Getting infected from others when you have HCL

Posted by frank73 @frank73, 3 days ago

I have HCL, and found out about it about 4 months ago April 2025. Since then I have stayed away from big groups and not been around kids much as I worry about getting infected. Is that an over kill or ok? Have others gotten sick from being around people or groups? I was told that if I spiked a fever over 100 to get to the ER as I could not fight it. Some help and advice would be helpful. Thank you.

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shmerdloff | @shmerdloff | 3 days ago

I have HCL since 1981. It goes into remission with tx, and then resurfaces. I do not take any precautions other than trying not to contract from actively sick people. I have had colds and the flu (even with shots)🤷‍♂️. They were the usual uri/stomach bug. No big immune problems. My system recently knocked out a severe e. coli toxin in three days!?!
The old way
for hcl was to remove the spleen, so I must be careful of pneumonia . I masked and isolated during Covid (not obsessive) and never got it🫡. Everyone keeps reminding me YOU'RE IMMUNE COMPROMISED, but I live my life fully but with standard care. Hope you can too.

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