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Hairy Cell Leukemia: having chills and fever periodically, what helps?

Posted by huib @huib, Jun 15 7:01pm

My wife was diagnosed with HCL about three months ago. She had Rituximab and Cladribine as a treatment. Her blood counts, platelets and Homoglobin are back to normal ranges as well as her spleen size is fine. The only issue remaining is having chills and fever every 8 to 12 hours. Doctor prescribed Ibuprofen. Any one knows the reason and whet is the solution for this chill? Thanks

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phyreguy79 | @phyreguy79 | Jun 16 8:36am

Hello, I was diagnosed with HCL in 2015. I'm thinking it's the Rituximab. I was given it in my 2nd round of chemo and for some reason I started convulsing in the chair. I had a high fever for the rest of the week, so bad I took myself to emerge and was admitted.
Suffered nerve damage that took a year to correct. But thank god it did as I'm back to playing hockey and golf.
No one will say it was that chemo but it a strange coincidence. My oncologist says it can lengthen time between treatments, so I'll have a tough decision the next time chemo is called for. I feel lucky to get HCL as it can be managed unlike some other cancers.

Steve

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huib | @huib | Jun 16 4:06pm
In reply to @phyreguy79 "Hello, I was diagnosed with HCL in 2015. I'm thinking it's the Rituximab. I was given..." + (show)
@phyreguy79

Hello, I was diagnosed with HCL in 2015. I'm thinking it's the Rituximab. I was given it in my 2nd round of chemo and for some reason I started convulsing in the chair. I had a high fever for the rest of the week, so bad I took myself to emerge and was admitted.
Suffered nerve damage that took a year to correct. But thank god it did as I'm back to playing hockey and golf.
No one will say it was that chemo but it a strange coincidence. My oncologist says it can lengthen time between treatments, so I'll have a tough decision the next time chemo is called for. I feel lucky to get HCL as it can be managed unlike some other cancers.

Steve

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Thanks Steve for sharing your experience. Much appreciated!

Hopefully this chill or fever will resolve after sometime as she had all her doses taken since a week and anticipate that no fever will come back.
Thanks,

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