Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma

Posted by jmb73 @jmb73, Jan 5, 2019

I will be having Gamma Knife Radio Surgery for a meningioma that is growing. Have any of you had this procedure and does it work? I am having only minors symptoms- headache, motion sickness, dropping things, memory issues vertical double vision at night. I don't know if these are related and will go away. I have Sjogrens and my -surgeon thinks it is causing the tumor. If you have one meningioma, can you get more?

Interested in more discussions like this? Go to the Brain Tumor Support Group.

@mrsjrocellis1

I have a meningioma in my left frontal lobe. I'm terrified to have the surgery to have it removed. I'm so scared I'm going to die during surgery. Please tell me what I can expect, share your stories with me. How did you calm your nerves?

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Hello @mrsjrocellis1 and welcome to Mayo Clinic Connect. Thinking about surgery can make a lot of people anxious, so I am glad you are here seeking support as you go through this. There are so many people that have shared their experiences and I hope connecting with them will help to put your mind at ease.

You will notice that I have moved your post into an existing discussion on surgery, which you can find here:
- Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma: https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/

I'd like to see if members @1myhope @skip70 and @vermont10 could come back to join you and also noticed that @markay44 has replied to you with a positive surgical experience so will let you connect back with them.

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I did have Gamma knife for my menginoma to try to slow or stop the growth of the tumor. I didn't have any symptoms a that time other than vertigo due to Menierer's disease. Unfortunately the procedure didn't work for me and the tumor started to grow rapidly causing strokes and seizures resulting on emergency brain surgery.

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@purpleturtle

I did have Gamma knife for my menginoma to try to slow or stop the growth of the tumor. I didn't have any symptoms a that time other than vertigo due to Menierer's disease. Unfortunately the procedure didn't work for me and the tumor started to grow rapidly causing strokes and seizures resulting on emergency brain surgery.

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I’m sorry your grew even from the treatment resulting in strikes and seizures. Thank you for letting us know you needed surgery. I was also pondering doing radiation instead of surgery. But this has helped me make a decision. Thank you for posting.

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Hi Jill, It's now 2023 and so far my meningioma hasn't grown. I have fallen 3 times and have had CT's that show the meningioma . I read in some other discussions that double vision is common after the surgery but I had double vision before the surgery. That is why they did the gamma surgery. Unfortunately the gamma surgery didn't cure the double vision and my 3 concussions have caused vertical and horizontal double vision. I think that Gamma surgery is amazing and I would do it again.

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