Mayo Clinic Connect
It seems if I get enough activity/exercise daily I don’t have pain; if not, am awakened from sleep and must get up (even in the middle of the night). What’s going on & what more should I do to avoid rest-disruption?
Liked by JK, alumni mentor, Becky, Volunteer Mentor, sinaia
I've had peripheral neuropathy for about 10 years now !!
I've tried all the med's with no pain relief !
I've been tested and tested some more !
Finally,I went to my cardio doctor and checked for a pulse in my ankles and only go a faint pulse !
I go back to my cardio doctor for an ultrasound on my legs to see if my legs and feet are getting enough blood flow to them !?
In a way,I hope that they are not getting enough blood because I think this is my last attempt to get some pain relief !!!!
Liked by John, Volunteer Mentor, Jim, Volunteer Mentor, lioness
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How have you taken the pain for 10 yrs? I've been in pain for 2 yrs and feel like jumping off a bridge! But I can't cause I don't want to go to HELL! But this is Hell! My husband said it ain't but he's not the one with nerve pain
Liked by John, Volunteer Mentor, Jim, Volunteer Mentor
I completely understand & I feel the same way. It is kind of discouraging when you know it is going to get worse. I have the progressive type.
Liked by John, Volunteer Mentor, Lisa Lucier
Get as many gabapentins as you need. I take 4 300mg capsules a day, If you need more,speak with your Dr. I have friends that take 10.
Also if you live in a legalized Marijuana State, try some of the active strain creams (a good store will guide you). I had a double transplant, so currently I only take prescribed medications, however with the cream I seldom needed medications. Here in Las Vegas there are Chiropractors that sell you relief, however it's little more than a Tens treatment (be careful it's a temporary treatment).
When the Needles Pain Starts,it totally uncontrollable and sometimes it's also the Burning skin areas – this is very painful and do not tolerate Anyone belittling your pain – and it's also Bad Karma.
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, lioness, rwinney ... see all
Warning- this message contains concepts that may offen some. I'm writing from a Christian perspective.
We have different views on the destiny of suicide. Many people are alive today because they don't want to go to hell. That's kind of a negative view of one's qualifying for heaven.
I can't accept the position that suicide is a, "no questions asked", universal, unilateral ticket to hell. I understand the reasons for thinking that way.
I believe that if a person is a committed follower of Christ, regardless how that person dies, they are loved by God. He has demonstrated his love for us in that while we were yet sinners, Christ died for us. Tied in with love and salvation are grace and mercy and forgiveness. Nothing we can do with ever come between God and his followers. These are statements found in passages throughout the Bible, not just things I thought up to justify suicide.
Certainly, it's true that sin cannot enter heaven, but I I believe that sin in this setting means an intentional move away from our relationship with God, and living a lifestyle of ongoing sinful behavior. That is to indicate that a single sinful act or thought just before dying doesn't erase the fact of a salvation of grace. If it were true that the single act of suicide sent us to hell, it would have to be true that fudging on our income taxes would also send us there if we hadn't had time to ask for forgiveness.
Having attempted suicide myself, I know that during the time leading up to the final act, one's mind is convinced that suicide is a rational solution, which it isn't. Being in a rational mind would mean that we realize that suicide is irrational, and we can think about all of the reasons for living.
Sorry for the long response, but it takes me a while to explain why I hold certain beliefs. I hope that you will be able to get past the suicidal ideation, lose any guilt for thinking it's an unforgivable sin. Perhaps letting go of the guilt and fear will allow you to turn your mind to a rational, positive course.
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, lioness, lorirenee1
@jmhd I love that you have written about sin and suicide. I think this topic needs to be here. It is so real, and I bet, it is on many peoples' minds. I have thought of suicide, because I suffer. I have also thought about states in which euthanasia is legal. But then I think about my grandson's crystal blue eyes, my odd husband, (I love him anyway), and the things that bring a smile. I walk a thin rope, most of the time. I am sad. I love dearly. I weep with pain. I get high a lot. I claim the new, odd, me. I claim the CBD and Kratom, that usually make my life fairly livable. But thoughts of ending it, do lurk in sultry shadows. I am human. Lori Renee
Liked by John, Volunteer Mentor, Jim, Volunteer Mentor, lioness, rwinney
Liked by John, Volunteer Mentor, lioness
Thank you jim for the statement on taken ones life! When you are in so much pain day after day, it is so discourageing,and all my doctor wants to do is surgery but can't tell me if it will help or not? He says I have Chiari malformation and wants to cut my head open to help my spinal fluid move?? But dnt know if or when it will help,then why bust my head open, really. I'm just sick of feeling so sick and sad all the time.
I take lyrica, 200 mg 3 times a day,and my doctor said in the state of tn. That's all they can give me? And it's not enough! Pain meds don't help at all! I wish they wild keep the stupid hydro 10, I take 5 times a day and double my lyrica,but they want. I pray to God everyday to help me make it another day cause me and my husband are raising our 9 yr old grandson. His big blue eyes keep me going on, and my husband of 30 yrs is my hero cause I know he loves me so much and wld be lost without me!
Liked by Jim, Volunteer Mentor, Lisa Lucier
Sorry to hear you're feeling so bad. I completely understand how chronic pain can drive someone to consider or actually commit suicide.
From your post it sounds like your doctor didn't explain things well, and/or you didn't understand him/her.
The Chiari malformation does indeed block spinal fluid from circulating, by obstructing the opening between the brain and the spinal cord.
You can google Chiari malformation. There is a good explanation of the various types, treatments, etc on the Mayo Clinic site.
You have to go back to your doctor and ask lots of questions to make sure you understand your diagnosis and prospective treatment. You can also ask your PCP. If you don't get sufficient information, get a new doctor!
@lioness have you seen this Jan 2019 article on Conolidine? Sounds promising…
Discovering the pharmacodynamics of conolidine and cannabidiol using a cultured neuronal network based workflow
@jphnbishop@ I just purchased Conolidine! I figured, what the hell. I have tried so many things, wasted so much money, that it is nuts. But any kind of pain relief is worth every penny. If Kratom were not addictive, I would just stay on it. But you cannot take it daily. So I have to keep on plugging away……what we all go through. We know more than our doctors, for sure. LoriRenee
I pray the Conolidine provides relief for you. Please keep posted.
Liked by John, Volunteer Mentor
@resawaller I sure know how you're feeling. I'm there more than I'd like. We're going to have our 3 month old granddaughter and her family here for Thanksgiving week. Our daughter married a Coast Guard IT, so we're liking the fact that they're closer to us than his last post in Boston. He was transferred to Alameda, CA, just a day away. Family is an important part of our safety plans.
I have a sensory nerve pinched now and pain down back and in front and neuropathy down leg with spasms constamt/ Not sleeping for pain. Finally agreed to pain patch. I just pray I am not allergic to it since I am to so many things they try. I am just giving it all I have and hoping for the best. My doctor says I read more about how to deal with all off this than he every has time to. I write down everything I see on here that he hasn't tried; Thanks to all.
@klro0001 Hi Kia, Thanks for your kindness. I will definitely write back here when I start using it. Right now, waiting for it to ship. I cannot wait to try it. Lori R
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