Anyone diagnosed with Gallbladder cancer?

Posted by pgf @pgf, Jun 29, 2021

Any one here had this diagnosis?

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@viopp

Yes, I was diagnosed in March. It was quite a shock! It is a rare and aggressive cancer. It can be lonely, because there are so few of us.

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My Onc said I have either GB or Bile Duct primary, but they aren’t sure. Bile duct was not able to be biopsied but GB Adenocarcinoma Stage 4 spread to Peri, LN, Stomach
Can you pls tell me symptoms and experience? Pray you are well

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Still here. All is good with my wife. Just waiting for next check up

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Very few of us out there. Gallbladder cancer isn't as popular a topic as other cancers

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Yes, I was diagnosed in March. It was quite a shock! It is a rare and aggressive cancer. It can be lonely, because there are so few of us.

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@colleenyoung

Hi @pgf, welcome to Mayo Clinic Connect. Have you been recently diagnosed with gallbladder cancer?

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I was diagnosed last week

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@waflanders

@heartofgold57 chemo on a 21-day cycle for 6-7 month is not unusual, I’m currently on gem/cis on a 21-day cycle for 6 cycles with reevaluation after 3 cycles which we just completed. Everyone is different but, in my case, only side effects, fatigue (afternoon nap when needed), constipation (manageable), and numbness in fingertips. Chemo is only on days 1 and 8, that is only 2 days out of 21 with most of the rest mainly normal.
Based on my specific condition, gallbladder adenocarcinoma pT3 pNx G3, liver resection (clean margins), CA 19-9 230 and derived from Yifan, A Predictive Model for Survival of Gallbladders Adenocarcinoma with reoccurrence after 10 months my 5 year survival would be estimated at 29%. Now I have survived for 1 year and that increase my expected 5-year survival to 38%. When I reach2 years survival next year that will increase to 56% and 72% when I reach the 3-year mark. Each day/week/month/year increases your chance of survival.
Given that I have had a reoccurrence limited to the liver total remission is not expected. However, it was discovered early, based on frequent CA 19-9 monitoring, and we expect it can be controlled with a maintenance and monitoring program after we have finished chemo.
CA 19-9 in my case was elevated and is following the progression of the cancer allowing for early detection and monitoring of treatments.

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Just diagnosed, waiting for CT scans, etc

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@colleenyoung

Hi @pgf, welcome to Mayo Clinic Connect. Have you been recently diagnosed with gallbladder cancer?

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Yes, got the news after gallbladder removal

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I was just diagnosed. CT scans on Friday to see if there are mets

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I was surprise diagnosed on March 2nd after removal of gallbladder. I had 8 stones and a 2 cm. lesion. I am a little scared. I'll have ct scans on March 10th. The lesion didn't quite break through the gallbladder.

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@heartofgold57 chemo on a 21-day cycle for 6-7 month is not unusual, I’m currently on gem/cis on a 21-day cycle for 6 cycles with reevaluation after 3 cycles which we just completed. Everyone is different but, in my case, only side effects, fatigue (afternoon nap when needed), constipation (manageable), and numbness in fingertips. Chemo is only on days 1 and 8, that is only 2 days out of 21 with most of the rest mainly normal.
Based on my specific condition, gallbladder adenocarcinoma pT3 pNx G3, liver resection (clean margins), CA 19-9 230 and derived from Yifan, A Predictive Model for Survival of Gallbladders Adenocarcinoma with reoccurrence after 10 months my 5 year survival would be estimated at 29%. Now I have survived for 1 year and that increase my expected 5-year survival to 38%. When I reach2 years survival next year that will increase to 56% and 72% when I reach the 3-year mark. Each day/week/month/year increases your chance of survival.
Given that I have had a reoccurrence limited to the liver total remission is not expected. However, it was discovered early, based on frequent CA 19-9 monitoring, and we expect it can be controlled with a maintenance and monitoring program after we have finished chemo.
CA 19-9 in my case was elevated and is following the progression of the cancer allowing for early detection and monitoring of treatments.

REPLY
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