Has anyone had ampullary cancer and had the Whipple Procedure?

Posted by reiki234 @reiki234, Jul 15 4:13pm

I was diagnosed with ampullary cancer as I had a blockage to my bile duct and had the Whipple Procedure which I am recuperating from and it has been 6 weeks recovery this week. Luckily the mass (stage 2) was taken out and it did not go beyond the margins and my 16 lymph nodes are fine. So technically at this point I am cancer free or in remission. I was referred to a cancer specialist to talk about preventative cancer which would be a 6month aggressive chemo and radiation treatments. If I have the treatment I asked what would be the recurrence factor and the doctor says 50/50. I also add that there is no real data for patients with this cancer as my doctor told me as it is a rare cancer but not uncommon. Please let me know if you have any insights regarding this type of cancer and your thoughts would be appreciated. Thank you!

Interested in more discussions like this? Go to the Cancer Support Group.

Welcome, @reiki234. I moved your question about ampullary cancer and the Whipple procedure to the Cancer and Pancreatic Cancer support groups. Here you will meet several members who have experience with ampullary cancer, like @mdmnc @mlwright @richjh @survivorcan @johnsmith1580 @robynmark @johnsmith1580 to name a few.

You can read some of their experiences in this related discussion:
- Ampullary Cancer: What treatments did you have? https://connect.mayoclinic.org/discussion/complications-with-cirrhosis-and-ampulary-whipple-surgery/

Reiki, great to hear that the Whipple was successful and margins were clear. Now you are considering whether to have further treatment (chemo and radiation) to reduce the risk of recurrence. Do I have that right?

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