Getting nervous!

Posted by suesam @suesam, Jan 29 12:24pm

Hello,
As I mentioned previously, my doctor couldn't do the biopsy in his office and is referring me to a gynecologist. The wait time where I live is 6 months but he is hoping to get me in quicker. It's only been a little over a week but wow, this is just hanging over me - not knowing if I have cancer or not. I made a telephone appt. with my doctor next Monday - that will be 2 weeks - to get my pap smear results and to ask him about the gynecologist, or if there is any other way I can get a biopsy. Thanks for listening. It felt good to just get this off my chest.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@polkagal

@digbb I agree with you 100%! The need to be real about our cancer with those we love most can be very strong. But we can be left feeling very alone when at the same time we see how terrified they are themselves and our instinct is to reassure them. Definitely irony! And definitely exhausting. Here, we can be honest and supportive in a way that we need to be and in a way we understand. @suesam, sending good thoughts your way, keep us posted!

Jump to this post

I do find it wonderful to have this forum where we can be honest. I agree with Polkagal and Digbb - that it's tiring almost hiding our fears so others can feel better. And thanks for your good thoughts sent my way. I finally see the gynecologist today and I'm glad but also so unsettled not knowing if I'm having a biopsy or just a 'meet and greet'. The unknown is always hard. They're also predicting more snow which makes driving tough but a friend offered to take me if I was nervous driving in the snow. I'll let you know what happened. Thanks.

REPLY

Well... the biopsy was finally completed. Yayyyyyyyyyy.... and I have an appt. in 8 weeks to get the results. LOL - 8 weeks!!!!!!!!!!!! I couldn't believe it would take that long. I asked if it would show up on My Chart and he didn't think so. It was such a different experience talking to a specialist - the gynecologist - rather than my family doctor. I love my family doctor and I am grateful at how thorough he is, but I see now he only looked at the thickness element - 6mm - saying it should be 4 or less. He had also said that they view it as cancer until proven otherwise, so he wanted a biopsy done. He's had extra training in women's issues but couldn't complete the biopsy due to my lady parts not co-operating. In fact, he scared me - not on purpose - but I actually felt I had cancer from what he said. The gynecologist took a complete history - family history etc - and looked at all my tests. Nothing had shown up on my ultrasound or CT scan - except the 6mm thickness, and he said 5 and under is normal, so I'm not far off. Plus I have no bleeding. He declared me 'low risk' for cancer and said I could leave it and have an ultrasound in 6 months, or have the biopsy to reassure me. I told him I had waited 3 months and was totally stressed out, even stress eating, so I would prefer the biopsy. He said, "Great! You're my 6th biopsy that day!" Wow. If my cervix had co-operated, I could see how fast it is. But darn, he struggled to open my cervix. That was the issue. It took him and the nurse a long time to get it open - using various tools etc - and he even thanked me at the end for being so patient. Darn, uncooperative lady parts!!! Now, I never swear, but at one point when he finally 'got it in', I said one swear word. The doctor laughed and said, "See? I finally got you to swear." LOL. No wonder my family doctor couldn't do it - the gynecologist almost couldn't. As soon as he 'got in', it was over in 2 seconds and I apologized for swearing. He said out of the 6 he did that day, I was the quietest. LOL. But I am truly grateful for my doctor for being thorough, grateful for a gynecologist who moved quickly and managed to get it done, and I'm grateful for this forum for all the support. I feel like my life stood still for 3 months and I can breathe again. I understand that it can still be cancer but I am grateful to finally be getting some answers. Thanks for listening. Today, I am resting.

