Has anyone experienced Testosterone Levels that are extremely low?

Posted by guyjeff123 @guyjeff123, Nov 9, 2025

I've posted on here about my high levels of Iron that were caused by a reckless doctor who gave me 13 IV Iron infusions over a 9 month period. I'm still dealing with that problem, but now a new one has popped up from some lab work that was ordered. My testosterone levels, both free and total are so low they are almost off the chart. I have a condition called Hypogonadism. I don't know if I even qualify for TT, Testosterone Therapy, due to only 1 kidney that is in Stage 3A CKD. Does anyone have any information that they might share on this? I checked Chat GPT and it said extremely low testosterone can speed up Congestive Heart Failure, which I have. Can anyone share anything about this? I really need some guidance and answers. Please reply if you do, Please?

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My husband had extremely low T levels post allogenic stem cell transplant (and levels had been low since treatment for CLL in 2013). He saw an endocrinologist in May and she recommended T gel on his skin once a day. He does not have kidney issues.
The testosterone levels came up to normal by the time it was tested again 3 months in. He uses the gel once a day.
Good luck to you.

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My hope is that there are others out there who were overloaded with Iron/Ferritin from IV Iron Infusions and are now, or previously had to undergo Phlebotomy to get the iron/ferritin out of their blood and out of any organs that it has or had deposited ferritin in. Another way that someone reading this could help, is if you had ferritin levels over 1000ng/ml from the inherited genes that cause Hemochromatosis, and you didn't find out about it until later in life. If this is you, then you probably had to have Chelation Therapy and/or Phlebotomy as well. You could probably help me as well by sharing how long it took to get your ferritin or excess iron out of your blood and out of any organs it had deposited ferritin in. Please also respond if you were treated for very low testosterone and possibly hypogonadism. I hope to hear you reperiences witj eithrtc

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I appreciate the response from @dwolden nad I hope others will still as well. Unfortunately I just had a chest and abdomen CT scan and My pulmonologist had been watching a node in my right upper lobe that was 5 mm for about a year On the scan done Friday it's now grown to 7.6mm by 9.3mm. On top of that I have two lesions in my liver, both in the same lobe, one is 25mm and the other is 11mm. I'm scheduled for a biopsy on the lung node on the 25th of November. I don't have anything scheduled for the liver yet. I'll probably have to go to Fargo for that. As bad as my problem with my testosterone and even worse the amount of Iron I was overloaded with and the severe amount of iron in my liver, which probably is the reason for the lesions, I'm going to have to focus on my lungs and my liver right now. So if I don't post anything for awhile, you'll know why. Thanks and God bless Ya'll.

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I appreciate the response from @dwolden nad I hope others will still as well. Unfortunately I just had a chest and abdomen CT scan and My pulmonologist had been watching a node in my right upper lobe that was 5 mm for about a year On the scan done Friday it's now grown to 7.6mm by 9.3mm. On top of that I have two lesions in my liver, both in the same lobe, one is 25mm and the other is 11mm. I'm scheduled for a biopsy on the lung node on the 25th of November. I don't have anything scheduled for the liver yet. I'll probably have to go to Fargo for that. As bad as my problem with my testosterone and even worse the amount of Iron I was overloaded with and the severe amount of iron in my liver, which probably is the reason for the lesions, I'm going to have to focus on my lungs and my liver right now. So if I don't post anything for awhile, you'll know why. Thanks and God bless Ya'll.

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I am so sorry to hear of these issues. Sending you healing hopes for the best outcomes

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Thank you and God bless you both.

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