Anyone had a full body scan when they have prostate cancer?

Posted by gkgdawg @gkgdawg, 3 days ago

Has anyone ever had a full body scan when they have prostate cancer? Would it be beneficial?

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Profile picture for jim18 @jim18

@gkgdawg Your husband is in the wait phase of prostate cancer. The physical decline does not indicate any cancer progression since the abiraterone and prednisone are causing it. If the PSA significantly increases while on ADT that show a serious treatment failure. Since ADT makes any surviving cancer dormant you will only know how effective the treatment was after ADT ends.

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@jim18 I am really hoping they consider a vacation from the ADT after 1.5 years and then monitor his PSA and hopefully easy up on the effects of the abiraterone, prednisone and Orgovyx

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I haven't bothered reading everyone's replies, so perhaps someone has mentioned this already (sorry if so), but...a standard PET Scan is "nearly" a full body scan. The scan starts at your neck and goes all the way down to your knees. That covers the likely locations for any metastases of an aggressive or late-diagnosis situation for prostate cancer. As you likely know, you are very slowly, incrementally moved in very subtle/small distances starting from your neck, and moving toward your knees in the "open" scanner (no claustrophobia). In addition of the one hour wait for the Gallium-68 to be fully absorbed into your prostate after injection, the scan itself took roughly 35 minutes.

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Profile picture for heavyphil @heavyphil

I did have a full body MRI at Sloan after my BCR in addition to a pelvic MRI.
Let me just say that I will NEVER, EVER have another one unless I am completely anesthetized (out!)!!
The techs told me nothing about what to expect - intentionally now that I think about it. I was never claustrophobic before this event, but now I totally AM!
You are weighed down with about 60 lbs of sandbags to immobilize you and a polycarbonate catcher’s mask is screwed into place over your face, crushing your nose to prohibit movement.
You are then slid into a coffin-like tube (being generous with the dimensions) and spend the next 45 minutes in total hell; banging, clanging, whirring and screeching noises assault you as you struggle to breathe and not choke to death on the post nasal drip threatening to reach your larynx.
I’m telling you man, nothing you have growing inside you can be worse than this f***ing machine!
Phil

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@heavyphil
Wow! I'm so sorry this happened to you, Phil! Was this some time ago?
I had, I guess, a pelvic MRI when they were first investigating my prostate about a year ago, and it was nothing like that.
I wasn't restrained or weighed down in any way, just told to lie still. The tech carefully rolled up a couple of those yellow foam earplugs and inserted them for me, which I thought was very considerate.
The noise, although attenuated by the earplugs, was indeed pretty wild! I would describe it as being in a sort of demented sound bath, one that involved both mechanical and electronic sounds. It wasn't frightening so much as just plain weird.
I'm not prone to claustrophobia, so perhaps that was a factor in being able to relax enough that there wasn't anything traumatic to the experience.
Maybe "full body" is more of ordeal, though, and your experience sounds awful!

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Profile picture for sanDGuy @sandguy

@heavyphil
Wow! I'm so sorry this happened to you, Phil! Was this some time ago?
I had, I guess, a pelvic MRI when they were first investigating my prostate about a year ago, and it was nothing like that.
I wasn't restrained or weighed down in any way, just told to lie still. The tech carefully rolled up a couple of those yellow foam earplugs and inserted them for me, which I thought was very considerate.
The noise, although attenuated by the earplugs, was indeed pretty wild! I would describe it as being in a sort of demented sound bath, one that involved both mechanical and electronic sounds. It wasn't frightening so much as just plain weird.
I'm not prone to claustrophobia, so perhaps that was a factor in being able to relax enough that there wasn't anything traumatic to the experience.
Maybe "full body" is more of ordeal, though, and your experience sounds awful!

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@sandguy Pelvic MRI is s piece of cake! Your upper chest, head and neck are not slid into the tube - they’re exposed.
The full body has literally your entire body inside the tube; but here’s the thing: you are slid into the tube IN REVERSE so your head is probably 7 feet deep inside and your feet are closest to the ‘open’ end.
That is what really made me feel that I was buried alive.
Phil

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I have BCR PCA and BRCA2 so I do an annual full-body MRI to check the health of organs and the entire body. Our first baseline image required extensive review of a spot on my liver, but we chalked it up to excessive drinking decades ago. Now, we just do the full-body MRI each year to make sure my vital organs look the same. If and when the PSA rises, I'll do the PSMA PET, but a full-body MRI is like $5K and has a wide range of benefits whereas the PSMA PET is like $20K with a very specific purpose. Long story, short, I max out my deductions each year, and that is perfectly fine, the price to stay alive!

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