gabapentin and muscle pain

Posted by nursegigi @nursegigi, Aug 16, 2016

Has anyone every experienced muscle and facia pain from gabapentin?

@juliawillc

I have been taking gabapetin for pain in my feet. I have to take a fairly high dosage (1200). I have developed pain in my muscles. I’m beginning to think the gabapetin is causing pain in my calves and other muscles. I really need something for the neuropathy. I took Lyrica and it was great at first but stopped working after a couple of months. I feel like I can’t win for losing. I take one thing for pain and it causes pain somewhere else.

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Justin – What is myofascial pain? It would be good, I think, to describe pain/symptoms, etc.. in terms new people can relate to a little easier. The same goes for medical acronyms. Believe me I do understand the need for a bit of shorthand in dealing with medical terminology but I guess I’m not medically savvy enough to get my license just yet. When seeing my dr. I ask him/her to explain specifics of a diagnosis using terms I could more easily understand and in that regard, I could then answer his questions more accurately. I don’t think my illness has ever been “named” anything but has been treated like neuropathy so I guess that’s what it is. Maybe charting people’s explanations of symptoms, diagnosis, likely cause, prescribed medications, home and homeopathic remedies, and a column for effective, non-effective – side effects etc. and then see which category we all might best fit. Just a suggestion but honestly, there’s so much information, it’s difficult to see what applies and what doesn’t.

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@coolnacart1892

This Myofascial Pain, as my doctors call it, is interfering with my life; I can’t even make the bed anymore without the pain flaring up. I take Gabapentin FOR Fascia/muscle pain. It seems like a paradox that some of us take Gabapentin to relieve pain, and others start having pain from the drug. Is it dose related? Just that people react in different ways to the drug?
I can’t say my pain is any worse w/ Gabapentin, but it sure isn’t any better. After reading some of the side effects others experienced, I’m reluctant to take a higher dose than now – 900 MG/day. I’m considering tapering off; why should I take medication that isn’t helping? Another thing – I don’t think my doctors take this ‘condition’ seriously.
P.S. I submitted a post Oct 4 to introduce myself to the group; it explains how/when this started up to the present. It’s sort of lengthy; I was trying to report my own experience to the group, but I didn’t receive any responses.
Thanks, Susan

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My myofacial pain is in my hand, but I think this could work anywhere on the body. I roll a golf ball in my hand. There are some great you tube videos of how to do myofacial release on your own.

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@lauriedr

I have not. Gabapentin made me a zombie for two years; I barely remember
that time period. I hope you find some relief with muscle pain. Have you
tried Cymbalta? I take it for depression and pain, although I don’t think
for me it helps with pain. I know others who have had better results. Good
luck to you!

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Cymbalta put me in the emergency room. Pain so bad. How is it that we are all wired so Differently?

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@juliawillc

I have been taking gabapetin for pain in my feet. I have to take a fairly high dosage (1200). I have developed pain in my muscles. I’m beginning to think the gabapetin is causing pain in my calves and other muscles. I really need something for the neuropathy. I took Lyrica and it was great at first but stopped working after a couple of months. I feel like I can’t win for losing. I take one thing for pain and it causes pain somewhere else.

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Great observation mfobrien36. I, like you, also get lost in all of the medical terminology and acronyms. When I come across something that I am not sure of or haven’t heard a lot about I always defer to mayoclinic.org as my first resource for information. A definition of myofascial pain from the experts can be found here http://mayocl.in/2e09pIn. Like you mentioned, there is a lot of information out there, and Connect is a place where patients share their experiences and knowledge on various topics, but I do agree that it is hard to know what applies and what doesn’t with such a wide range of topics being discussed. Input and further discussion is always welcome, thank you.

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I asked my nurse practicineer about the possibility that the gabapetin was causing my muscle pain. She looked it up in her little computer and said it was about two percent so I guess something else must be going on here. Whatever it is I’m sure it’s hereditary. My mother had this and my grandmother. I remember the ridicule my grandmother had to endure because they couldn’t find the cause of her pain. I won’t go on and on, but it was bad. Things haven’t really changed that much.

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@juliawillc

I have been taking gabapetin for pain in my feet. I have to take a fairly high dosage (1200). I have developed pain in my muscles. I’m beginning to think the gabapetin is causing pain in my calves and other muscles. I really need something for the neuropathy. I took Lyrica and it was great at first but stopped working after a couple of months. I feel like I can’t win for losing. I take one thing for pain and it causes pain somewhere else.

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@mfobrien36 and @JustinMcClanahan – THANK YOU FOR THE QUESTION -‘WHAT IS MYOFASCIAL PAIN?’ AND FOR THE RECOMMENDATION TO READ THE MAYO CLINIC ARTICLE ON MYOFASCIAL PAIN SYNDROME http://mayocl.in/2e09pIn . I’ve printed it out & will take to the PT next visit. There are some recommendations that we haven’t explored in Physical Therapy.

Below is MY OWN – not anyone else’s – description of MY Myofascial Pain-what I experience & what the diagnosing physician described to me. Because we’re all unique, others experience this in a uniquely different manner.

