Has anyone been diagnosed with classic chordoma?

Posted by mentonette @mentonette, Nov 18 11:30am

A biopsy shows a classic (rare) chordoma (a tumor) on my tailbone. If anyone has had this, what is the treatment, and the best surgeon and hospital for treatment?

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@mentonette I wasn't aware of this condition and had to look it up, but here is Mayo's information including possible treatments for Chordoma.
As for where to go, I am biased because I am a Mayo spine surgery patient and my experience there was excellent. I had seen 5 spine surgeons that missed my diagnosis and wouldn't help me before I came to Mayo. I can't speak highly enough of my surgeon at Mayo in Rochester. He would be a good doctor for a consultation if you are able to go to Mayo.
If you want to request an appointment, you may use this link to get started. http://mayocl.in/1mtmR63

Billing and insurance information https://www.mayoclinic.org/patient-visitor-guide/billing-insurance

Would you be able to travel to Mayo?

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