Has anyone had surgery to remove scar tissue?
I have a lot of scar tissue from radiation leaving me with a challenged airway - it has also ratcheted down on my vocal cords taking my voice as well as painful- I live in an area that the Drs tell me to find a specialist (it’s over their heads) but the idea that I could have improvement would be incredible. I have been seen by 2 ENT surgeons in my state but I don’t think the information was there. So has anyone surviving throat cancer had radiation and surgery to remove scar tissue or anyone with some advice I don’t know where to go from here?
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Thanks for that. I like your attitude. Yes...the mucous in the inner canula is an ongoing annoyance. And it doesn't take much to affect breathing.
@imaginus, you are in my thoughts for a positive outcome. There is so much mucus on a constant basis inside my trach tube, that very little debris gets through. That inner canula was supposed to be there to catch the mucus to prevent clogs (they told me), yet it did the exact opposite. It clogged up all the time making it almost impossible to breathe. So no, I don't wear it, going on years now without incident. The suction machine was a pain, so my ENT showed me how to remove the tube to clean it. He said to me in a surprised tone, "You brush your teeth twice a day, so why wouldn't you clean the tube?" He is a gem! To each his own...It sounds like you may progress to having the tube removed. I am rooting for you. Oh yeah...the HME is like a mini humidifier/filter in itself. Does wonders with an electric bill.
Funny...no one ever mentioned HME to me. I want to atv again, but I'm worried about dust and dirt getting in the damn thing.
I can breath through my nose, but with some restriction. Am hoping it can improve.
imaginus, if you can cover the opening of the trach and still be able to draw in air, then you don't need the tube, right? Mine has been with me now for a few years, so I have grown used to having a trach. I do not wear an inner cannula, (makes it hard to breathe) and don't use a humidifier. Also, I remove the tube about four times a day to clean. That process doesn't have to be as complicated as the professionals say...I don't put gloves on, or any of that. I rinse it under hot water while cleaning it out with trach brush. Then pour some peroxide on and in the tube, rinse again with sterile water, and it is done. Takes about one minute...When I mow the lawn, I wear an HME, but other than that, it is open. Our situations are probably very different. If the opening to the trach is closed, I cannot breathe, as the vocal cords are blocking the airflow. I hope your situation improves, or you can have it removed. As for the after-effects of the radiation, you are so right. It should not affect everyone in a different way so dramatically. It doesn't really make sense. The redlight therapy is supposedly helpful to radiated tissue, and I did utilize a wand several times a day during and after radiation. Did it help? I do not know for sure. I DO know that being able to eat and drink is a blessing. Take Care.
I underwent a similar treatment plan as you did, and was told flippantly that there is no way my trachea tube is coming out. I am not willing to believe that.
We have a perspective these specialists will probably never understand.
More importance has to be focused on the wake of damage done by the 'treatments' used. I was recovering from radiation nicely, returning to my previous lifestyle...until one day I was told I must have a Tracheotomy immediately or I might die.
A complete surprise as I had never had trouble breathing. I am now suffering from issues directly resulting from that insertion. Radiation...the gift that keeps on giving.
lilyann here. i too have been referred to emory voice after my 2 thyroid surgeries. thing is: i have been told that my loss of voice is permanent. i do have trouble swallowing and have been told by the ENT, that my epiglottis is not flat covering over the vocal chords and i am at rish of getting food into my lungs.....what little i eat. please keep in touch on how things work out for you at emory. it is a very, long way for us to travel to downtown atlanta and with the traffic, so scary. wish you the best. take care.
@annette77, it must be so difficult to see your brother in so much pain. Has he seen a pain management specialist?
My brother had radiation for throat cancer. Now the scar tissue is hurting and causing intense ear pain. He said no one at radiology told him this would happen and if they did, he would never have done it. His thyroid, pituitary and adrenals were also damaged and has to wear a sensor to alert him when his blood sugar gets too low. This is not quality of life and he wishes he would have just let go and died. Has anyone here had intense ear pain from throat scar tissue, and does anyone know if there's a solution for this?
I had lingual tonsil cancer 2006 with chemo and radiation treatment. all went well until two years ago. Started to have issues swallowing and noticed aspirating food into lungs causing pneumonia. Finally after one year i have been referred to Emory Voice center Dr T. Hopeful of direction so can get on with life!
Thanks for reading