REPLY
@suesam

Well... the biopsy was finally completed. Yayyyyyyyyyy.... and I have an appt. in 8 weeks to get the results. LOL - 8 weeks!!!!!!!!!!!! I couldn't believe it would take that long. I asked if it would show up on My Chart and he didn't think so. It was such a different experience talking to a specialist - the gynecologist - rather than my family doctor. I love my family doctor and I am grateful at how thorough he is, but I see now he only looked at the thickness element - 6mm - saying it should be 4 or less. He had also said that they view it as cancer until proven otherwise, so he wanted a biopsy done. He's had extra training in women's issues but couldn't complete the biopsy due to my lady parts not co-operating. In fact, he scared me - not on purpose - but I actually felt I had cancer from what he said. The gynecologist took a complete history - family history etc - and looked at all my tests. Nothing had shown up on my ultrasound or CT scan - except the 6mm thickness, and he said 5 and under is normal, so I'm not far off. Plus I have no bleeding. He declared me 'low risk' for cancer and said I could leave it and have an ultrasound in 6 months, or have the biopsy to reassure me. I told him I had waited 3 months and was totally stressed out, even stress eating, so I would prefer the biopsy. He said, "Great! You're my 6th biopsy that day!" Wow. If my cervix had co-operated, I could see how fast it is. But darn, he struggled to open my cervix. That was the issue. It took him and the nurse a long time to get it open - using various tools etc - and he even thanked me at the end for being so patient. Darn, uncooperative lady parts!!! Now, I never swear, but at one point when he finally 'got it in', I said one swear word. The doctor laughed and said, "See? I finally got you to swear." LOL. No wonder my family doctor couldn't do it - the gynecologist almost couldn't. As soon as he 'got in', it was over in 2 seconds and I apologized for swearing. He said out of the 6 he did that day, I was the quietest. LOL. But I am truly grateful for my doctor for being thorough, grateful for a gynecologist who moved quickly and managed to get it done, and I'm grateful for this forum for all the support. I feel like my life stood still for 3 months and I can breathe again. I understand that it can still be cancer but I am grateful to finally be getting some answers. Thanks for listening. Today, I am resting.

Jump to this post

@suesam What an experience you had yesterday. Thank you for sharing. While it may not change your worry very much there is now the information that with no symptoms and 6mm thickness of the endometrial lining you are in the low risk category. Still 8 weeks is a long time to wait for results and your next appointment. I am thinking that the results will be sent to the gynecologist well before the 8 weeks mark and wonder if there is a way you can access those results before that time? I'm thinking that you will be checking My Chart frequently. It sounds like you had a very good rapport with the gynecologist so maybe you could write a note on My Chart or call in a week or two and ask if the results are in?

Yes, today is a well-deserved rest day for you. Well done. Will you read or watch something on TV? Take a relaxing bath with bath salts?

REPLY
@naturegirl5

@suesam What an experience you had yesterday. Thank you for sharing. While it may not change your worry very much there is now the information that with no symptoms and 6mm thickness of the endometrial lining you are in the low risk category. Still 8 weeks is a long time to wait for results and your next appointment. I am thinking that the results will be sent to the gynecologist well before the 8 weeks mark and wonder if there is a way you can access those results before that time? I'm thinking that you will be checking My Chart frequently. It sounds like you had a very good rapport with the gynecologist so maybe you could write a note on My Chart or call in a week or two and ask if the results are in?

Yes, today is a well-deserved rest day for you. Well done. Will you read or watch something on TV? Take a relaxing bath with bath salts?

Jump to this post

Thanks, Helen. I'm curling up with my furry best friend - my dog, Asher - and watching movies all day. Total bliss. 8 weeks is a long time for results. I emailed my family doctor to let him know the biopsy was done, in case he gets the results too. And I'll be checking My Chart a lot - but I just read the rules and it said that they don't report pathology results. I really liked the gynecologist. He was young and impish looking, a good listener, and funny. And I do love humor. They had a 'Where's Waldo' poster on the ceiling - lol - to offer some distraction. I'm just so glad it's over. I hope that you're having a great day!!! You definitely deserve it.

REPLY
@suesam

Well... the biopsy was finally completed. Yayyyyyyyyyy.... and I have an appt. in 8 weeks to get the results. LOL - 8 weeks!!!!!!!!!!!! I couldn't believe it would take that long. I asked if it would show up on My Chart and he didn't think so. It was such a different experience talking to a specialist - the gynecologist - rather than my family doctor. I love my family doctor and I am grateful at how thorough he is, but I see now he only looked at the thickness element - 6mm - saying it should be 4 or less. He had also said that they view it as cancer until proven otherwise, so he wanted a biopsy done. He's had extra training in women's issues but couldn't complete the biopsy due to my lady parts not co-operating. In fact, he scared me - not on purpose - but I actually felt I had cancer from what he said. The gynecologist took a complete history - family history etc - and looked at all my tests. Nothing had shown up on my ultrasound or CT scan - except the 6mm thickness, and he said 5 and under is normal, so I'm not far off. Plus I have no bleeding. He declared me 'low risk' for cancer and said I could leave it and have an ultrasound in 6 months, or have the biopsy to reassure me. I told him I had waited 3 months and was totally stressed out, even stress eating, so I would prefer the biopsy. He said, "Great! You're my 6th biopsy that day!" Wow. If my cervix had co-operated, I could see how fast it is. But darn, he struggled to open my cervix. That was the issue. It took him and the nurse a long time to get it open - using various tools etc - and he even thanked me at the end for being so patient. Darn, uncooperative lady parts!!! Now, I never swear, but at one point when he finally 'got it in', I said one swear word. The doctor laughed and said, "See? I finally got you to swear." LOL. No wonder my family doctor couldn't do it - the gynecologist almost couldn't. As soon as he 'got in', it was over in 2 seconds and I apologized for swearing. He said out of the 6 he did that day, I was the quietest. LOL. But I am truly grateful for my doctor for being thorough, grateful for a gynecologist who moved quickly and managed to get it done, and I'm grateful for this forum for all the support. I feel like my life stood still for 3 months and I can breathe again. I understand that it can still be cancer but I am grateful to finally be getting some answers. Thanks for listening. Today, I am resting.

