Anyone have multiple chemical insensitivity (MCS)?

I've posted before about having Multiple chemical sensitivity, I'm sorry we are all dealing with it :(. Can I ask how are you finding providers to care for your other health issues. I'm in Nebraska, I have lung issue's were I need a CT scan and other misc test. I cant get a primary to take on my case since the pandemic. I had one Direct care, pretty expensive when you are on Medicare but she left. Any suggestions!

Thanks for the good advice. Unfortunately I’m not on any medication outside of the asthma medication to treat the chemical sensitivity. I feel fine just so long as don’t get exposed to chemical smells or catch a cold. I have no idea why people expose themselves willingly to toxic chemicals but most people have no idea it’s so toxic. You’re so right about the detergent aisle! Good luck and hang in there

I have this very same problem and just about did when I have to walk down the detergent aisle in the grocery store! Are you on a medication called topamax? It causes a hyper sensitivity to smells and i didn’t know until I talked to the pharmacist because I thought my prescription smelled “off”. It might be worth taking a look at your meds and talking to a pharmacist. Hope this helps.

A lot of viruses can trigger these sensitivities including asymptomatic Covid. My doctor believes my sensitivity was triggered by a virus and this was in 2018. It doesn’t change anything knowing this. Try to find and stay away from triggers. Good luck to you.

Unfortunately, there are a lot of problematic places- Hotels have “signature scents” (less so in Europe and Asia but you have to ask) and running through the duty free perfume at the airport is not so much fun. Malls are usually full of scent. Going to concerts and shows are difficult. Air “fresheners” in taxis. Lawn mowers, power boats. The best you can do is make family and friends aware of how sick you become so that they can spread the word to other guests and eliminate scented candles etc. Good luck. It’s hard

@drsharon - I've been through a process with combing through chemical odors to improve my asthma, and also in some cases, my allergies. I now wonder why our society is so scented. I had to go through body and hair cleaning and other products, get rid of my fragrances that I'd previously really liked, and change some housecleaning, clothes washing, hand washing and room spray products. I also had to request some people in my life change some things, such as my mom's hand soap in her guest bath, that set off my asthma. I still need to ask my mother-in-law when we visit about her toilet cleaning product, which makes me cough terribly.

I seem to fare okay when products are scented with essential oils and not faux fragrance, but mostly I've gone fragrance free.

I've not thought about places I go so much, except in homes that have cats, which I'm quite allergic to. What other places do you find you have to stay away from to avoid the irritant asthma, drsharon?

If your allergist is not working with you towards a solution, it is time to go to a new allergist for a different perspective.

I read up on irritant asthma. I have no breathing problems, wheezing, coughing, shortness of breath, and chest tightness. Blood work is always good.

Thanks, I'm doing the same thing. But I had to get a new RV to get home from FL. I feel bad every day. Dr. has me on three anxiety meds. To slow my system down. Played pickleball 5 days a week, now once in 6 months.
THANKS DENNIS

I also am highly sensitive to multiple chemical odors which my respirologist calls irritant asthma. No allergies to anything. The hard part was figuring out what the triggers are and then eliminating them all. Bounce, all fragrances and scents (perfumes, shampoos room scents shampoos scented candles etc) and my family and friends had to eliminate them too. Also chemicals in carpet stores, formaldehyde in furniture like IKEA. There’s a lot of places one can’t go, but I feel good again. Asthma meds and emergency inhalers are a must. Good luck!