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Anyone have experience with gastrointestinal stromal tumor (GIST)?

Sarcoma | Last Active: Dec 15, 2023 | Replies (51)
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@colleenyoung

Welcome @fredkj. I'm tagging a few other members like @ta52 @kakb @anxious4nothing @amyj2022 who have experience with gastrointestinal stromal tumors (GIST).

While we wait for other to chime in, can you share a bit more about yourself? Have you recently been diagnosed with GIST? What treatment(s) will you or are you having? How are you doing?

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Replies to "Welcome @fredkj. I'm tagging a few other members like @ta52 @kakb @anxious4nothing @amyj2022 who have experience..."
fredkj | @fredkj | Oct 13, 2022

Yes I was diagnosed in 2019 I’ve taking 3 types of medication and now I’m taking votrient. I went to moffitt cancer center to have the timer in my liver removed but when they went in to remove part of my liver they notice more small tumors on my intestines walls so they didn’t do the surgery because of the high risk. This they didn’t see on the scan but saw them when they went to do the surgery

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cathych58 | @cathych58 | Jul 12, 2023

Just diagnosed with a 2 cm gist in the duodenum. Waiting for results of surgical consult.

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