If you took GLP-1s for weight loss, did it help your Neuropathy?

Posted by elwtonykt @elwtonykt, Jan 2 6:12pm

Wondered if anyone has experience with Neuropathy, with or without T2 Diabetes, was overweight, went on the GLP-1 medications, lost weight and got A1C down, and saw improvement or elimination of Neuropathy symptoms? or went thru all that and saw no improvement of PN?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for mrmacabre @mrmacabre

UC can cause arthritis?

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@mrmacabre I did not word that correctly! The underlying cause(s) of ulcerative colitis also can cause inflammation of the joints. So my daughter gets a double whammy. But the GLP-1 she was recently prescribed does provide some relief from the joint inflammation.

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Profile picture for cleveland26 @cleveland26

I take a GLP-1 for reduction of blood sugar. (It works) My daughter was prescribed it also. She has ulcerative colitis which also causes arthritis. She says her painful arthritis is much reduced after taking the weekly shot. This leads me to ask whether a GLP-1 would reduce neuropathy pain?

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UC can cause arthritis?

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I take a GLP-1 for reduction of blood sugar. (It works) My daughter was prescribed it also. She has ulcerative colitis which also causes arthritis. She says her painful arthritis is much reduced after taking the weekly shot. This leads me to ask whether a GLP-1 would reduce neuropathy pain?

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I eat 6 - 8 raw, unsalted cashews every morning and have done so for about 2 years.

The waffle board reference is to the physical stress experienced when I stand for roughly 5 minutes or so intervals on thick carpet (while singing in the church choir).

Both of these started at the same time, roughly two years ago, and both seem to have contributed to the beginning of substantial PN remission.

It is logical that I would continue to benefit, although this is more difficult to assess as a result of the fact that I
have been taking IVIG infusions for almost a year.

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Profile picture for constable12 @constable12

The brand name product used in my IVIG infusion is Gamunex - C.

This is first-line treatment for CIDP. My understanding is that the medication is a cocktail of blood platelets from some 6 to 10 thosand people, designed to modify my auto-immune system.

My conclusion is that minimal stretching and strengthening exercises are essential to maximizing the results
of IVIG treatment. The same is likely true for CIDP patients who are not receiving IVIG.

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@constable12 hello, I am going to
Penn Hospital/University of Pa on April 6th for my dx of CIDP. In the meantime should I try eating Cashews? How. Raw, unsalted and how many a day? Does it help. Also what is Thick Carpet Waffle Board? Thank you for any help you can give me.

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The brand name product used in my IVIG infusion is Gamunex - C.

This is first-line treatment for CIDP. My understanding is that the medication is a cocktail of blood platelets from some 6 to 10 thosand people, designed to modify my auto-immune system.

My conclusion is that minimal stretching and strengthening exercises are essential to maximizing the results
of IVIG treatment. The same is likely true for CIDP patients who are not receiving IVIG.

REPLY
Profile picture for constable12 @constable12

@greengold

Thanks.

Maybe the "Incremental Cashew Fat Therapy Theory" is given additional impetus by recent studies finding that incremental fat loss as a result of the use of weight-loss drugs can induce some sort of reversible "PN LIght".

I contacted Vanderbilt Medical School and, unfortunately, it has not pursued any further cashew work.

Exercise - I have concluded that even minimal flexibility and strengthening exercises are necessary to maximize the effects of the IVIG treatment I am now receiving.

After considerable thought, I would include the "Thick Carpet Waffle Board Exercises" I mentioned as a significant exercise factor.

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@constable12
You lost me on the IVIG treatment. I'm not good with acronyms.
I talked to my chiro orator, and he encouraged me to continue with stretching, walking, any strengthening exercises I'm doing. He said that because the peripheral nerves send signals back to the Central Nervous System, we are signaling that those muscles / nerves are still alive ( and maybe need help...my addition😊).
Betty

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Profile picture for greengold @greengold

@constable12 I feel anything is worth a try. I usually try severL at the same time for the total affect.
I feel remedies may be like a pie, with the wedges delivering different percentagesvif healing. Eg. Cashews may be 15% , daily exercise 20%, nutritional diet 25%, mindfulness deep
breathing 10%. You get the idea..you fill in what you think may be good remedies, and do them all together for a few months.

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@greengold

Thanks.

Maybe the "Incremental Cashew Fat Therapy Theory" is given additional impetus by recent studies finding that incremental fat loss as a result of the use of weight-loss drugs can induce some sort of reversible "PN LIght".

I contacted Vanderbilt Medical School and, unfortunately, it has not pursued any further cashew work.

Exercise - I have concluded that even minimal flexibility and strengthening exercises are necessary to maximize the effects of the IVIG treatment I am now receiving.

After considerable thought, I would include the "Thick Carpet Waffle Board Exercises" I mentioned as a significant exercise factor.

REPLY
Profile picture for Suz @db72

@elwtonykt Im so glad you asked this and hope you get some feedback. I’m planning to ask my Dr for this in hopes that I can lose weight and to see if it will help my neuropathy and ME/CFS. I don’t have diabetes. There’s been quite a bit of discussion on Health Rising’s forum about it helping with CFS .

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@db72
Tes, I've started on the Whole-Foods-Plant -Based Lifestyle. I am amazed how much I like it. I was motivated by the book "The China study " published 2016 by Colin Campbell, a Researcher, who is now 91 years old. I'm finding I can taste the grains, the veggies ,without the extra stuff we put on them. It encourages you to eat a lot, don't go hungry. I'm eating differently, learning a different way of cooking and eating, and feel good. Too ealy to tell if it helps the neuropathy as I only started 6 weeks ago. I have had an A1C blood test done a few days ago so I'm interested to know what the results are.

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Profile picture for constable12 @constable12

I had a dx of severe, bilateral peripheral neuropathy about 15 years ago. As expected, things got progressively worse.

Neurologist at the time was disappointed he couldn't pin it on diabetes. By default, cause seems to be lumbar disc injury.

2 years or so, ago, I started into remission - growth of new muscle, return of feet sensations, improved handwriting, etc.

CIDP dx followed.

Allowing for 30 day ramp-up, this corresponded, exactly, with two events:

(1) daily consumption of a dozen or so unsalted cashews;

(2) resumption of weekly church attendance - not as hokey as it sounds - standing on thick carpets in choir is akin to an intense waffle board exercise.

Vanderbilt Medical published a promising study some years ago linking PN improvements with cashew shell extract.

Cashews contain lots of fat, maybe of the sort lost from my nerve fibers?

I've heard crazier stories.

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@constable12 I feel anything is worth a try. I usually try severL at the same time for the total affect.
I feel remedies may be like a pie, with the wedges delivering different percentagesvif healing. Eg. Cashews may be 15% , daily exercise 20%, nutritional diet 25%, mindfulness deep
breathing 10%. You get the idea..you fill in what you think may be good remedies, and do them all together for a few months.

REPLY
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