Anyone had a Candida lusitaniae fungal infection in hip replacement?

Posted by bigrob @bigrob, Sep 19 3:38pm

I have a Candida lusitaniae infection in my hip replacement that spread thru my muscles for 5 years now just got diagnosed this Jan and drained 275 ml off my illiac muscle however when they drained it it went systemic into all my organs and brain almost killed me .after 8 months of high dose anti fungal it burst inside me and I hemmoredged ,in the middle of 2 stage revision concrete spacer ,none of the 9 doctors if been thru ever seen this and I can’t find anything on the internet.anyone else have or had this infection,?

Hi @bigrob, this must be very frightening. You said that you've seen 9 doctors. Were they infectious disease specialists at a major medical center? Is the infection still not under control? Are you still taking an anti-fungal?

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@colleenyoung

Hi @bigrob, this must be very frightening. You said that you've seen 9 doctors. Were they infectious disease specialists at a major medical center? Is the infection still not under control? Are you still taking an anti-fungal?

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Iam at Baylor in Dallas and I have a cancer turn or ortho specialist 2 of the dr were infectious disease ,the cultures don’t grow anything now they took copious amount of fluid off the hip when they opened me however with it spreading so far thru my muscles it feels my hip and illiacpsoas have filled up again from Iam guessing it pooling back down also this infection seeds or something so I dunno

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