Has anyone had the Stimwave spine stimulator installed?

Posted by WS4K @ws4k, Dec 12, 2018

Hello to ALL! I have a severe back injury and even after three surgeries and several fusions, I am still experiencing severe and chronic pain. My pain management specialist is talking about a spine stimulator. After some research I located the Stim Wave. With this unit, only the leads are implanted. No wires come through. The antenna is worn like a pager on your belt.

Has anyone tried one of the Stim Wave stimulators yet? Any feed back on them?

Interested in more discussions like this? Go to the Spine Health group.

@celinec

Hi @martyk yes that is the doctor. I sadly didn’t have enough time with him for a diagnosis before we moved. However unlike the doctors here in Florida he was actually trying to get to the “root of the problem”. The pain was in my back (cervical, thoracic, lumbar), along with horrible muscle spasms in my legs. All of this started after I somehow contracted parvovirus as an adult. Six years later and I’m now ten times worse. I should’ve stayed in NJ! I also should say I trusted Dr. Abramov and also liked him, he really does care about you.

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Thank you.

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I had a friend who tried the implanted stimulator after many surgeries and it didn't go well for him . To make a long story short, he hemorhaged from stomach problems of some kind, became paralyzed, lived on pain meds and some attempted physical therapy and died after home care for a a spell. He had 13 surgeries, including shoulders, besides the spinal procedures. It was too much for his body.
It would be an individual decision as to what is best to try in each case. I am not that ambitious to try much new in my case. I live with some pain and tightening, and can't walk very far at one time. I can still take care of myself and do limited gardening. It is enough for me.
Dorisena

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I had the StimWave implanted for over one year. I am contemplating removal because it doesn't work for me, although it worked somewhat during the trial period. I am considering neck surgery and one of my pain management professionals suggested I might want to leave the implant because it might help during my recovery period from surgery.

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@lhs

I had the StimWave implanted for over one year. I am contemplating removal because it doesn't work for me, although it worked somewhat during the trial period. I am considering neck surgery and one of my pain management professionals suggested I might want to leave the implant because it might help during my recovery period from surgery.

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Hello @lhs and welcome to Mayo Clinic Connect. Did you doctor mention why it may have worked better for you during the trial period? Other members have shared that feedback before too.

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Yes. I had it installed bilateral for my sacroiliac. In the trial I had problems as they thought I overstimulated the area. When they removed it, even though the tape was on securely, one wire had migrated. I did not get to evaluate it due to that issue. In Europe they implant it not just superficially through your skin.
I decided to get it implanted as I was willing to get off some medication.
First it didn’t seem to be helping then they changed the program. Then it was alarming frequently.
You normally only need one external antenna but because I’m small and don’t have much adipose tissue in in my buttock I need two. First had only one stimulator with a T connection but others besides me were having trouble with it so they gave me two controllers. It was the T connection loosing up. It looks look like I have two grenades on my body and clumsy.
Next they had no pouch for carrying these 2 antennas and 2 controllers so they ordered them off Amazon. They didn’t work well as they bent the one antenna ( they were for music)
Now I can feel the wires under my skin and they think they have migrated. Unfortunately I’m traveling and have to wait till I return to Tucson to get everything checked out.
I’m extremely active and can’t wear the device hiking, backpacking, kayaking or paddle boarding ( not waterproof). My pants rub on the area where the wires are located.
I have to charge the batteries frequently so this system needs improvement.
This system is not the right fit for someone active and the wires migrate, not just for me but others.
I’m planning on having it removed.

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@amandajro

Hello @lhs and welcome to Mayo Clinic Connect. Did you doctor mention why it may have worked better for you during the trial period? Other members have shared that feedback before too.

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It might have worked 2 days before the wire migrated because I was only allowed to take short walks.
Once I started biking and being fully active it didn’t help.
I didn’t have much time to evaluate the pain relief during the trial. I wanted another trial but the doctor said the insurance would not pay for it.

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My mother is 75 years young, and has many issues with her back. she's had two aneurysm surgeries – one aortic and the later was abdominal. The second surgery took a toll on her, all the way around. Her back is in constant pain, she has a very hard time with balance that leads her to falls. That has created more problems, such as a fracture and then a broken collar bone. This pain has been ongoing for well over a year, almost two. She has had many epidurals, several thoracic nerve blocks, and has tried numerous otc pain medications as well as prescription. Nothing has helped her chronic pain. To read her MRI results and other scans, her back basically looks like a train wreck. from bulging discs to mild/moderate stenosis, multilevel degenerative changes, diffuse disc bulge facet joint ……
any thought as to wether or not this method of treatment (stimwave) would be of help for my mother?
i feel so helpless with her being in so much constant pain. i want her to enjoy her retirement years! but as of now, she has yet to enjoy much of anything at all!!
thankyou in advance for your time in reading, and giving any opinions or advice ….

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@julessss

My mother is 75 years young, and has many issues with her back. she's had two aneurysm surgeries – one aortic and the later was abdominal. The second surgery took a toll on her, all the way around. Her back is in constant pain, she has a very hard time with balance that leads her to falls. That has created more problems, such as a fracture and then a broken collar bone. This pain has been ongoing for well over a year, almost two. She has had many epidurals, several thoracic nerve blocks, and has tried numerous otc pain medications as well as prescription. Nothing has helped her chronic pain. To read her MRI results and other scans, her back basically looks like a train wreck. from bulging discs to mild/moderate stenosis, multilevel degenerative changes, diffuse disc bulge facet joint ……
any thought as to wether or not this method of treatment (stimwave) would be of help for my mother?
i feel so helpless with her being in so much constant pain. i want her to enjoy her retirement years! but as of now, she has yet to enjoy much of anything at all!!
thankyou in advance for your time in reading, and giving any opinions or advice ….

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Hi Jules, I know what you mean about feeling so helpless. When my mom was suffering from mobility issues, it was hard to see. She was otherwise so young. i'm grateful her painful bunion issue was resolved and she has her mobility and joy back. But that's not your mom's issue.

So, I moved your post to this existing discussion about the StimWave started by @ws4k where you can read the experiences of others like @celinec @martyk @texasaviatrix @sprinrosa64 and more. Please scroll through the past comments to read more.

You might also appreciate @donw200's story here:
– Stimwave user here: What's been your experience? https://connect.mayoclinic.org/discussion/stimwave-user-here/

@jenniferhunter may also have some thoughts to share with you.

Jules, has her doctor suggested that a spinal stimulator could help?

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@julessss

My mother is 75 years young, and has many issues with her back. she's had two aneurysm surgeries – one aortic and the later was abdominal. The second surgery took a toll on her, all the way around. Her back is in constant pain, she has a very hard time with balance that leads her to falls. That has created more problems, such as a fracture and then a broken collar bone. This pain has been ongoing for well over a year, almost two. She has had many epidurals, several thoracic nerve blocks, and has tried numerous otc pain medications as well as prescription. Nothing has helped her chronic pain. To read her MRI results and other scans, her back basically looks like a train wreck. from bulging discs to mild/moderate stenosis, multilevel degenerative changes, diffuse disc bulge facet joint ……
any thought as to wether or not this method of treatment (stimwave) would be of help for my mother?
i feel so helpless with her being in so much constant pain. i want her to enjoy her retirement years! but as of now, she has yet to enjoy much of anything at all!!
thankyou in advance for your time in reading, and giving any opinions or advice ….

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Jules, perhaps you and your mother should talk to your mother's pain management doctor(s) to see if she is a candidate for a pain pump.

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