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After craniotomy: What can I expect when I wake up and after?

Posted by jeanneoc @jeanneoc, Jul 18, 2025

After living with my insular ( hopefully still a grade 2) glioma for almost 16 yrs doctors say it's now possible to remove it surgically. What can I expect to feel like in the first days after surgery?? Any tips for preparing for surgery??
Thank you!
Jeannie

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Maryann | @mkoch | Oct 28, 2025
In reply to @jeanneoc "Having a craniotomy (insular glioma) in few weeks. Getting more nervous in general about having permanent..." + (show)
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Having a craniotomy (insular glioma) in few weeks. Getting more nervous in general about having permanent pain or strange sensation near incision site, as well as permanent mobility issues. Can anyone describe what to expect right when I wake up?? Then after a week or so??Thanks!

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jeanneoc: To answer the question of what will I feel when right after I wake up, I think you will feel relief that the surgery is now behind you and hopefully, like I thought, "That wasn't as bad as I imagined it would be." Kdog1957 described the post surgery scenario well. After 3 months pre-surgery getting 3 different opinions, reading everything I could on-line to educate myself, knowing my husband and kids were trying not to show their stress, that by the time I arrived at the hospital at 6:30 a.m. I was remarkably calm; I just wanted to get it over. I hope for you a sense of peace about it all settles in.

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