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Harrington rod surgery 40 years ago

Posted by peggy87 @peggy87, Aug 10, 2023

I am 53 years old, had Harrington rod for severe scoliosis about 40 years ago (from T3-T12). Had cervical spine fusion of C7-T1 a few years ago. Now facing extension of rod from T12-S1 along with fusion of SI joints at the same time. In addition, I have Rheumatoid Arthritis (RA), which creates some issues due to having to hold meds for surgery.
Has anyone else had this done? I am trying to understand the life altering movement challenges afterward (and anything else I should know beforehand) and would love some feedback. Thank you.

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cori | @ccchang | 6 days ago
In reply to @sadiegirl14 "I had T3-L5 fusion with instrumentation in 2011 when I was 58. The surgery took 10..." + (show)
Profile picture for sadiegirl14 @sadiegirl14

I had T3-L5 fusion with instrumentation in 2011 when I was 58. The surgery took 10 1/2 hrs with a 4 1/2 hour follow-up surgery a month later. It has been very challenging not bring able to bend or twist at the waist. My scoliosis kept progressing so I felt surgery was the only answer. I am only truly comfortable when reclined in my recliner. As I have aged I now walk with a forward leaning posture which i was hoping to avoid. I was not able to return to work as a bookkeeper.

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@sadiegirl14 You've been through a lot. I'm glad you're doing well now.

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nlback22 | @nlback22 | 5 days ago
In reply to @peggy87 "@nlback22 Nadine, Same here. Have not met someone else with the same harrington rod and scoliosis...." + (show)
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@nlback22
Nadine,
Same here. Have not met someone else with the same harrington rod and scoliosis. I had a similar situation...fell the following June after my surgery (9 months). Had x-rays done and sent in as I was out of town. Nothing harmed from fall thank goodness.
The balance thing...yes, I am not sure if it's the SI joints or the extensive fusion of the spine affecting my balance. Know I need to keep working on it to keep it as good as possible!
Hope all turned out well for you!
Peggy

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@peggy87

Hello Peggy,
Fortunately, my scans revealed nothing was damaged by my fall. All is going well --Dr. Fogelson said my back is fusing and my hardware is in place🙏

I have been going to a PT Balance expert to, , hopefully, decrease my likelihood of not falling again.

I hope all is going well for you.
How are you doing?

Best Wishes!
Nadine

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