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Gastrectomy and issues afterward
Looking for some advice and tips
I am 6 months out of TG which has seemingly gone very well on the recovery angle. Recently since a change in my medication (for fibromyalgia) I have started suffering from insomnia. I believe after doing some research that I have an increased bile production and bile reflux which is causing some problems. The main one is where I start to eat, can’t eat, literally and figuratively and then my intestines start to act as though something is fermenting in there, bubbling, gurgling getting bloated, this in turn leads to an increase of ‘smelly wind’. It is very similar to dumping syndrome but without the having to run to the toilet. Doctor is working on the problem but not fast enough Lol. Anyone got recommendations for remedies? Natural remedies like teas etc, any advice would be welcome.
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Anyone familiar with a Gastrectomy (total stomach removal. I have questions…
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1 ReactionGo to facebook. CDH1 gene mutation group and other cdh1
Groups. Do you have a mutation or just other issues?
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2 ReactionsWelcome, @cyberkitty. You will find other members talking about their experiences with gastrectomy in this related discussion:
- Total Gastrectomy for stomach cancer: What can I expect?: https://connect.mayoclinic.org/discussion/total-gastrectomy/
Are you preparing for this operation soon? What condition led to your needing a gastrectomy?
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2 ReactionsThank you so much. I have already had my stomach removed & I am struggling. I feel I am on too many heavy duty pain meds on top of the meds that allow me eat.
I am desperately trying to avoid a feeding tube. My previous experience was horrible. I am up to 85lbs before my surgical team wants me at 120 lbs.
I am so grateful for your link! It is a pretty rare surgery & I’ve never met anyone who has had one! What a wealth on information.
Of, about 5 yrs ago I stated to develop ulcers in my stomach. The Dr.s decided it was due to my high stress job. Then the ulcers began to bleed. They were cauterised and I received dozens of blood transfusions.
On one such occasion, an ER doc stated I was in organ failure. Second Dr agreed & in 15 mins I was getting prepped for surgery.
I wish I had more time to research the procedure. I didn’t know one could live without a stomach.
Most people have this procedure due to cancer.
Thank-you so much,
Cyberkitty
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2 ReactionsBest of luck. I just want to die!!
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2 ReactionsWere you ever checked for H Pylori? Were you put on a PPI?
Sorry to hear about your condition.
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1 ReactionMy friends brother had that surgery where his stomach was removed .
First he had a gastric sleeve for years than he got worse and they removed his stomach . I think 💭 like you he went through a lot afterwards. He’s 59 now and doing better.
I have a whole lot of chronic gastrointestinal issues myself . 10 years and counting . Hope things ease up soon .
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3 ReactionsWould appreciate any articles or persons with any post gastrectomy tips.
Desperately seeking nutritional meals/meal plans. Tips for gastrectomy eating by patients like me would be more than welcome.
I’m desperately trying to outrun a feeling tube in Feb.
Apologies for the typos - wrote this at the dr’s office without my glasses.
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2 ReactionsNegative for H Pylori, but am on a PPI. I believe they said I will be on that medication for life.
Thank-you for replying.
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1 ReactionSo do I on bad days. Power through and you will amaze yourself what you can live through. Message me anytime. I would like to chat with you. I have some really bad days too.
Current weight 81 lbs. Pre surgery 140 lbs. Funny thing is that I tried every fad diet for years. They say ‘Be careful what you wish for”.
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