1. < Sarcoma
Profile picture for jeshaw6801

Anyone with Retroperitoneal leiomyosarcoma had a genomic analysis?

Posted by jeshaw6801 @jeshaw6801, Jan 20, 2025

I was diagnosed with rLMS in October. A 984 gram tumor was removed and damaged to a crushed small intestine was rejected. The tumor was rated as a stage two due to size. No symptoms until it caused a bowel blockage. No weight gain, no pain. Only bloating that started three days before. I have had a genomic analysis but have yet to speak with oncologist about what it means. Looking for others with LMS

Interested in more discussions like this? Go to the Sarcoma Support Group.

Profile picture for ctflyr
ctflyr | @ctflyr | Apr 16 9:50pm
In reply to @blessed08 "Hello again, thanks for your prompt response. I'm glad to hear that the Votrient is working..." + (show)
Profile picture for blessed08 @blessed08

Hello again, thanks for your prompt response. I'm glad to hear that the
Votrient is working for your wife. How long will she have to take it, and
is she going to a sarcoma clinic? This is such an uncommon form of cancer,
and not too many studies have been done about it to even know what causes
it. Also, it's rare to find other people who have been diagnosed with it.
My next scan is in June, and I pray and hope that I will continue to be NED.
Please give my regards to your wife, I wish her well.

Take care!

Jump to this post

@blessed08 Hi...thanks for the good wishes. She is a patient at Mayo. She will take Votrient for as long as it's effective. That varies case by case. The good thing is it's not chemo...something we pray she can avoid. My Wife has no cancer in her family, and this appeared out of nowhere with no symptoms except for a noticeable swelling in her abdomen.

REPLY
View MoreView Less
Please sign in or register to post a reply.