvement would be incredible. I have been seen by 2 ENT surgeons in my state but I don’t think the information was there. So has anyone surviving throat cancer had radiation and surgery to remove scar tissue or anyone with some advice I don’t know where to go from here?

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@thomason

@imaginus, you are in my thoughts for a positive outcome. There is so much mucus on a constant basis inside my trach tube, that very little debris gets through. That inner canula was supposed to be there to catch the mucus to prevent clogs (they told me), yet it did the exact opposite. It clogged up all the time making it almost impossible to breathe. So no, I don't wear it, going on years now without incident. The suction machine was a pain, so my ENT showed me how to remove the tube to clean it. He said to me in a surprised tone, "You brush your teeth twice a day, so why wouldn't you clean the tube?" He is a gem! To each his own...It sounds like you may progress to having the tube removed. I am rooting for you. Oh yeah...the HME is like a mini humidifier/filter in itself. Does wonders with an electric bill.

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Thanks for that. I like your attitude. Yes...the mucous in the inner canula is an ongoing annoyance. And it doesn't take much to affect breathing.

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@imaginus

Funny...no one ever mentioned HME to me. I want to atv again, but I'm worried about dust and dirt getting in the damn thing.

I can breath through my nose, but with some restriction. Am hoping it can improve.

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@imaginus, you are in my thoughts for a positive outcome. There is so much mucus on a constant basis inside my trach tube, that very little debris gets through. That inner canula was supposed to be there to catch the mucus to prevent clogs (they told me), yet it did the exact opposite. It clogged up all the time making it almost impossible to breathe. So no, I don't wear it, going on years now without incident. The suction machine was a pain, so my ENT showed me how to remove the tube to clean it. He said to me in a surprised tone, "You brush your teeth twice a day, so why wouldn't you clean the tube?" He is a gem! To each his own...It sounds like you may progress to having the tube removed. I am rooting for you. Oh yeah...the HME is like a mini humidifier/filter in itself. Does wonders with an electric bill.

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@thomason

imaginus, if you can cover the opening of the trach and still be able to draw in air, then you don't need the tube, right? Mine has been with me now for a few years, so I have grown used to having a trach. I do not wear an inner cannula, (makes it hard to breathe) and don't use a humidifier. Also, I remove the tube about four times a day to clean. That process doesn't have to be as complicated as the professionals say...I don't put gloves on, or any of that. I rinse it under hot water while cleaning it out with trach brush. Then pour some peroxide on and in the tube, rinse again with sterile water, and it is done. Takes about one minute...When I mow the lawn, I wear an HME, but other than that, it is open. Our situations are probably very different. If the opening to the trach is closed, I cannot breathe, as the vocal cords are blocking the airflow. I hope your situation improves, or you can have it removed. As for the after-effects of the radiation, you are so right. It should not affect everyone in a different way so dramatically. It doesn't really make sense. The redlight therapy is supposedly helpful to radiated tissue, and I did utilize a wand several times a day during and after radiation. Did it help? I do not know for sure. I DO know that being able to eat and drink is a blessing. Take Care.

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Funny...no one ever mentioned HME to me. I want to atv again, but I'm worried about dust and dirt getting in the damn thing.

I can breath through my nose, but with some restriction. Am hoping it can improve.

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@imaginus

More importance has to be focused on the wake of damage done by the 'treatments' used. I was recovering from radiation nicely, returning to my previous lifestyle...until one day I was told I must have a Tracheotomy immediately or I might die.

A complete surprise as I had never had trouble breathing. I am now suffering from issues directly resulting from that insertion. Radiation...the gift that keeps on giving.

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imaginus, if you can cover the opening of the trach and still be able to draw in air, then you don't need the tube, right? Mine has been with me now for a few years, so I have grown used to having a trach. I do not wear an inner cannula, (makes it hard to breathe) and don't use a humidifier. Also, I remove the tube about four times a day to clean. That process doesn't have to be as complicated as the professionals say...I don't put gloves on, or any of that. I rinse it under hot water while cleaning it out with trach brush. Then pour some peroxide on and in the tube, rinse again with sterile water, and it is done. Takes about one minute...When I mow the lawn, I wear an HME, but other than that, it is open. Our situations are probably very different. If the opening to the trach is closed, I cannot breathe, as the vocal cords are blocking the airflow. I hope your situation improves, or you can have it removed. As for the after-effects of the radiation, you are so right. It should not affect everyone in a different way so dramatically. It doesn't really make sense. The redlight therapy is supposedly helpful to radiated tissue, and I did utilize a wand several times a day during and after radiation. Did it help? I do not know for sure. I DO know that being able to eat and drink is a blessing. Take Care.

