Has Anyone Elected for No Treatment?

Posted by mikeg73 @mikeg73, Aug 26 3:34pm

If so, how did you make that decision? How long has it been since diagnosis and how are you doing?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Thanks, guys, for your heartfelt comments.
Stay positive, stay humble, be nice.
1/3 of us don't reach 75 yrs old. Lots of cliches out there: life's a bitch...getting old ain't for sissies..life isn't fair.
One of my favorites is from The Doors' song Roadhouse Blues "the future's uncertain and the end is always near."
So, turn it on, turn it up...grab your favorite partner "AND HAVE A REAL GOOD TIME.....!

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Didn't mention it in my earlier comment, but the palliative care for prostate cancer is basically the same thing as the treatment: ADT and radiation.

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Profile picture for handera @handera

Consistent, long term, aerobic cardio exercise (running, elliptical, cycling, swimming, etc) increases VO2 Max, which is the one number that most closely correlates with longevity.

The easiest way to have this measured is the wear a Garmin watch.

For example, I started running in July 2022 (66 y/o) with a VO2 Max of 35 (about average for a 66 y/o).

This week (3 years later) my VO2 Max is 49 (top 5% for a 69 y/o).

There are many good places to get info about VO2 Max.

A great place to start is with this short video by Dr. Peter Attia…author of “Outlive”…

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Great video - I subscribed to follow Dr. Peter Attia. I am looking at various Garmin watches - do you have a favorite - recommendation?

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Profile picture for heavyphil @heavyphil

So so many people bitch and moan about treatment. Sure, who wants it?? But NONE OF US that I’m aware of, have ever been told: ‘You’ll be dead in 18 months no matter what we do’.
That’s glioblastoma, a relentless destroyer of lives; multiple debilitating surgeries ( they take out pieces of your brain, OK?), radiation and incredibly powerful chemotherapies which make your last days not worth living.
I watched my best friend’s son die this way at age 34. I remember that he had his first brain surgery (of 5) about a month before my RARP.
He never knew that he wasn’t gonna make it - he was an athlete with a never give up mentality - and that made it even harder to watch him go thru that ordeal…
My condolences to anyone who has experienced this firsthand.
Phil

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My brother’s wife died of a glioblastoma a few years ago. She was really angry about it. Her whole life she had watched what she ate, took really good care of herself Physically and mentally and here this brain tumor comes and shortens her life to less than a year.

It’s taken my brother many years to get over it. Not long after she died, he finds out he has prostate cancer. Life can sure hand people difficult situations, and then what seems like a normal life goes on.

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Profile picture for jeff Marchi @jeffmarc

My brother’s wife died of a glioblastoma a few years ago. She was really angry about it. Her whole life she had watched what she ate, took really good care of herself Physically and mentally and here this brain tumor comes and shortens her life to less than a year.

It’s taken my brother many years to get over it. Not long after she died, he finds out he has prostate cancer. Life can sure hand people difficult situations, and then what seems like a normal life goes on.

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You are literally cut off at the knees with the diagnosis of GBA. Knowing how terrible that diagnosis can be keeps me grounded and grateful.
Even with all you’ve been through, Jeff - and you’ve been through a LOT - you’ve seen how much worse it can be. You are still here, able to offer others help and guidance in what seems like their darkest hours.
You can still enjoy family, friends and life in general. Your sister in law and my friend’s son had ZERO chance of coming out the other side.
I understand her anger; we all know we’re gonna die and all we ask for is a chance to fight; and if we lose, to go down swinging, not laced into a straight jacket and thrown off a cliff.

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Profile picture for steveapplebaugh @steveapplebaugh

Great video - I subscribed to follow Dr. Peter Attia. I am looking at various Garmin watches - do you have a favorite - recommendation?

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I’ve used my Vivoactive 4 everyday for over three years…a nice feature is the ability to download music directly to the watch, so you can use wireless buds to listen to your favorite music, while exercising, without carrying your phone.

The Vivoactive 5 has a nice OLED display upgrade and is available on Amazon for under $200.

If you want to read about the ERASE trial, regarding HIIT exercise in a randomized clinical trial with men with localized PCa, here’s the link;
https://jamanetwork.com/journals/jamaoncology/fullarticle/2783273
ERASE was a relatively small study; but, as they say, “good things often come in small packages” 😉

I’m more than willing to share my latest running protocol and some of my more detailed research, if you send a DM…it’s probably more than what many may want to see on this thread.

All the best!

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Profile picture for flabellajr @flabellajr

Thanks, guys, for your heartfelt comments.
Stay positive, stay humble, be nice.
1/3 of us don't reach 75 yrs old. Lots of cliches out there: life's a bitch...getting old ain't for sissies..life isn't fair.
One of my favorites is from The Doors' song Roadhouse Blues "the future's uncertain and the end is always near."
So, turn it on, turn it up...grab your favorite partner "AND HAVE A REAL GOOD TIME.....!

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Love your attitude!!

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Thanx a mucho!
At 75, I realize that it may be the only thing that I have full control of. Since our mind can only hold one thought at a time, why not pick positive vibes? Tune out the static, find a happy channel. Enjoy life, gotta make your own good time!

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Profile picture for handera @handera

Consistent, long term, aerobic cardio exercise (running, elliptical, cycling, swimming, etc) increases VO2 Max, which is the one number that most closely correlates with longevity.

The easiest way to have this measured is the wear a Garmin watch.

For example, I started running in July 2022 (66 y/o) with a VO2 Max of 35 (about average for a 66 y/o).

This week (3 years later) my VO2 Max is 49 (top 5% for a 69 y/o).

There are many good places to get info about VO2 Max.

A great place to start is with this short video by Dr. Peter Attia…author of “Outlive”…

Jump to this post

I use to run cross country and track in college; but I never was a super star. Now I just go to snap fitness do cardio treadmill and then the elliptical and some days I walk so im thankful to do that. What is VO2.

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Your exercise efforts are to be applauded and encouraged!

No matter where you are in your PCa journey, all forms of exercise provide health benefits.

My brothers were also cross country runners, and now we, and my sons, have formed a runners group in which we all report and encourage our physical exercise efforts.

A support group will turn your individual exercise efforts into a key part of a healthy lifestyle.

Regarding your question, there are many places to get a good answer…here’s my quick take:

The V in VO2 max stands for volume, while O2 stands for oxygen.

VO2 max is the maximum amount of oxygen your body can consume and is measured in milliliters per kilogram of body weight per minute.

It’s a combination of how much oxygen your lungs can extract from the air and transfer to your blood, your heart’s efficiency in pumping that oxygen-rich blood to your muscles and your muscles mitochondria’s ability to burn fat, carbs and glucose with that oxygen to generate the energy needed for the activity your performing. The amazing thing is that virtually anyone can increase their VO2 Max.

In simple terms, it’s a single measurement that indicates your overall aerobic fitness.

There are many daily benefits that you will notice within weeks and months after starting a program to improve your VO₂ max, such as:

- being less exhausted or winded doing activities like climbing stairs

- reducing your stress level

- boosting your immune system and getting sick less often

Longer term benefits are even more comprehensive, as months turn into years, upon attaining and maintaining a high VO2 max.

Including less inflammation, it’s chronic pain, better cognitive function and ultimately a longer lifespan WITH a higher quality of life all along, but MOST especially during the last decade of your life.

After 3 years of embarking on my VO2 Max improvement journey, I can definitely say….I’ll never turn back to my old sedentary ways….as long as I’m able….

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