1. < Neuropathy

Has Anyone Been Totally, Truly Cured?

Posted by SusanEllen66 @SusanEllen66, Aug 6 10:14pm

We spend so much of our time, and dollars trying to find relief from this awful condition.
Do you know of anyone who has been totally cured of neuropathy?
Cured, not feeling better.
Probably not. I don’t believe it’s curable so anything you can find for relief for a awhile is wonderful!

Interested in more discussions like this? Go to the Neuropathy Support Group.

tprift | @tprift | Aug 8 9:56pm

https://understandingb6toxicity.com/
Check out this group. Members report total cure IF neuropathy was caused by excessive consumption of b6. There is a very specific protocol to follow that is claimed to remove excessive b6 from muscles where it causes the most trouble, including PN. It is definitely worth a look if you have ever consumed food or vitamins that contain b6 supplements.

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SusanEllen66 | @SusanEllen66 | Aug 8 11:06pm
In reply to @njed "@SusanEllen66 I can't imagine a true cure for peripheral neuropathy exists that could help 25 million..." + (show)
@njed

@SusanEllen66 I can't imagine a true cure for peripheral neuropathy exists that could help 25 million people. There would be huge profits a drug company could make rolling out that magic pill. So, I assume, for now, it doesn't exist. Based on that, all we have are things that might help in coping with PN. Might. I've been taking ALA and then R-ALA for 2 - 3 years. Does it help, who knows. I take other supplements as well based on a suggestion by my neurologist. To slow down progression is a plus in the win column. For now, I think that is the best we can hope for until someday, that magic pill comes along to regenerate damaged nerves. Ed

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@njed hi Ed, have you tried stopping the R-ALA to see what happens?

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1 reply
NJ Ed | @njed | Aug 9 5:16am
In reply to @SusanEllen66 "@njed hi Ed, have you tried stopping the R-ALA to see what happens?" + (show)
@SusanEllen66

@njed hi Ed, have you tried stopping the R-ALA to see what happens?

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@SusanEllen66 - I did give serious thought about stopping R-ALA. But then, does it help? The cost of this supplement is not excessive. In 2020, Mayo said it might help and 2 other teaching hospitals I went to one in 2017 and one in 2019 both suggested the same. It is sort of try it, see if it helps. So no, I have not tried stopping. I have no side effects on 600 mg. daily.
Ed

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1 reply
mustii | @mustii | Aug 9 10:13am
In reply to @njed "@SusanEllen66 I can't imagine a true cure for peripheral neuropathy exists that could help 25 million..." + (show)
@njed

@SusanEllen66 I can't imagine a true cure for peripheral neuropathy exists that could help 25 million people. There would be huge profits a drug company could make rolling out that magic pill. So, I assume, for now, it doesn't exist. Based on that, all we have are things that might help in coping with PN. Might. I've been taking ALA and then R-ALA for 2 - 3 years. Does it help, who knows. I take other supplements as well based on a suggestion by my neurologist. To slow down progression is a plus in the win column. For now, I think that is the best we can hope for until someday, that magic pill comes along to regenerate damaged nerves. Ed

Jump to this post

A cure will never happen in this country, I’m better 100% on that call

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2 replies
SusanEllen66 | @SusanEllen66 | Aug 9 9:21pm
In reply to @njed "@SusanEllen66 - I did give serious thought about stopping R-ALA. But then, does it help? The..." + (show)
@njed

@SusanEllen66 - I did give serious thought about stopping R-ALA. But then, does it help? The cost of this supplement is not excessive. In 2020, Mayo said it might help and 2 other teaching hospitals I went to one in 2017 and one in 2019 both suggested the same. It is sort of try it, see if it helps. So no, I have not tried stopping. I have no side effects on 600 mg. daily.
Ed

Jump to this post

@njed. This is what I was wondering, if and when I can not tell if something is working or not, I stop using it. Then, I wait and see if things get worse. If so, whatever I was using was in fact helping.

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SusanEllen66 | @SusanEllen66 | Aug 9 9:25pm
In reply to @mustii "A cure will never happen in this country, I’m better 100% on that call" + (show)
@mustii

A cure will never happen in this country, I’m better 100% on that call

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@mustii Hello, well it really is a cure that we are hoping for, no matter where it comes from.

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earthmama007 | @earthmama007 | Aug 11 7:08pm
In reply to @mustii "A cure will never happen in this country, I’m better 100% on that call" + (show)
@mustii

A cure will never happen in this country, I’m better 100% on that call

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which country?

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altucci | @altucci | Aug 11 8:08pm

What is R-ALA? I know that ALA is Alpha Lipoic Acid. What is the "R?"

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1 reply
SusanEllen66 | @SusanEllen66 | Aug 11 11:39pm
In reply to @altucci "What is R-ALA? I know that ALA is Alpha Lipoic Acid. What is the "R?"" + (show)
@altucci

What is R-ALA? I know that ALA is Alpha Lipoic Acid. What is the "R?"

Jump to this post

@altucci I just “googled” it. I’m not sure, but it has the ability to neutralize harmful free radicals…

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