GI Disorder and Internal Shaking

Yes. I have had the same thing happening to me for years. Had heart testing done and blood work. All comes back fine. However about two years ago I found a doctor that was willing to help despite the normal tests. Turns out I have a major Candida infection and also some parasites. I asked him about these symptoms and although they can be caused by a few different things, he says people with Candida problems almost always have weak thyroid and adrenal glands. Typical testing for these glands might not show that there is an issue because the issue might not be in a diseased state yet. The issue with the glands is more likely to be caused by nutrient deficiencies caused by Candida and parasites stealing your nutrients and wearing your glands out. Candida infections and parasite infections are extremely common despite what anyone tells you. Might want to seek out a natropathic doctor that can help you with this.

I came across your post today. I have Gastritis, Esophagitis, constipated, internal shaking and not one doctor listens to me. I feel like I’m losing my mind! I totally understand and you are so not alone.

I have the same exact problem. It’s awful. Mine is mostly at night too. Did you find an answer to your problem?

Ask you doctor to have you take a SIBO breath test. It may reveal the presence of high levels of methane, resulting from the gas generated by a bacterial infection, be it in your stomach or upper intestine (or beyond). The bacteria/methane production, in turn, results in reduced stomach motility (the "wave" of nerves & muscles that moves the food from your stomach & thru you entire intestinal tract. Granted, an endoscopy. -if they dod a biopsy - can find if you have a certain bacteria present. But I have Kaiser - have had ALL that done, & yet ONLY found out about the SIBO test thru an Nathuropathic doctor. If present, a dose of antibiotic may work, but more critically, you really need to be looking at a special diet that ceases to fees. Can't believe your gastro doc hasn't brought this up.

I have Ehlers Danlos, hyperadrenergic POTS, cervical instability (CCI) and Chronic Intestinal Pseuo-obstruction. I found your post because I get your same symptoms. I'm investigating vagus nerve stimulation to see if moving my gut better will lower my head pressure and put me out of fight or flight, which seems to be causing the sympathetic overdrive and vibration. One key issue for me: "forward head posture" like sitting at a computer while leaning forward, looking down at a phone, or even doing dishes with head down, will cause lots of inflammation in my neck, which then pinches my vagus nerve, and sets off a cascade of symptoms, from internal vibration, to insomnia, dysmotility, heart palpitations, brain fog, etc. One tip I can give is consider eating less salt, if you are not already restricting it. Salt boosts aldosterone, which can trigger adrenaline surges. Taking potassium supplements also raises aldosterone, so it's tricky, and consulting a doctor is wise, especially if you already have electrolyte issues. It's true you could have bacterial overgrowth in your small intestine. Most of us with EDS have SIBO, but I've taken countless rounds of conventional antibiotics (like Rifaximin) plus herbal ones, and only get limited periods of remission, because the motility problem is not fixed. Pathogens in the gut generate toxins, which can slow down motility. For me, taking activated charcoal and zeolite powder binds toxins, reduces bloating, and helps a bit with symptoms.

Also, ask your doctor about the drug Amitiza - it's directed towards helping symptoms such as yours. But also ask to get a SIBO breath test, to check for stomach gas levels (methane), which is caused by bacteria, which in turn can slow stomach/overall stomach motility. Did you say you've done a round of antibiotics to try to knock out an present bacteria, be it in stomach or intestine? Also, talking with a dietician is CRITICAL to restore & reduce all such symptoms (a good one will talk about where foods are on the FODMap scale.

I have been experiencing severe internal shaking, which was waking me night. It feels like my whole body is shaking (jaw to legs) but you can't see or feel it on the outside. On top of feeling generally unwell, fatigued, bloated/burping, difficulty eating, heart palpitations, dizziness. This has been on/off for months but really bad for 4 weeks. My GP has run all bloods (vitamin levels, thyroid, adrenaline, hormones, FBC etc), MRI brain, CT neck/head and have had multiple visits to Emergency. Everyone keeps saying my tests are normal. I am starting to believe the shaking is gut related. Interestingly I started taking a probiotic and the shaking has stopped at night. I still feel quite unwell in general and are struggling to eat but the most concerning shaking feeling seemed to go away with introducing a probiotic and gut supplement called bioceuticals intestamine. I am booked in to see a naturopath this week to see if they can provide any input on gut issues and further testing. Also waiting on test results for helicobacter pylori, which i would recommend anyone who has similar symptoms to test for. Posting here in case this information helps someone.

I ended up getting diagnosed with a parasite. No recent travel/camping or classic 'gastro' symptoms and I live in a major city. My health team is shocked by this and that I experienced all of these symptoms as a result. A day on the antibiotic treatment I can feel my symptoms continuing to improve.

Could I ask what you mean by "lower my head pressure"? I have weird head pressure but have not heard anyone else report this. Thank you.

Ten years ago I had weird and extremely upsetting “ internal shaking” as it is referenced here. I called it vibration. It was awful. Also lost 8-10 lbs because of much reduced appetite. 18 mos. Later I was FINALLY diagnosed with Ciguterra… a neuro toxin from small fish who feed off dying reefs which then bioaccumulate in larger fish ( who eat the smaller ones). One other weird symptom was reversing hot and cold… warm/hot water felt cool/cold and vice versa. This symptom was no longer present when I was finally diagnosed ( 10 docs later) by an infectious disease expert ( who questioned me like Dr. House… the fictional doc on TV) . No treatment unless detected immediately. So lots of brown rice and B6 which helps with detox. Essentially I had to wait it out.

Interesting about the parasite diagnosis too. I had tested negative for parasites. I do believe western medicine is lacking in these “foreign” infectious disease complications.

Ciguterra was a new word for me but it appears in fishing magazines as it is apparently most commonly found in Caribbean populations.

I hope you all get relief soon; it’s a horrible sensation.