Forteo vs. Tymlos: Which did you choose?

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

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@sunny65

Hi ,@windyshores. I been having a therapy for two weeks without much improvement. The disc in my spine pressing nerve and the pain is very very bad. The worst part is that it’s radiating to my knees ( they feel locked). I am so hesitant to start Tymlos. Even I know I have to! Decided call pain doctor and get a cortisone shot . My endocrinologist doesn’t like it but I have to be able to function. Would you advise to start Tymlos before the shot or wait and start in a week or two? I value your opinion very much. I am very scared of another fracture ( I have a 4 in my spine already.

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Good evening @sunny65, I thought it might be helpful to share my Tymlos experience with you. @windyshores has helped me understand the importance of sharing our experiences with Tymlos. I selected Tymlos and completed two years without any side effects or discomfort. The results were positive.

May you be safe, protected and free of inner and outer harm.

Chris

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@lkel

My bone density increase was 11% total. 6% the first year and 5% the second My last scan was last year, either late summer or early fall.
I've had no side effects on Alendronate.

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Thank you so much for answering my questions.
I always have problems about my stomach, last year my primary doctor prescribed Boniva to take once a month and I just started only 4 months I have to stop because I got a lot of heartburn then she sent me to see endocrinologist last 2/14/24 she prescribed me Forteo (brand name) or Teriparatide(Generic brand) or another choice Prolia .Until now I have not given her the answer yet about which one I prefer .I call my Medicare part D (Aetna Silver Script) I have to pay almost $700/month for Teriparatide generic brand only.😁

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@laoaca70

Thank you so much for answering my questions.
I always have problems about my stomach, last year my primary doctor prescribed Boniva to take once a month and I just started only 4 months I have to stop because I got a lot of heartburn then she sent me to see endocrinologist last 2/14/24 she prescribed me Forteo (brand name) or Teriparatide(Generic brand) or another choice Prolia .Until now I have not given her the answer yet about which one I prefer .I call my Medicare part D (Aetna Silver Script) I have to pay almost $700/month for Teriparatide generic brand only.😁

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@laoaca I hope you can do a bone builder like terparatide (generic Forteo), Forteo, Tymlos or Evenity. The companies that make Forteo and Tymlos have patient assistance programs with income limits, and Evenity's Amgen may help too.

Prolia is an anti-resorptive and there are risks when you stop it- loss of bone density and increase in fracture risk, sometimes even when you transition to Reclast. Forteo and Tymlos are anabolic bone-builders and build quality bone. Evenity is both anti-resorptive and anabolic. All of these drugs are followed by Reclast, Fosamax or (not recommended by my docs) Prolia to "lock in gains."

Evenity is given in the doctor's office and is 80% covered by Medicare Part B. I pay $427 for it. My Tymlos was free for 18 months via Radius Assist.

Ask your doctor if you need to take a break between Boniva and the next drug and what the best timing might be.

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@windyshores

@laoaca I hope you can do a bone builder like terparatide (generic Forteo), Forteo, Tymlos or Evenity. The companies that make Forteo and Tymlos have patient assistance programs with income limits, and Evenity's Amgen may help too.

Prolia is an anti-resorptive and there are risks when you stop it- loss of bone density and increase in fracture risk, sometimes even when you transition to Reclast. Forteo and Tymlos are anabolic bone-builders and build quality bone. Evenity is both anti-resorptive and anabolic. All of these drugs are followed by Reclast, Fosamax or (not recommended by my docs) Prolia to "lock in gains."

Evenity is given in the doctor's office and is 80% covered by Medicare Part B. I pay $427 for it. My Tymlos was free for 18 months via Radius Assist.

Ask your doctor if you need to take a break between Boniva and the next drug and what the best timing might be.

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Thank you so much for your advice, I really appreciate it. I am going to find out soon about those. Thank you Windyshores . 🙏❤️😘

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@lkel

I started nearly 3 years ago and finished at the end of last September. I was on part D and received full coverage for Forteo. Nothing at all out of pocket. In my case, it was the clinic (a large one) I go to that did the paperwork. I think that made the difference. They kept telling me to fill out the forms. I didn't believe I would qualify because of income level. I finally filled them out and was 100% covered.

I'm curious, is there anyone else on here that applied for assistance through their clinic?

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I have never heard of a clinic for Forteo. My insurance wants $1,000 a month from me. That's insane! I took Forteo for 1 Year back in 2003 and the doctor didn't know it was for 2 years so now they want to give me the 2nd year but at that price, I can't. Can you tell me how to get in touch with the clinic? Thank you.

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@dianechristine

I have never heard of a clinic for Forteo. My insurance wants $1,000 a month from me. That's insane! I took Forteo for 1 Year back in 2003 and the doctor didn't know it was for 2 years so now they want to give me the 2nd year but at that price, I can't. Can you tell me how to get in touch with the clinic? Thank you.

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Hi dianechristine, The medication costs are unbelievable. Have you looked into prescription copay programs, or prescription assistance? The manufactures of Forteo and it's generic version each offer programs, and some of the members of this group have used Lilly Cares to pay for Forteo.

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@dianechristine

I have never heard of a clinic for Forteo. My insurance wants $1,000 a month from me. That's insane! I took Forteo for 1 Year back in 2003 and the doctor didn't know it was for 2 years so now they want to give me the 2nd year but at that price, I can't. Can you tell me how to get in touch with the clinic? Thank you.

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Hi,
Any information that is relative to get to assistance and where to look for it would
be helpful, either for Forteo or Tymlos...it seems that the programs were available
in 2021ish.

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Both Tymlos and Tereparatide have manufacturers coupon. Just Google Tymlos manufacturer’s coupon. Same with Tereparatide. I have used both and paid zero dollars. With these programs you need commercial insurance (from work). Unfortunately you can’t use them with Medicare. I don’t know what is available for low cost with Medicare.

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My insurance [in Canada] would not pay for Forteo, only the Biosimilar, Osnuvo.
This was $650/month. I had to pay $135.00.

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@ssapp1

Both Tymlos and Tereparatide have manufacturers coupon. Just Google Tymlos manufacturer’s coupon. Same with Tereparatide. I have used both and paid zero dollars. With these programs you need commercial insurance (from work). Unfortunately you can’t use them with Medicare. I don’t know what is available for low cost with Medicare.

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You can use these meds with Medicare, but there are income guidelines.

If single, the amount is $45,180 and $61,320 if a 2 person household (Forteo). You can see Lilly Cares for more info at https://www.lillycares.com/how-to-apply#check-eligibility

Tymlos: ‭Call (866) 896-5674‬

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