Chronic granulomatous disease (CGD): How to build the immune system?

Hi @mrsmarvl, I added your question to the Blood Cancers & Disorders support group as well. Chronic granulomatous disease (CGD) is an inherited disorder that occurs when a type of white blood cell, called a phagocyte, doesn't work properly.

I assume this is something your husband has had since childhood. Some people may not be diagnosed until adulthood. Has this only been recently diagnosed for your husband?

I just had a CT scan done to see where my kidney stone was. I was told I had a UTI and that my 3mm stone had left my kidney. Didn't think something that little could be so painful, but it dropped me to my knees. Thankfully I passed it about 30 hours later. But when I was reading all my medical finding and blood work. I saw something that is concerning to me and I do not know what it means. " Granulomatous seen through out the spleen. Not sure why I wasn't told this or maybe it is nothing or over looked. ( I had this done while I was at the hospital in the ER). Can anyone tell me what this all means? Thank you Becky

Hello @overthehillsb,

I moved your discussion to a discussion titled,

"Chronic granulomatous disease (CGD): How to build the immune system?"
- https://connect.mayoclinic.org/discussion/granulomatous-disease/

Here you will meet @mrsmarvl, @megansims and @klsmidwestmom who have all mentioned granulomatous disease on Mayo Clinic Connect in the past.

@overthehillsb, are you able to contact your provider to discuss this diagnosis that you were unaware of?

I don't think it means too much from my own research about it. I had the same finding and the Dr. looking on my scan didn't even comment on that part so I googled it and I don't think it sounds very sinister at all.

Hello,
I am writing to ask for advice because I think you are knowledgeable about the subject or you may have received information from different groups.
First of all, get well soon.
My son was diagnosed with CGD when he was 5 years old.
We are currently using Bactrim, Funit and Immukine.
Is bone marrow transplantation necessary?
Our hospital is insisting on bone marrow transplantation.
I need your information.
Thank you

Welcome to @eagle1903 I realized too late that you posted a similar inquiry in another discussion. I happened to see that one first and wrote a reply to you there. Here’s the link:
https://connect.mayoclinic.org/comment/1276235/
Hopefully my reply will help explain why your son’s doctor is recommending a bone marrow transplant. Do you have any specific questions on transplantation?