Anyone have experience with gastrointestinal stromal tumor (GIST)?

Posted by fredkj @fredkj, Oct 11, 2022

Is there anyone in the group has any info on this issue. Have some been through this are know anyone who has that can have any helping info

Interested in more discussions like this? Go to the Sarcoma Support Group.

anxious4nothing | @anxious4nothing | Oct 11, 2022

I was diagnosed with a GIST tumor in 2018. I underwent robotic surgery to have the tumor removed. 1/3 of my stomach was removed during surgery due to the tumor being imbedded deep within my stomach wall.
It is 4 years later, and except for small meals 6x a day in lieu of 3 large regular meals, I have not had any aftereffects of this journey. It was concluded that if cancer cells were present, they were of a "slow" growth kind. I had follow ups every 6 months and my last visit in 2021, I was released from further follow ups.

Colleen Young, Connect Director | @colleenyoung | Oct 11, 2022

Welcome @fredkj. I'm tagging a few other members like @ta52 @kakb @anxious4nothing @amyj2022 who have experience with gastrointestinal stromal tumors (GIST).

While we wait for other to chime in, can you share a bit more about yourself? Have you recently been diagnosed with GIST? What treatment(s) will you or are you having? How are you doing?