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Had lobectomy in 2020 still having radiating severe nerve pain.

Posted by mef @mef, Aug 11, 2023

Had upper right lobectomy in 2020. I’m still having severe radiating nerve pain. Anyone else having this?

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allstaff | @allstaff | Feb 12 7:16pm

Wow! mine is 5-1" incision and one that is about 5 inches where the drainage tube was.

The 2011 is 4 1 " incisions.

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1 reply
mef | @mef | Feb 12 7:09pm
In reply to @allstaff "I'm taking roboxin for muscle. I didn't have any meds given to me after 2020. This..." + (show)
@allstaff

I'm taking roboxin for muscle. I didn't have any meds given to me after 2020. This time the gave me lyrica but trying not to the it because it makes me too sleepy. Both surgeries under breast around to the back

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Ok my surgery was on the back under shoulder blade about 7-8 inch incision.

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allstaff | @allstaff | Feb 12 6:13pm

Thank you for the info. Im really happy about this support group. This time is so different that the first time so I worry that something is wrong as sometimes answers from doc or pa I have felt like I was an annoyance. This site has reassured me that I'm ok. Having surgery at 78 vs 65 is very different

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1 reply
pb50 | @pb50 | Feb 12 4:44pm
In reply to @allstaff "I can't remember exact size but about Suze of a quarter that was in 2011. This..." + (show)
@allstaff

I can't remember exact size but about Suze of a quarter that was in 2011. This one about the size of a dime that was monitored for about 3 years no growth but then thru a satellite and it was time to get it removed. I was offered radiation but 3 doctors said "get it out" since it had not gone into lymph nodes. They called it the gold standard. I have to say this time around recovery hasn't been as quick but honestly im not the most patient person.

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Ok. A quarter size would be roughly 24mm, 2.4 centimeters or 1 inch. A dime is roughly 18 mm, 1.8 cm and 0.7 inches. That’s not very big. But it could have had a sizable enlargement in a shorter time. That’s what happened to me. Only 6 to 9mm over 3 yrs, but it went from 9 to 14 in one yr. So it had to come out.

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allstaff | @allstaff | Feb 12 3:42pm

I can't remember exact size but about Suze of a quarter that was in 2011. This one about the size of a dime that was monitored for about 3 years no growth but then thru a satellite and it was time to get it removed. I was offered radiation but 3 doctors said "get it out" since it had not gone into lymph nodes. They called it the gold standard. I have to say this time around recovery hasn't been as quick but honestly im not the most patient person.

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1 reply
pb50 | @pb50 | Feb 12 3:20pm
In reply to @allstaff "I had right upper lobe removed in 2011 and still have occasional nerve pain in that..." + (show)
@allstaff

I had right upper lobe removed in 2011 and still have occasional nerve pain in that area. The have monitored me very close since and I had adenocarcinoma again in lower left lobe and had that removed Dec 2023. Some nerve pain more than with the right. So frustrated, and impatient but the good news I'm alive, no oxygen needed even with 40% loss so I'm very grateful cancer is gone and I have been given more time with my loved ones.

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May I ask - How large was your initial tumor, and how long after that did they find the second one?

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allstaff | @allstaff | Feb 12 3:01pm

I'm taking roboxin for muscle. I didn't have any meds given to me after 2020. This time the gave me lyrica but trying not to the it because it makes me too sleepy. Both surgeries under breast around to the back

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1 reply
mef | @mef | Feb 12 2:36pm
In reply to @allstaff "I had right upper lobe removed in 2011 and still have occasional nerve pain in that..." + (show)
@allstaff

I had right upper lobe removed in 2011 and still have occasional nerve pain in that area. The have monitored me very close since and I had adenocarcinoma again in lower left lobe and had that removed Dec 2023. Some nerve pain more than with the right. So frustrated, and impatient but the good news I'm alive, no oxygen needed even with 40% loss so I'm very grateful cancer is gone and I have been given more time with my loved ones.

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My nerve pain from right upper lobectomy 2020 was severe so they prescribed Gabapentin & it does help.
Did they go in the front or back?

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allstaff | @allstaff | Feb 12 10:55am
In reply to @yellowstonelady "I am so sorry to hear that. My surgeon told me that my lung cancer lobectomy..." + (show)
@yellowstonelady

I am so sorry to hear that. My surgeon told me that my lung cancer lobectomy pain would go away in a year or so. That was in 2000. I still have nerve pain 23 years later. I've learned to block it out most of the time. Winter storms cause it to be more painful. I have a large size heat pad on the back of my chair and keep it on most of the day. The pain tends to be sharper when my back gets chilled and goosebumps.

I hope your nerve pain goes away eventually. When I complain about my scar pain to the husband, he reminds me that I am very lucky to be here.

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I had right upper lobe removed in 2011 and still have occasional nerve pain in that area. The have monitored me very close since and I had adenocarcinoma again in lower left lobe and had that removed Dec 2023. Some nerve pain more than with the right. So frustrated, and impatient but the good news I'm alive, no oxygen needed even with 40% loss so I'm very grateful cancer is gone and I have been given more time with my loved ones.

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2 replies
pb50 | @pb50 | Feb 1 10:13am
In reply to @weeweemt "Hi. Well I also feel it’s forever pain. It has affected my whole right side and..." + (show)
@weeweemt

Hi. Well I also feel it’s forever pain. It has affected my whole right side and middle tummy. But at least I am cancer free. My yearly CT scan next week. Thanks for your reply and I know I am not alone. Have a great day

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Partners in pain. 🙄😁

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