Geographic Atrophy (GA): Anyone else?
I have just been diagnosed with GA, Can anyone share their experiences with this disease?
Interested in more discussions like this? Go to the Eye Conditions Support Group.
I have just been diagnosed with GA, Can anyone share their experiences with this disease?
Interested in more discussions like this? Go to the Eye Conditions Support Group.
I was diagnosed with GA about a year ago. It’s the same eye that has wet macular degeneration and I get anti~VEGF injections every six weeks. There’s a new medication, Syfovre, that can slow the progression of GA, but as I am already getting injections in that eye and the GA appears to be stable (not growing) so far, I am waiting before trying anything new. I take my Areds2 supplements, eat more dark green leafy vegetables and I’m trying to avoid processed meats like bacon. I would have to double my injections to take Syfovre as it can’t be taken at the same time as anti~VEGF. Work is being done to develop a combination shot. So I’m waiting to see what happens with that. Right now my vision in that eye has a twisted area, kind of like water spinning around a drain just to the right of the center. But the amazing thing is that when I look with both my eyes, my brain takes the “better” input from my good eye and I don’t see the defect. How my brain knows which eye is getting the good info I have no idea - but I’m glad it does!
Thank you cmbg so very much. I found your writing very comforting. ejs
Has anyone been treated for this condition? I understand that a new injectable medication has been recently been approved which forestalls the worsening of this condition, not curing it however.
An injection every two months would be the course of treatment.
Hi @decabea, I moved your questions about geographic atrophy to this existing discussion:
- Geographic Atrophy (GA): Anyone else? https://connect.mayoclinic.org/discussion/geographic-atrophy-ga/
I did this so you can easily connect with fellow members @sandwich and @cmbg, who can share their experiences with GA.
Decabea, have you started treatment?
I would be interested in hearing from anyone who has tried the treatment. I think it’s a good sign that they are trying to address the immune side of AMD. I understand that several companies are working on this. It will be interesting to see what comes of it.
Thankful for this forum. I have AMD and take Areds 2xs a day and 4 mg of Astaxanthin daily.
I’ve not heard this and not sure it’s applicable to my AMD.
Haven’t heard of Geographic atrophy before today. So thank you.
I am going to bring this up to my amazing retina doctor in April when I see him.
To KTF, While I have had wet md in both eyes ( now both stabile for over a year), it seems only one eye qualifies for this newly approved treatment. Your specialist will advise if this for you.