Has anyone been diagnosed with Abdominal Wall Pain

Posted by rufus444 @smiles444, Dec 15, 2017

Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett’s test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?

Liked by graceandpeace

@bebe6 please keep us posted and I will do the same. Sadly you are right that most doctors decide real quickly after coming in the room if it fits in their box of knowledge. What ticks me off is that they don't even think much about it and the pain you are in. Most dont even recommend someone or something. If a 51 (my age) neurologist, or plastic surgeon or primary doctor had our pain non stop for two years what would they do? Would they accept the lack of interest from a doctor appt. Who would they call or try, chronic pain all the time is not acceptable and sadly it seems that abdominal pain isnt a focus if its not cause by an organ or issue that shows up on a scan.

Liked by ptlhrms

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@rt061069

@bebe6 please keep us posted and I will do the same. Sadly you are right that most doctors decide real quickly after coming in the room if it fits in their box of knowledge. What ticks me off is that they don't even think much about it and the pain you are in. Most dont even recommend someone or something. If a 51 (my age) neurologist, or plastic surgeon or primary doctor had our pain non stop for two years what would they do? Would they accept the lack of interest from a doctor appt. Who would they call or try, chronic pain all the time is not acceptable and sadly it seems that abdominal pain isnt a focus if its not cause by an organ or issue that shows up on a scan.

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That’s so true! It’s hard to get doctors to think outside the box! After many doctors and a 3 day visit to Cleveland clinic, I diagnosed myself! I’ve had two injections with very little relief! My doctor wants me to see a pain psychologist. I do have other problems. I really believe I need either more injections or surgery, which he doesn’t seem interested in either one. What else can I do? It has really changed my life! The pain is all the time. I can’t breathe properly and I can barely scrub the bath tub or make the bed without getting winded and hurting in my lower groin area.

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@undiagnosed2016

That’s so true! It’s hard to get doctors to think outside the box! After many doctors and a 3 day visit to Cleveland clinic, I diagnosed myself! I’ve had two injections with very little relief! My doctor wants me to see a pain psychologist. I do have other problems. I really believe I need either more injections or surgery, which he doesn’t seem interested in either one. What else can I do? It has really changed my life! The pain is all the time. I can’t breathe properly and I can barely scrub the bath tub or make the bed without getting winded and hurting in my lower groin area.

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Welcome to Connect @undiagnosed2016, As you probably already know, we are not medically trained, we are just folks who have been there ourselves or have been a caregiver for a patient who reported similar symptoms.

When you say that you diagnosed yourself…..what did you mean? Did you administer and prescribe your own injections? Do you mind telling me what they were supposed to do for you?

Are your "other problems" things related to your abdominal pain? What can the pain psychologist do for you……verify your diagnosis or support your viewpoint and analysis.

The reason that I am asking is that I had what I called the abdominal firepit for about 6 months after being diagnosed with SFN, small fiber neuropathy. It reminded me of lighting one of those glass fireplaces….just roared across my abdomen every morning.

My SFN has moved on to some other notable nerve tragedy and I have not had any abdominal problems since then. I used medical cannabis tinctures. Did that help? I don't know…..the pain just stopped.

My very best wishes to you in your search for comfort and ease.
Chris

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