Has anyone been diagnosed with Abdominal Wall Pain?

How dod they diagnose it? I have been dealing with abdominal pain for the last 10 months and all the tests other than a stool test that showed exocrine pancreatic insufficiency and have been taking enzymes but still having excruciating pain and nausea.

Jeff: can you provide the Phoenix doctor that did trigger point injections for Chronic abdominal wall pain? Thank you liz

Hello,
I responded to a post somewhere here..don't see it... I have been suffering from suspected ACNES due laparoscopy in 2016. Clev Clinic Dr only person in South Florida who seems knowledgeable of it but can't help further.
I had a Spinal Cord Stimulator inplant 6 months ago after developing severe back pain , within 4 weeks my Nerve pain was excruciatingly to point I became bedridden mostly. I switched it off.
Drs still refuse to accept it exacerbated my pain but I'm just post a Nerve Conduction Study ( shot up with strong electrical current) most horrendous pain of my life. Took numerous days to recover. Preparing my records for Dr Gillespie. This condition is truly destroying my body. Am almost 6 months on a soft/ liquid diet/ can't tolerate normal diet due severity of digestive pain.
It would be nice if "posters " report back if they get help and what worked. I for one would be very interested to know if and how people get resolution.
This is a devastating condition.

@anniesezu812
I've been reading through posts on ACNE's and Adhesions, and noticed your post. I think I have Adhesions and maybe ACNE's from a gall bladder laparoscopic surgery in June of 2023. The possibility of adhesions post surgery wasn't discussed at all. I started having pain about four or five months post surgery. I've had imaging done: endoscopy, colonoscopy, CT and ultrasound; all of them don't show anything internal in the GI tract that would be causing the pain/discomfort. I've seen two gastroenterologists and neither can explain what is going on, other than if I have adhesions they won't show on imaging and only found with exploratory surgery. They wouldn't do that unless there is an obstruction happening, and right now there isn't. they both suggested either amythryptaline or northriptaline (not sure if I spelled them correctly), but the possible side effects don't sound good. Are you taking anything for pain? If anyone else that reads this has any experience with dealing with the abdominal wall pain, please respond.

Yes, I have had bad ilioinguinal nerve pain and anterior cutaneous nerve pain. It took forever to diagnose. The anterior cutaneous I had cut. The ilioinguinal I have no choice but to try spinal cord stimator.
My nerves are covered in scar tissue. Either from my hysterectomy and or severe endometriosis. Even though it was 30 yrs ago.
I would suggest you go to a pain specialist they can inject the nerves with the steroid and a numbing agent and that's how you diagnose that that's the problem.

Good luck

@pen55 could you Please tell me who cut your anterior cutaneous nerve entrapment, according to my googling very few surgeon's will do it .

@anniesezu812
I've been reading through posts on ACNE's and Adhesions, and noticed your post. I think I have Adhesions and maybe ACNE's from a gall bladder laparoscopic surgery in June of 2023. The possibility of adhesions post surgery wasn't discussed at all. I started having pain about four or five months post surgery. I've had imaging done: endoscopy, colonoscopy, CT and ultrasound; all of them don't show anything internal in the GI tract that would be causing the pain/discomfort. I've seen two gastroenterologists and neither can explain what is going on, other than if I have adhesions they won't show on imaging and only found with exploratory surgery. They wouldn't do that unless there is an obstruction happening, and right now there isn't. they both suggested either amythryptaline or northriptaline (not sure if I spelled them correctly), but the possible side effects don't sound good. Are you taking anything for pain? If anyone else that reads this has any experience with dealing with the abdominal wall pain, please respond.

@anniesezu812
I've been reading through posts on ACNE's and Adhesions, and noticed your post. I think I have Adhesions and maybe ACNE's from a gall bladder laparoscopic surgery in June of 2023. The possibility of adhesions post surgery wasn't discussed at all. I started having pain about four or five months post surgery. I've had imaging done: endoscopy, colonoscopy, CT and ultrasound; all of them don't show anything internal in the GI tract that would be causing the pain/discomfort. I've seen two gastroenterologists and neither can explain what is going on, other than if I have adhesions they won't show on imaging and only found with exploratory surgery. They wouldn't do that unless there is an obstruction happening, and right now there isn't. they both suggested either amythryptaline or northriptaline (not sure if I spelled them correctly), but the possible side effects don't sound good. Are you taking anything for pain? If anyone else that reads this has any experience with dealing with the abdominal wall pain, please respond.

@kremer1 Yes I am on pain meds. I was originally diagnosed ACNES about 7 years after my small abominal wall injury which was left unrepaired for 6 yrs because it didnt show on scans, you may have read what I previously wrote on this blog.
I had about 4 nerve blocks, none of them helped. The pain was always much deeper than the nerve blocks went. My Dr couldn't understand why it was so deep. Ultimately a hernia surgeon suggested to me I might have Celiac (solar) Plexus pain, which i now believe is correct and ACNES is not correct. The nerve bundle affected in my case sits on the Aorta. Im in No hurry to do that block, it comes with risks, but its debilitating pain, life altering.
More to your point if you have nerve pain, stabbing, burning, gnawing, sharp it is probably nerve pain.
Im on 3x oxycodone which does help but I get best relief from xanex , which I find helps nerve pain greatly. Also I finally gave in and started pregabalin, I can't take Gabapentin. After a few days I started getting very good relief with the pregabalin at 75 mg. I was loathe to add another medicine, but jt has helped my excruciating pain to the point im out of bed and slowly regaining a life. I believe the Spinal Cord Stimulator did a tremendous amount of damage to my central nervous system. Im beyond relieved its out.
One day at a time....