1. < Liver Cancer

Has anyone had surgery for intrahepatic cholangiocarcinoma?

Posted by mhallmark @mhallmark, May 20 12:18pm

In my case, the tumor has decreased to 2cm x 3cm. Anyone who has had surgery for this would love to hear as I’m meeting with surgeon oncologist June 11. TIA.

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denvergirl | @denvergirl | May 21 9:51am

I had surgery for this and it was very successful. It was done robboticaly and recovery went well. I think the extent of surgery depends on the tumor location in the liver. Mine was in a place easily resected. If surgery is indicated for you, I would not hesitate to do it.
My surgery was at Mayo in Rochester, and I highly recommend them.
Best wishes to you,
denvergirl

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1 reply
denise134 | @denise134 | May 21 11:59am

Mhallmark -had 3cm went to 5cm had liver resection in Pittsburgh PA liver transplant center Sept 2024 -started capecitabine Oct-Dec 3900mg/day first dose 14 days on and 7 off terrible side effects lowered to 3000mg/day did for 2 months terrible side effects then never took chemo but bloodwork and scans show no signs now - I am stage 1A so good luck and keep me posted

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1 reply
mhallmark | @mhallmark | May 21 5:39pm
In reply to @denise134 "Mhallmark -had 3cm went to 5cm had liver resection in Pittsburgh PA liver transplant center Sept..." + (show)
@denise134

Mhallmark -had 3cm went to 5cm had liver resection in Pittsburgh PA liver transplant center Sept 2024 -started capecitabine Oct-Dec 3900mg/day first dose 14 days on and 7 off terrible side effects lowered to 3000mg/day did for 2 months terrible side effects then never took chemo but bloodwork and scans show no signs now - I am stage 1A so good luck and keep me posted

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So good to hear you no longer have signs of the tumor! Thank you so much and I will!

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mhallmark | @mhallmark | May 21 5:44pm
In reply to @denvergirl "I had surgery for this and it was very successful. It was done robboticaly and recovery..." + (show)
@denvergirl

I had surgery for this and it was very successful. It was done robboticaly and recovery went well. I think the extent of surgery depends on the tumor location in the liver. Mine was in a place easily resected. If surgery is indicated for you, I would not hesitate to do it.
My surgery was at Mayo in Rochester, and I highly recommend them.
Best wishes to you,
denvergirl

Jump to this post

Thanks so much Denver girl, mine is in the bile duct. I’m in Texas and currently seeing physicians at UTSW. They have a team that specializes in ICC. I’ve had 16 treatments of chemo and 8 immunotherapy treatments and continue on the latter now for the near future. I’ll know more soon and so appreciate your encouraging words. I’m so happy hear of the success of your surgery too 😊

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1 reply
sunflower88 | @sunflower88 | May 22 5:36am

Hi MHallmark,

Please look for my response that I posted on 5/8/25 regarding my husband who had surgery last June 24, 2024 at Mayo. Wonderful experience. He is cancer free now. However, due to HCC cancer which has a high recurrence, he goes every 3 months for an MRI, CT Scan, blood work and appointments with PA from oncology department. Last checkup on 4/23/25, still cancer free.

I highly recommend Mayo. Wonderful team of surgeons, PA’s, nurses, and everyone else that works at Mayo.

Good luck,

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denvergirl | @denvergirl | May 22 9:59am
In reply to @mhallmark "Thanks so much Denver girl, mine is in the bile duct. I’m in Texas and currently..." + (show)
@mhallmark

Thanks so much Denver girl, mine is in the bile duct. I’m in Texas and currently seeing physicians at UTSW. They have a team that specializes in ICC. I’ve had 16 treatments of chemo and 8 immunotherapy treatments and continue on the latter now for the near future. I’ll know more soon and so appreciate your encouraging words. I’m so happy hear of the success of your surgery too 😊

Jump to this post

Mine was in a bile duct within the liver.

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