Does anyone know if people with MCS should avoid certain medications or have hospital procedures modified? I need to take osteoporosis meds and have no idea if the risk is higher
@drsharon if you can have medications compounded, it is best. Every MCS individual will react to different medications or chemicals. In short, there’s no way to determine which medications would cause a reaction, until you take them. A lot of people reject the osteoporosis meds due to long term side effects. My sister has rejected them and exercises, maintains good diet and takes a bone supplement. With that said, you make the best choice for you. Avoid hospitals as much as possible because the indoor air quality is toxic and doctors wear fragrances w/o regard to patient’s sensitivities. I must avoid polyethylene glycol as it sets off my nervous system. So, perhaps research everything you will need to take medication wise. Compound what is possible…
@drsharon - as long as you are not mentioning any products you are selling, please feel free to mention any brands that have helped you or produced a reaction in you.
I use mostly scent free products for my personal care and in my home because some products cause me to cough or my lungs to tighten up. I also almost never wear fragrance anymore, and that used to be a daily thing for me. It might take me a long time to determine a scent free product was causing me problems, cause I would not easily suspect it.
Will you share more about what kind of reaction the scent free detergent was triggering in you and how you figured out that the detergent was causing it?
@lisalucier I had to retire very suddenly as I had severe coughing, chest tightening and weakness. I didn’t realize what a big role all the products played. At this point I’ve removed all scented products, candles detergents etc. which helped a lot. I’m also eliminating the products with preservatives etc and my skin is much better as well. I was using Tide unscented and switched to the unscented company and that helped as well. I’m sure there are other good detergents. For my hair I use unscented Philip Adam and for soap I found a very pure olive oil soap from Greece called Papoutsanis. I make cream out of organic shea butter blended with sweet almond, jojoba and rose oils. I clean my house with baking powder/vinegar/borax. If anyone has other suggestions I’d love to hear them! I have no connections with any company
@lisalucier Hi Lisa, I was wondering if it’s okay to mention specific brands on this sight. For quite a while I didn’t realize that perfumes and scents and preservatives were triggers for me and I’ve recently discovered that my scent free detergent was still a trigger. I’ve found brands of detergent, soaps and shampoo that I find safe for me and would be happy to share the names if it’s ok. I also make my own body creams and cleaners. If anyone else has suggestions I’d like to hear them if it’s allowed. I realize we’re all different in out sensitivity but it might be helpful
@drsharon - as long as you are not mentioning any products you are selling, please feel free to mention any brands that have helped you or produced a reaction in you.
I use mostly scent free products for my personal care and in my home because some products cause me to cough or my lungs to tighten up. I also almost never wear fragrance anymore, and that used to be a daily thing for me. It might take me a long time to determine a scent free product was causing me problems, cause I would not easily suspect it.
Will you share more about what kind of reaction the scent free detergent was triggering in you and how you figured out that the detergent was causing it?
@drsharon - that is a worthwhile question about whether people with MCS should avoid certain medications or have hospital procedures modified. Would the doctor who had the theory on the origin of your sensitivity be able to advise on this?
@lisalucier Hi Lisa, I was wondering if it’s okay to mention specific brands on this sight. For quite a while I didn’t realize that perfumes and scents and preservatives were triggers for me and I’ve recently discovered that my scent free detergent was still a trigger. I’ve found brands of detergent, soaps and shampoo that I find safe for me and would be happy to share the names if it’s ok. I also make my own body creams and cleaners. If anyone else has suggestions I’d like to hear them if it’s allowed. I realize we’re all different in out sensitivity but it might be helpful
@drsharon - that is a worthwhile question about whether people with MCS should avoid certain medications or have hospital procedures modified. Would the doctor who had the theory on the origin of your sensitivity be able to advise on this?
@lisalucier I will be asking my respirologist if he knows but the approach so far has been awareness of chemicals as the cause of my irritant asthma, avoidance of the chemicals and treatment of symptoms. My dermatologist referred me to a specialist to eliminate allergy as a cause but I don’t think they know how to broadly test irritation from chemical reactions. If I find anything out I will pass it on.
Does anyone know if people with MCS should avoid certain medications or have hospital procedures modified? I need to take osteoporosis meds and have no idea if the risk is higher
@drsharon - that is a worthwhile question about whether people with MCS should avoid certain medications or have hospital procedures modified. Would the doctor who had the theory on the origin of your sensitivity be able to advise on this?
Does anyone know if people with MCS should avoid certain medications or have hospital procedures modified? I need to take osteoporosis meds and have no idea if the risk is higher
Yes! I try very hard to be Extremely careful with everything. Environment foods personal care products etc. I wear a mask many places. Fortunately I live alone now as my Ex was not helpful.
