Anyone had a full body scan when they have prostate cancer?

Posted by gkgdawg @gkgdawg, 19 hours ago

Has anyone ever had a full body scan when they have prostate cancer? Would it be beneficial?

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Profile picture for mjp0512 @mjp0512

Standard of care after confirmation of PCa via biopsy is a PSMA PET scan. This scan is from neck to mid-thigh so while not full body it's close. I would much rather a PSMA specific scan for known prostate cancer than a generalized MRI. Unless something else is suspected that is more visible with MRI.

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@mjp0512 My PSMA started at my head.

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Profile picture for topf @topf

@mjp0512 My PSMA started at my head.

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@topf
For my husband too . I thought it always includes head too but it seems that in some places it is different *huh

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Profile picture for topf @topf

@mjp0512 My PSMA started at my head.

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@topf - My scans actually started just above the lower jaw and ran to just above the knee. I was diagnosed with adenocarcinoma via biopsy prior to the scan. If it was small cell carcinoma or neuroendocrine carcinoma, scan would have included the brain and been coupled with MRI (I asked). Adenocarcinoma very, very rarely metastasizes to the brain and then usually only after it is identified in other organs like lungs and liver first. (Or so I was told)

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Profile picture for gkgdawg @gkgdawg

My husband had a PSMA, which we paid for, and then had 5 weeks of radiation last year. He is on abiraterone, prednisone and orgovyx. But it feels as though we live in limbo, now. Did the radiation work? The orgovyx and the abiraterone are deteriorating his muscle and bones. I see him getting smaller. He golfs 2 to 3 times per week but is having hip pain and seems to be walking with a limp all the time, now. I wish I had x ray eyes so I could see inside him to know what was eradicated and what is happening in there. That is why, when my sister mentioned it, yesterday, I wondered if there is any benefit to the body scan.

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@gkgdawg, MRI of the hip. Call any of his doctors and get the order by phone. Abiraterone can cause joint inflammation and bone loss, but helps prevent metastasis to the bone. Orgovyx can cause both muscle and bone loss.
If he hasn't had a dexa for bone health, he should have one. Again you should be able to get the requisition by a phone call.
Are you having follow-up PSA labs?
Was his cancer intense enough to required continued ADT?
The radiation beams can often pass through the hip bones and/or adjacent to them. Radiation itself can be destructive to bone.
You might not want to wait. If you call tomorrow morning, have them send you a copy of the requisitions. That way you can call around to find the earliest appointments.

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PSMA PET/CT scans are standard of care at major cancer centers if MRI & biopsy show cancer. My PSMA PET/CT scan was from "Scull base to mid thigh"

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I had a PSMA PET/CT. This is an advanced imaging test that injects a radioactive tracer to target the prostate-specific membrane antigen protein, allowing doctors to detect prostate cancer growth or spread with significantly higher accuracy than traditional CT or bone scans. My test was done because my biopsy showed cribriform cells, which are often associated with metastasis. I encourage you to discuss this with your provider. Mayo Clinic has an article on their website called "PSMA PET scan for prostate cancer" which has some very good information about the test.

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