{The pain originates in the Latissimus Dorsi muscle (the large muscles in your back), & radiates through my back, on the R side, extending around to my ribs. In fact, my initial complaint was Rib Pain. I’d never heard of Myofascial Pain until this year. Nothing showed up on an MRI. The Neurologist who diagnosed me said the muscle is ‘tight’ & ‘bound up’ by the Fascia, affecting the nerves & causing the pain.}

I’m starting to see some of the factors that make this Syndrome so frustrating; it’s not something each patient experiences the same way; it affects different parts of the body; there isn’t any one specific treatment for Myofascial Pain Syndrome. I guess that’s why it’s called a Syndrome. Not all doctors are well-versed re this condition, so you might have to visit more than one physician before obtaining a correct diagnosis. I’ve mentioned before that mine was initially MISDIAGNOSED as Shingles Neuralgia by a Board-Certified Rheumatologist. She handed me off to a Neurologist who figured it out.

Here’s something else I haven’t seen in this discussion re Myofascial Pain. The reason I was referred to a Rheumatologist was abnormal results in the RHEUMATOID FACTOR TEST in my blood workup.

Has anyone else had this show up in their blood work? I’m trying to come up w/ something those of us who have this condition might have in common.

Any thoughts? Susan
username @sistergoldenhair

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After reading this, I may need to speak to my care team and see if I have myofascial pain in my upper back and not only fibromyalgia. Thanks!

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Hi my name is Janie56. I am a new member. I also have Myo. I have had it for about five years. I have went through saline injections with no relief. I’m on endocette and oxycodone daily. Still having pain. Been to chiropractor and have had acupuncture. Right now I am doing self hypnosis. Believe it or not,it is relaxing the nerves and muscles and I am having some relief. I also take cymbalta for the last five years. I have never tried gabapentin.

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@janie56

Hi my name is Janie56. I am a new member. I also have Myo. I have had it for about five years. I have went through saline injections with no relief. I’m on endocette and oxycodone daily. Still having pain. Been to chiropractor and have had acupuncture. Right now I am doing self hypnosis. Believe it or not,it is relaxing the nerves and muscles and I am having some relief. I also take cymbalta for the last five years. I have never tried gabapentin.

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Hello my name is Flor I have used gapapentin for my restless legs an i did not work. After a week of using it All my body was restless. What I do now I am using a gel on my feet called Facicam it is fot muscle pain and that helps plus. trasodone for a good nght sleep. Hope it helps . Take care Flor

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@janie56

Hi my name is Janie56. I am a new member. I also have Myo. I have had it for about five years. I have went through saline injections with no relief. I’m on endocette and oxycodone daily. Still having pain. Been to chiropractor and have had acupuncture. Right now I am doing self hypnosis. Believe it or not,it is relaxing the nerves and muscles and I am having some relief. I also take cymbalta for the last five years. I have never tried gabapentin.

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i see nothing to indicate that you have seen even one neurologist or had tests done. If you read the Mayo Clinic or Webmd you will find that gabapentin is NOT for RL syndrome.

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I just checked the Mayo Clinic: Gabapentin is someimes prescribed. Lyrica is also as well as Klonopin and others.

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I found gabapentin made me too much of a zombie. I lost nearly 2 years of memory while on gabapentin, also called neurontin. One day I held my daughter’s hand, in kindergarten, and I was completely shocked that she now had a big girl hand. The last time I remember holding her hand, she was 3 and it was a tiny hand that held on to mine. Had I not held her hand for 2 whole years? Or did I simply not remember? I will sadly never know. Lyrica and Topamax are newer meds and may not cause as many side effects. I also tried amitriptiline, which is an older antidepressant, but it does work on some people and it encourages sleep. I would not recommend depakote. I gained 20 lbs in 2 months and developed high blood pressure that is not well-controlled by meds. Topamax would be my first choice. It did cause memory issues. (To this day, 3 years after ending it) I have trouble finding my words and I also have trouble recognizing faces and names, even of close friends. It usually leads to weight loss. Users call it Dope-a-Max. I have no experience with Lyrica. Best wishes to you.

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I’ve had saline trigger point injections. You are lucky if you get put under for that. Here in Ont. Canada most Doctors that I know do them while your awake. Not a pleasant experience. For me, not worth the pain of it.

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I go to a pain clinic, not a neuro, for all of my injections. I am awake, but very sedated with versed and fentanyl. I feel no pain. Yes, I am fortunate. I had to wait over a year before being accepted to this clinic. What good are saline injections? My injections are either botox, anesthetic , or anesthetic plus steroids. To me, saline is like a plavebo6placebo. Another benefit to pain clinic is that my meds are prepared at a real, regulated pharmacy, and not an unregulated compounding pharmacy. That was a big issue a couple of years ago in the States. Ask for sedation and see how it goes. Good luck!

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Thank you Lauriedr. I found that treatment so painful with no good results. They injected nine shots in one leg. And nothing. The Dr. told me that it would relax the knotted muscle.

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