Jump to this post

I am so happy for you that you are feeling more relieved! The waiting is SO hard. Moving forward with the steps is so much easier. Enjoy your day of rest, and hopefully you have some sunshine that you can enjoy as well!

REPLY
@suesam

Thanks, Helen. I'm curling up with my furry best friend - my dog, Asher - and watching movies all day. Total bliss. 8 weeks is a long time for results. I emailed my family doctor to let him know the biopsy was done, in case he gets the results too. And I'll be checking My Chart a lot - but I just read the rules and it said that they don't report pathology results. I really liked the gynecologist. He was young and impish looking, a good listener, and funny. And I do love humor. They had a 'Where's Waldo' poster on the ceiling - lol - to offer some distraction. I'm just so glad it's over. I hope that you're having a great day!!! You definitely deserve it.

Jump to this post

@suesam That's my idea of a perfect day! It's great that in addition to being good at biopsy procedures that your gynecologist listened to you and had a good sense of humor. Humor can get me through most anything. Good idea letting your family doctor know about the biopsy in case he gets the results (which he should since he made the referral). I did have a good day yesterday with sleeping in and cuddling down with a good book. Thank you for your good wishes - you definitely deserved that restful day with Asher.

REPLY
@naturegirl5

@suesam That's my idea of a perfect day! It's great that in addition to being good at biopsy procedures that your gynecologist listened to you and had a good sense of humor. Humor can get me through most anything. Good idea letting your family doctor know about the biopsy in case he gets the results (which he should since he made the referral). I did have a good day yesterday with sleeping in and cuddling down with a good book. Thank you for your good wishes - you definitely deserved that restful day with Asher.

Jump to this post

Hi Helen,
I'm so glad you had a good day. Cuddling down with a good book is another of my most favorite things to do. A good way to block out the often crazy world. I find that living with the fact that I could have cancer for 3 months, has really changed me. It really does put life in perspective, especially realizing that a lot of things I worry about, just are not that important. It makes me thing a lot about what is important to me, who is important to me, and how do I want to live my life right now. It's put a pause on my life, created a time for reflection, and the daily things that sometimes bothered me, the toxic people I allow to upset me - are just not important anymore. This has changed me, for sure. In a good way.

REPLY
@dlgbb

I am so happy for you that you are feeling more relieved! The waiting is SO hard. Moving forward with the steps is so much easier. Enjoy your day of rest, and hopefully you have some sunshine that you can enjoy as well!

Jump to this post

Hi there Digbb - You're right - the waiting is so hard and taking a step forward has helped me a lot. It's moved me to the next step - waiting for results - but at least the biopsy is out of the way. That hung over me for months. Whew. Thanks for your concern and I wish you all the best.

REPLY
@suesam

Hi Helen,
I'm so glad you had a good day. Cuddling down with a good book is another of my most favorite things to do. A good way to block out the often crazy world. I find that living with the fact that I could have cancer for 3 months, has really changed me. It really does put life in perspective, especially realizing that a lot of things I worry about, just are not that important. It makes me thing a lot about what is important to me, who is important to me, and how do I want to live my life right now. It's put a pause on my life, created a time for reflection, and the daily things that sometimes bothered me, the toxic people I allow to upset me - are just not important anymore. This has changed me, for sure. In a good way.

Jump to this post

@suesam I so agree with you. For me, the initial cancer diagnosis and surgery helped me to reassess my life, who I want to spend my time with and what I want to do.

Have you any thoughts yet about what you'd like to do differently in your life going forward?

REPLY
Please sign in or register to post a reply.