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Hand and Foot Syndrome - any suggestions?
Xeloda (chemo pill) is causing hand/foot syndrome where feet, especially, have lost the first layer of skin and they are extremely painful with a lot of “nerve heat”. I can still walk but just barely and only short distances. Finger tips are also affected, but not so badly. Have been prescribed Triamcinolone Acetonide 0.1% and it seems to help but not enough. Am also trying cold water foot baths. Anyone have the same issues and suggestions for how to mitigate? Went from 2000 mgs Xeloda to 1500 mgs/day and would rather not reduce my dosage as I have bone and liver mets. There’s a possibility of doing 1 week on Xeloda and 1 week off - am currently on 2 weeks on and one week off. Any feedback will be much appreciated.
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Welcome back, Sally and thanks for answering the tag. I wasn’t sure if you were still getting emails from Connect. Eight years! A very special happy new year to you too.
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2 ReactionsHi all
I did 3.5 years of xeloda and avastin.
I found that bag balm worked the best
I would use it in the evening and then put heavy socks and gloves on to sleep
Presently I will make 8 years on Jan 8 2023 stage 4
It has been quite a journey and I am thankful for every day
Stay strong
Happy new year
Sally
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8 Reactions@adanab, I’m bringing in fellow members @sallyg @mjjc @christy26 @seathink @lisag03 who have mentioned dealing with hand-foot syndrome (HFS) – skin reaction that appears on the palms of the hands and/or the soles of the feet as a result of certain chemotherapy agents, like Xeloda.