Forteo vs. Tymlos

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

@diva

Have you applied for a Tier Exception? I am going to try. Nothing to lose. Just aggravates me that if you are not on Medicare you can get 0 copay coupons.

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@diva Thank you for the suggestion. I haven't applied for anything yet because I haven't made a final decision about what I will go with. I hadn't heard of Tier Exceptions before but it could possibly apply because I probably cannot take the oral drugs since they might affect my esophagus, but I am not sure how I would get out of taking the other, less expensive infusions.
JK

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@laurapearl

yes, and you know what helped me make the decision to stay with it? someone (either on this board or elsewhere, can't remember) wrote, if you had cancer that could be treated with chemo, would you leave your cancer untreated because chemo has uncomfortable side effects? somehow that gave me a diiferent perspective. we might not think of osteoporosis as being as serious as cancer, but as i mentioned before, i have seen the older women in my family become completely debilitated by it — permanently folded over until the end of their lives.

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@laurapearl That is really a good way of looking at it. Thanks for the thought. With that in mind, I think if you hope to have a good number of years left, it makes sense to do one of the available drugs, despite their side-effects.
JK

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@contentandwell

@diva Thank you for the suggestion. I haven't applied for anything yet because I haven't made a final decision about what I will go with. I hadn't heard of Tier Exceptions before but it could possibly apply because I probably cannot take the oral drugs since they might affect my esophagus, but I am not sure how I would get out of taking the other, less expensive infusions.
JK

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I have decided to go with Tymlos since it is less $ with my insurance. Also will not go with Prolia. Rx plans never mention it as a option . Also has nothing to do with your income. Get all your ducks in a row when applying. I.E. reasons why you can't have Prolia or Reclast . Any dental issues and have a doctor write a note for you to submit. I haven't started treatment and it will probably be a few more weeks till I do.

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@diva

I have decided to go with Tymlos since it is less $ with my insurance. Also will not go with Prolia. Rx plans never mention it as a option . Also has nothing to do with your income. Get all your ducks in a row when applying. I.E. reasons why you can't have Prolia or Reclast . Any dental issues and have a doctor write a note for you to submit. I haven't started treatment and it will probably be a few more weeks till I do.

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@diva Unfortunately I can't think of any dental issues. I will have to check with my transplant team to see if they have any objections to any of these medications. I can do nothing without their input.
JK

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@diva

I have decided to go with Tymlos since it is less $ with my insurance. Also will not go with Prolia. Rx plans never mention it as a option . Also has nothing to do with your income. Get all your ducks in a row when applying. I.E. reasons why you can't have Prolia or Reclast . Any dental issues and have a doctor write a note for you to submit. I haven't started treatment and it will probably be a few more weeks till I do.

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Why do you need to address dental issues when you're taking it?

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@diva

I have decided to go with Tymlos since it is less $ with my insurance. Also will not go with Prolia. Rx plans never mention it as a option . Also has nothing to do with your income. Get all your ducks in a row when applying. I.E. reasons why you can't have Prolia or Reclast . Any dental issues and have a doctor write a note for you to submit. I haven't started treatment and it will probably be a few more weeks till I do.

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Hi — I started Tymlos a year ago — had some nausea in the beginning, but that dissipated. I do the shots just as I go to bed which seems to work best for me. Had my bone scan last month and my t-scores in my spine are all in the normal range. I will be on Tymlose for most of this year — after that the MD wants me to go on Reclast — which I won't do. Am looking into Chinese medicine along with diet and exercise. Good luck to you.

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@lucky1038

Why do you need to address dental issues when you're taking it?

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Many of the drugs used to treat osteoporosis can affect the jawbone. Many dentists won't do any major dental work if they know you're on these drugs. A pharmacist's wife told me the other day that many dentists will actually give their patients boron supplements before doing any implant work, to help make sure bone in the jaw is built up. If jawbone is porous or weak, implants won't hold.