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@toony

There has to be some kind if scar tissue removal..I mean they do it other places.... to me I refuse to have a permanent threachea..I lett them put one in for treatments and a feeding tube I had stage 4 my radiation was 15 minutes for 48 days and chemo 12 :45 mins long every 5 days for 4 months ... I feel like crap 3/4 of the time ... but, apparently the doctors says I don't feel that bad .. I can't figure how they know how we feel when they didn't go through it. But, everything had to come out if I wasn't cancer free .. said I will only go through it once.

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I underwent a similar treatment plan as you did, and was told flippantly that there is no way my trachea tube is coming out. I am not willing to believe that.

We have a perspective these specialists will probably never understand.

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@thomason

Dear @mindyt, I have had radiation for Pyriform Sinus Cancer. These two pouches, are located down by the vocal cords. My pen-pal friend has also had radiation for throat cancer. We both suffer in different ways. Your question about surgery to remove scar tissue is a good one. Here is what we have both been told by several different ENT's: Radiated tissue can become necrotic (rot) if any type of surgery is performed. One ENT described radiated tissue as "mush." Unfortunately, it can become necrotic on its own too. My friend has been on a feeding tube for over two years, as she can not eat, drink, and can barely talk. Her Epiglottis is fused to her throat from the radiation. Any tampering could produce disastrous results. We both have tracheotomies, as my Vocal Cords are paralyzed. I could barely breathe, thus, the Tracheotomy. Everyone is different, but when it comes to radiated tissue, it is a sad situation. As the doctors usually say, "at least you are alive." I foresee the day when less destructive methods are utilized to cure cancer, however, it probably will not be in my lifetime, as I am in my 60s. Good luck Mindy, and know you are not alone. Stay close to our maker, and you will find peace.

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More importance has to be focused on the wake of damage done by the 'treatments' used. I was recovering from radiation nicely, returning to my previous lifestyle...until one day I was told I must have a Tracheotomy immediately or I might die.

A complete surprise as I had never had trouble breathing. I am now suffering from issues directly resulting from that insertion. Radiation...the gift that keeps on giving.

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@udtide

I had lingual tonsil cancer 2006 with chemo and radiation treatment. all went well until two years ago. Started to have issues swallowing and noticed aspirating food into lungs causing pneumonia. Finally after one year i have been referred to Emory Voice center Dr T. Hopeful of direction so can get on with life!
Thanks for reading

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lilyann here. i too have been referred to emory voice after my 2 thyroid surgeries. thing is: i have been told that my loss of voice is permanent. i do have trouble swallowing and have been told by the ENT, that my epiglottis is not flat covering over the vocal chords and i am at rish of getting food into my lungs.....what little i eat. please keep in touch on how things work out for you at emory. it is a very, long way for us to travel to downtown atlanta and with the traffic, so scary. wish you the best. take care.

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@annette77

My brother had radiation for throat cancer. Now the scar tissue is hurting and causing intense ear pain. He said no one at radiology told him this would happen and if they did, he would never have done it. His thyroid, pituitary and adrenals were also damaged and has to wear a sensor to alert him when his blood sugar gets too low. This is not quality of life and he wishes he would have just let go and died. Has anyone here had intense ear pain from throat scar tissue, and does anyone know if there's a solution for this?

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@annette77, it must be so difficult to see your brother in so much pain. Has he seen a pain management specialist?

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My brother had radiation for throat cancer. Now the scar tissue is hurting and causing intense ear pain. He said no one at radiology told him this would happen and if they did, he would never have done it. His thyroid, pituitary and adrenals were also damaged and has to wear a sensor to alert him when his blood sugar gets too low. This is not quality of life and he wishes he would have just let go and died. Has anyone here had intense ear pain from throat scar tissue, and does anyone know if there's a solution for this?

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@richard1990

I have not had the scar tissue removal sugery. However I do have swallow and restricted breathing (short of breath) problems. I went to Emory in Atlanta to again have swallow study and the scope procedure to check the scar tissue which is present. I have been told by the the throat Doctor and my Heart Doctor that the scar tissue was a factor in my breathing problem. Both are of the opinion that surgery to remove the tissue could make the situation worse in the long run. The reason being that surgery could produce worse scaring as a result of the surgery. I had throat cancer in 1990 and have speaking problems worse now that before, still have swallow and breathing problems, I just live it day to day. I would be interested in others that have had the scar removal surgery. I think because of my age (79) they just don't have the interest they would have in a younger person.

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I had lingual tonsil cancer 2006 with chemo and radiation treatment. all went well until two years ago. Started to have issues swallowing and noticed aspirating food into lungs causing pneumonia. Finally after one year i have been referred to Emory Voice center Dr T. Hopeful of direction so can get on with life!
Thanks for reading

REPLY
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