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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?
I was diagnosed with FS-DFSP. I've already had my MOHS surgery, and today I meet with my Oncologist to get the results of my CT scan. Is there anyone else who is currently fighting this rare cancer? Also, did you buy a lottery ticket? 😀
Laugh or cry, why not do both!
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Had 3 surgeries over 5 years and only got the final fs-dfsp diagnosis after the third. I was referred to the major cancer service in Melbourne, had a wide excision removal. Got clear margins with a smallish deep margin. Follow up every 3 months incl regular scans. Follow up out to 6 monthly after 2 years then to annual. At 5 years I elected to go to a local professor to continue annual review. I am now approaching 10 yrs with no sign of recurrence. No Glivec or radiation.
Wish you well.
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5 ReactionsI'm tagging @raeangel319 and @biceto as I believe that they have experience with FS-DFSP (fibrosarcomatous dermatofibrosarcoma).
@citizendeveloper, how was your appointment with the oncologist? What are next steps for you?