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@contentandwell

@curlylocks Thank you, but I doubt I would fit the criteria for that program. I’m in that vast middle, not affluent but too much money to qualify for assistance. The good thing is that you only have to take this drug for a year and a half.
I plan to ask my endo if Tymlos would be indicated for me.
JK

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Mentor, I'm also in the vast middle and was rejected on my first application. There is more financial leeway than one would imagine! Based on my out-of-pocket health care costs, I appealed their decision and was accepted into the program. The forms were given to me by Wake Forest Baptist. I had no idea that this type of program even existed! Your doctor should be able to help you. It's definitely worth a try!

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@jl1940

I don't understand how any phramacist would tell you hat "Tymlo couldn't be broken in half beause it's not marked"? It's not a pill, it's an injectable onlly. It's also not 80 mg (milligrams) daily but 80 mcg (micrograms), a different measurement. There would be no way to give yourself half an injection twice a day–why would you want to do that, anyway? The inection process takes about two minutes to prepare your injection site and do the injection, which you really can feel. The needle is very, very tiny. If you are a person who is generally afraid of needles once you've done the Tymlos injection once or twice you won't give it another thought!

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I'm not sure who you meant to respond to, but it isn't me. I take one injection a day and don't know what you are talking about. My injection is in the morning. There are no pills and never were any pills. I will say, the injection varies from no pain to a painful shot. If a person has a clean abdomen, no scars, stretch marks or bruising, the injection should be easy. Unfortunately, this is not my situation. Still, whenever there are few alternatives, a person has to do what is necessary.

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Congrats that you were accepted into the program. All we can do is apply for some assistance. Just don't take NO as an answer. The oe forms and the letter writing take so much time. We just can't let the Pharma and Insurance Companies win.

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@debbiem

Many of the drugs used to treat osteoporosis can affect the jawbone. Many dentists won't do any major dental work if they know you're on these drugs. A pharmacist's wife told me the other day that many dentists will actually give their patients boron supplements before doing any implant work, to help make sure bone in the jaw is built up. If jawbone is porous or weak, implants won't hold.

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@debbiem @lucky1038 The hygienist at my dentist's office told me that basically you have to be of osteoporosis medication for the amount of time it is effective for. For example, if you are on Reclast you would need to wait until you are due for another infusion which could be as long as a year if you have recently had an infusion. If you are on a daily medication the restrictions are much less.
This is what I was told by the hygienist but I have not checked it further.

@curlylocks Thanks. If the time comes that I need to look into this I will remember that there is some negotiability. We are on a fixed retirement income that hasn't changed since my husband retired in 2004 so each year money gets a bit tighter. So far we are OK, thankfully.
JK

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@debbiem

Many of the drugs used to treat osteoporosis can affect the jawbone. Many dentists won't do any major dental work if they know you're on these drugs. A pharmacist's wife told me the other day that many dentists will actually give their patients boron supplements before doing any implant work, to help make sure bone in the jaw is built up. If jawbone is porous or weak, implants won't hold.

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That is why you can apply for a Tier exception. When some of the drugs ie Prolia is known to cause more than the others and can't take the oral drugs for other reasons.

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@debbiem

Many of the drugs used to treat osteoporosis can affect the jawbone. Many dentists won't do any major dental work if they know you're on these drugs. A pharmacist's wife told me the other day that many dentists will actually give their patients boron supplements before doing any implant work, to help make sure bone in the jaw is built up. If jawbone is porous or weak, implants won't hold.

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This is true of the biophophonates, but it's not true for Tymlos or Forteo.

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I was informed that my monthly out-of-pocket for Tymlos is $850 with Medicare and a supplemental insurance. Help!!! Any advice?

Liked by jmanj

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Hi Salpert, Your doctor should have advised you about applying directly to Tymlos for financial help. He or she should have forms on hand. You fill out part of the form and your doctor fills out the rest. Contrary to what a lot of people believe, there is flexibility on income. I was rejected the first time and wrote an appeals letter explaining my other out-of-pocket health care costs. I was then accepted into their program. Hopefully, this information helps you. Good luck and let me know what happens. Curly Locks

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