Going for Tulsa Pro Jan. 7th
I've posted here a few times over the last year and have read most of the posts from others. I was diagnosed in January 2024 through an ultrasound biopsy (it should have been MRI guided), followed by a PSA test CT scan, MRI, and Decipher test. My cancer is not aggressive, but there are three growths in my prostate. My doctors recommended a full ablation, and I’ve decided to go with the Tulsa Procedure at UCLA with Dr. Steven Raman.
I’ve waited until now because I believe Medicare will begin covering the procedure on the 1st. of 2025. Earlier this year, I switched from a Medicare HMO plan (Blue Shield) to Original Medicare with a supplemental plan, where Medicare covers 80% and the supplemental plan pays the remaining 20%. It’s been incredibly difficult to determine whether Medicare will actually cover the procedure, as I’ve received conflicting information. However, I think they will.
I considered going back to an HMO with United Health Plans, which includes UCLA physicians as in-network, but no one could guarantee that they’d cover the procedure either.
Anyway, I thought I’d document this journey. It begins on January 5th, when I’ll check into an Airbnb hotel near the procedure location. This is two days before the procedure. I’ll have to fast those 2 days and completely empty my stomach (I’ll spare you the details). In the best-case scenario, I’ll wake up with a catheter and a “burned out” prostate. I’ll need to wear the catheter for at least two weeks. Hopefully, they'll get it all 🙂
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
Good to hear from you and that it went ahead. Put a little petroleum jelly around tube where catheter comes out is what they taught me, really helps. I had a bag I could change to a small bag, but it was useless. Yes that sensation of having to pee when you wake up is a lot but the meds do work.
Great it is over! I used an Ace bandage to secure the Cather to my upper thigh. That eliminated the tugging feeling on the end of the penis. I used a 1 gallon bucket to carry the bag around my house and a small fabric bag when I was out of the house! This too shall pass 😉
I have an appointment Tuesday which is 1 week post procedure. They'll hopefully be removing the catheter. There hasn't been any blood in my urine and still no pain. I am on the mend.
Good news. TULSA is an easy procedure compared to everything else. I didn't like the catheter but it wasn't bad, just inconvenient. I was drinking my coffee one morning and suddenly had the urge to pee. It was a 10 plus urge. I thought, I can't make it to emergency. I pulled down my pants to check the tubing and it was twisted cutting off the urine flow. What a relief. I was amazed and thankful for the lack of prostate pain or any other pain after the procedure.
I live in Orlando but I am looking at the TULSA procedure and Mayo Jacksonville. Can you please share your experience there so far? How long you waited to get an appt and who you saw there?