Has anyone had surgery to remove scar tissue?

Posted by mindyt @mindyt, Oct 24, 2021

I have a lot of scar tissue from radiation leaving me with a challenged airway - it has also ratcheted down on my vocal cords taking my voice as well as painful- I live in an area that the Drs tell me to find a specialist (it’s over their heads) but the idea that I could have improvement would be incredible. I have been seen by 2 ENT surgeons in my state but I don’t think the information was there. So has anyone surviving throat cancer had radiation and surgery to remove scar tissue or anyone with some advice I don’t know where to go from here?

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Profile picture for mazkat @mazkat

I'm almost 2 years out from chemo and radiation treatment for tonsil cancer. It was first discovered by a swelling on my neck from a brachial cyst. They first removed that from the outside of my neck, then discovered cancer cells in it and removed my tonsil. There are now 2 smallish lumps along my surgery scar on the outside of my neck. I inly noticed them 3 weeks ago. My ENT says they're most likely scar tissue and don't touch them. I've asked for an ultrasound but he says no, just wait a few months to see. Should I wait?

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@mazkat I would get a second opinion.

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Profile picture for ponygirlnd @ponygirlnd

@mazkat get another doctor!!! Right away 😢

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@ponygirlnd do you really think so?

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Profile picture for mazkat @mazkat

I'm almost 2 years out from chemo and radiation treatment for tonsil cancer. It was first discovered by a swelling on my neck from a brachial cyst. They first removed that from the outside of my neck, then discovered cancer cells in it and removed my tonsil. There are now 2 smallish lumps along my surgery scar on the outside of my neck. I inly noticed them 3 weeks ago. My ENT says they're most likely scar tissue and don't touch them. I've asked for an ultrasound but he says no, just wait a few months to see. Should I wait?

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@mazkat get another doctor!!! Right away 😢

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I'm almost 2 years out from chemo and radiation treatment for tonsil cancer. It was first discovered by a swelling on my neck from a brachial cyst. They first removed that from the outside of my neck, then discovered cancer cells in it and removed my tonsil. There are now 2 smallish lumps along my surgery scar on the outside of my neck. I inly noticed them 3 weeks ago. My ENT says they're most likely scar tissue and don't touch them. I've asked for an ultrasound but he says no, just wait a few months to see. Should I wait?

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I was treated for my SCC with radiation and chemo. Like many of us, the radiation caused fibrosis and tightening in my neck. To ease the fibrosis and to return some of the mobility, I had a surgery called fat grafting. Prior to the surgery, I began Botox injections in my neck, which which helped on their own. Then I had the fat grafting surgery where they remove fat, in my case my stomach, and inject it into my neck. During that surgery, they also "cut "some some of the fibrous chords in my neck. The net result of these two treatments is near normal movement in my neck, and almost no pain.

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I have radiation fibrosis as a result of treatment for tonsil cancer in 2003. This is one of many long term after effects of radiation. The ENT of my tumor team told me that surgery was too much of a risk because of where the scar tissue (fibrosis) is and if removal surgery was done it probably wouldn't heal. The side of my neck is very hard. I have lots of exercises to do and have gone to a number of therapists to keep the tissue from getting stiffer as the years go by.

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Hi. This might help. I had esophageal cancer and due to complications my right vocal cord died. I had an implement inserted in my next which produces sound. This could be an option. Good luck and stay positive.

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Profile picture for speseas @speseas

@thomason wow that’s a lot to take in. My worst 19 hour neck dissections made my mobility like a wooden neck. I’m only comfortable resting my head from so much muscle loss but knitting has become my best friend.

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@speseas Me too. I have the same problem. My neck feels like I have a bungee chord attached from my skull to my top rib. I have hard places in there as well. Mobility is a big problem. Did you have radiation? I think mine is radiation fibrosis. I'm currently going to a great PT who is doing great work on my neck. He believes he can make it much better. Hopefully he's right? I know he works it very well. He said red light hasn't been proven to work and the cost of those machines are so expensive that most PT locations don't have them.

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Profile picture for thomason @thomason

Dear @mindyt, I have had radiation for Pyriform Sinus Cancer. These two pouches, are located down by the vocal cords. My pen-pal friend has also had radiation for throat cancer. We both suffer in different ways. Your question about surgery to remove scar tissue is a good one. Here is what we have both been told by several different ENT's: Radiated tissue can become necrotic (rot) if any type of surgery is performed. One ENT described radiated tissue as "mush." Unfortunately, it can become necrotic on its own too. My friend has been on a feeding tube for over two years, as she can not eat, drink, and can barely talk. Her Epiglottis is fused to her throat from the radiation. Any tampering could produce disastrous results. We both have tracheotomies, as my Vocal Cords are paralyzed. I could barely breathe, thus, the Tracheotomy. Everyone is different, but when it comes to radiated tissue, it is a sad situation. As the doctors usually say, "at least you are alive." I foresee the day when less destructive methods are utilized to cure cancer, however, it probably will not be in my lifetime, as I am in my 60s. Good luck Mindy, and know you are not alone. Stay close to our maker, and you will find peace.

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@thomason wow that’s a lot to take in. My worst 19 hour neck dissections made my mobility like a wooden neck. I’m only comfortable resting my head from so much muscle loss but knitting has become my best friend.

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And Iam losing my voice and having pain around my face and ear where they put a new tongue in my mouth

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