Has anyone else on Reclast developed hyperparathyroidism?
Hi all. I'm an athletic almost 67-year-old runner and weight trainer eating a plant based diet. I went on Reclast 2.5 years ago and about a year after my first annual Reclast infusion developed hyperparathyroidism. My endocrinologist had me on 50,000 Vitamin D for the past 2 years but levels keep going up (they went down briefly but are now at 132 PTH). My endo did not say what caused elevated PTH but I've seen a few references in online PubMed studies to Hyperparathyroidism secondary to bisphosphenates. Does anyone know about this? Any info you can provide would be greatly appreciated!
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Thank you thank you thank you! Lots of good information. I will pass the information to my daughter as she really needs to see an endo; especially with thyroid issues and medication plus the fact that I have osteo. Hard to make some of these decisions especially when for many of us there are zero symptoms - truly silent disease. I broke my wrist bone a couple of years ago; in a car wreck (air bag injury) and both the EMT and the ER doc said "we see this all the time from air bags" many people (not just we postmenopausal women) break bones from trauma. Of course no one ever suggest a DEXA scan "not until 65" (how about a baseline at menopause; maybe you would have a chance to step up the Vitamin D, calcium and exercise). Your points are well taken and thanks so much for sharing; taking a chance on a breaking something and the healing processes required can be a LOT worse than the slim probability of severe side effects from the osteo drugs. Still scary; Reclast being a once a year infusion means you can't just stop taking it if you are one of the folks that experience severe side effects. I am going to get a second and even a third opinion to see what drug everyone thinks is best as there are a lot of them out there. Not sure about family osteo; my mom was doing aerobics with weights well into her 70s (cancer slowed her down unfortunately) but she never broke anything in her life; or anyone else that I recall. I've always done aerobics with weights but have added walking (I hate walking - very boring to me!) and we were reconsidering downsizing to a single story home; but I told the hubby the stairs are great for us. Hoping your journey keeps going in the right direction!