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Going back to normal life
I would like guidance on how to return to normal activity that I enjoy. I like playing pickleball and would like guidance as to how to safely return to play as well as knowing when it is safe. Does all the inflammation need to be gone? Thanks. I currently use an exercise bike and walk on a treadmill daily.
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After being off prednisone for much of the last 4 years, I look forward to my NEW normal.
My 12 years on prednisone for PMR were characterized by extreme fatigue, shortness of breath and an overall decline in health. I rather not look back on that except to share my experiences.
An exercise bike and treadmill is now okay for me too. Pickle ball is tempting and I may give it a try someday.
I don’t need to pace myself anymore. I thrive more with water exercise rather than land exercise. At least I’m able to exercise again.
I’m like a kid learning what I can still do rather than what I used to do.
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4 ReactionsHow exciting! I am simply pea
green with envy!! My life has been divided into pre-RA and post RA. And now there’s another layer of pre and post lobectomy. I remember my 50’s with fondness - golf, gardening, entertaining, traveling and working. I need to figure out what will be something I can look forward to now.
I hope you learn pickleball and love It!!!!
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3 ReactionsSomeone shared this video/song with me once. I found it inspirational and uplifting. It sums up the journey that is PMR or any condition that causes chronic pain.
My PMR is not gone, but has gotten significantly better. It has gotten sufficiently better that I started exercising again. In my case, I started weight training and running. My hips got better faster than my shoulders and back. In both cases, I just did what I could without significant pain and backed off if I was sore until the soreness was gone. I can’t say I really ever had the impression it made the PMR worse, but I never really pushed through significant pain either. So based on my experiment of one, I’d say start very slowly, back off is there is significant pain, and do what your body allows. I hope this helps, but I’m not sure it will. 🙂
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10 ReactionsNice. So is your mix list. I got lost in it for a bit. 🙂
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1 ReactionI have been playing pickleball for about 8 years so it had become my social life and exercise. Thank you!
That is helpful. So trial and error. Makes some sense and also is what my physical therapist thinks. Your recovery sounds similar to mine with the shoulders seeing to take longer to feel normal. Thank you!
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2 ReactionsI will be having back surgery for sciatica. Are there are precautions for surgery/anesthesia when you have PMR?
My PMR diagnosis coincided with the need for shoulder surgery (a painful bicep tear). My ortho Dr told me to not begin my course of prednisone until a week after surgery. My rheumatologist concurred. I believe there could be a problem with the anesthesia interacting with prednisone. You didn’t mention what medications you are taking. It would be best to talk this over with your surgeon.
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2 ReactionsNot so many precautions for PMR except for the possibility of causing a flare.
Depending on how long you have been on prednisone, there are many precautions that should be taken. Make sure the surgeon and the anesthesiologist know you are on long term prednisone.
When I faced a major back surgery, I was told I wasn’t a good surgical risk because of prednisone. Pain was going to be the deciding factor. I wound up taking 60 mg of prednisone and the pain went away.