Has anyone dealt with REM Behavior Disorder (RBD )

Posted by Sarah @emyliander, Apr 22, 2024

I have had a sleep study and met with my Neurologist who thinks I have RBD and wants me to meet with my sleep specialist . RBD has poor memory as on of its components. My Neurologist didn’t tell me I have MCI but he put it as my diagnosis on my discharge paper. I have been on
Venlafaxine for many yrs and discovered that it is one of two meds that can cause RBD so I met with my GP and asked to switch off it. I am transitioning onto Bupropion. An MRI 2yrs ago showed “ white matter”.
My current symptoms are poor memory which interferes with my daily activities, loss of smell,
Nightmares in which I scream and kick and have fallen out of bed hurting myself. Foods I have loved I no longer care for, 8lb weight loss, poor concentration and feeling overwhelmed, keeping my house tidy seems impossible.
I’ve been told by Neurologist to get a test to rule out Lyme disease. Also to make an appointment for CBT classes.
Looking for some insight.
Thank you.

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tsch | @tsch | Jul 7 7:22pm

So my husband has dreams involving movement and talking, but they are not violent situations he is in. I think this is maybe a mild form of RBD, He had a DatScan as part of a research program and is positive for alpha-synucleon folds which suggests he will some day have Parkinson's. So far he has no other symptoms and except for the research we would never suspect he may get Parkinson's. He is 82, and physically well and strong for his age.