I have this very same problem and just about did when I have to walk down the detergent aisle in the grocery store! Are you on a medication called topamax? It causes a hyper sensitivity to smells and i didn’t know until I talked to the pharmacist because I thought my prescription smelled “off”. It might be worth taking a look at your meds and talking to a pharmacist. Hope this helps.
Never knew there was a Topamax connection! I have MCS and have been on it forever! Thx so much for this. I just started a slow taper so am going in right direction!
This is true, but more often than not, it’s from exposure to chemicals and the body lacking the gene for successful methylation. My entire family has MCS, and I know another family where all 6 kids have it at various stages. MCS is the fastest growing illness now all over the world. People need to stop buying scented toxic laundry/cleaning products and calling the house “clean”. It’s crazy what advertising has done to the public in convincing people their homes are dirty unless using these fragrance chemicals! Ugh 😑
You’re absolutely right. Very few people realize how toxic these products are. The billion dollar fragrance industry is self regulated and we’re paying for it with our health and our ability to live normally. I was exposed to a lot of chemicals in my work and I believe that was a factor as well.
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@drsharon if you can have medications compounded, it is best. Every MCS individual will react to different medications or chemicals. In short, there’s no way to determine which medications would cause a reaction, until you take them. A lot of people reject the osteoporosis meds due to long term side effects. My sister has rejected them and exercises, maintains good diet and takes a bone supplement. With that said, you make the best choice for you. Avoid hospitals as much as possible because the indoor air quality is toxic and doctors wear fragrances w/o regard to patient’s sensitivities. I must avoid polyethylene glycol as it sets off my nervous system. So, perhaps research everything you will need to take medication wise. Compound what is possible…
@lisalucier I had to retire very suddenly as I had severe coughing, chest tightening and weakness. I didn’t realize what a big role all the products played. At this point I’ve removed all scented products, candles detergents etc. which helped a lot. I’m also eliminating the products with preservatives etc and my skin is much better as well. I was using Tide unscented and switched to the unscented company and that helped as well. I’m sure there are other good detergents. For my hair I use unscented Philip Adam and for soap I found a very pure olive oil soap from Greece called Papoutsanis. I make cream out of organic shea butter blended with sweet almond, jojoba and rose oils. I clean my house with baking powder/vinegar/borax. If anyone has other suggestions I’d love to hear them! I have no connections with any company
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1 Reaction@drsharon - as long as you are not mentioning any products you are selling, please feel free to mention any brands that have helped you or produced a reaction in you.
I use mostly scent free products for my personal care and in my home because some products cause me to cough or my lungs to tighten up. I also almost never wear fragrance anymore, and that used to be a daily thing for me. It might take me a long time to determine a scent free product was causing me problems, cause I would not easily suspect it.
Will you share more about what kind of reaction the scent free detergent was triggering in you and how you figured out that the detergent was causing it?
@lisalucier Hi Lisa, I was wondering if it’s okay to mention specific brands on this sight. For quite a while I didn’t realize that perfumes and scents and preservatives were triggers for me and I’ve recently discovered that my scent free detergent was still a trigger. I’ve found brands of detergent, soaps and shampoo that I find safe for me and would be happy to share the names if it’s ok. I also make my own body creams and cleaners. If anyone else has suggestions I’d like to hear them if it’s allowed. I realize we’re all different in out sensitivity but it might be helpful
@lisalucier I will be asking my respirologist if he knows but the approach so far has been awareness of chemicals as the cause of my irritant asthma, avoidance of the chemicals and treatment of symptoms. My dermatologist referred me to a specialist to eliminate allergy as a cause but I don’t think they know how to broadly test irritation from chemical reactions. If I find anything out I will pass it on.
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Like -
Helpful -
Hug
1 Reaction@drsharon - that is a worthwhile question about whether people with MCS should avoid certain medications or have hospital procedures modified. Would the doctor who had the theory on the origin of your sensitivity be able to advise on this?
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2 ReactionsDoes anyone know if people with MCS should avoid certain medications or have hospital procedures modified? I need to take osteoporosis meds and have no idea if the risk is higher
Yes! I try very hard to be Extremely careful with everything. Environment foods personal care products etc. I wear a mask many places. Fortunately I live alone now as my Ex was not helpful.
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Helpful -
Hug
1 ReactionNever knew there was a Topamax connection! I have MCS and have been on it forever! Thx so much for this. I just started a slow taper so am going in right direction!
-
Like -
Helpful -
Hug
3 ReactionsYou’re absolutely right. Very few people realize how toxic these products are. The billion dollar fragrance industry is self regulated and we’re paying for it with our health and our ability to live normally. I was exposed to a lot of chemicals in my work and I believe that was a factor as well.
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Like -
Helpful -
Hug
3 Reactions