Foot Neuropathy, CIDP?

Posted by wsgayski123 @wsgayski123, Jan 24 8:15am

I have foot neuropathy that progressed from one foot to the other over 15 yrs. History of alcohol use, and high sugar. Had a soft diagnosis of CIDP. EMS, blood tests, spinal tap inconclusive. Neurologist based his opinion on office exams, which were very subjective. Had 1.5 yrs of immune globulin infusions with no effect. Neuropathy got worse with burning after knee replacement. Thinking of getting a second opinion. How could the knee surgery affect the neuropathy? I think it’s diabetic neuropathy 🤷‍♂️. Ps. I’ve done life style changes over the last 1.5 years. Lost 50lbs. High protein diet. A1C has been much lower. 6.1

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Has your neurologist not suggested implanted electro stimulation?

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No. He was talking about Plasma exchange, or Vvgart Hytrulo. I’m not confident I have CIDP.

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Profile picture for blowerk1216 @blowerk1216

Has your neurologist not suggested implanted electro stimulation?

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@blowerk1216 No. He mentioned Plasma exchange, and Vvgart Hytrulo. I’m not convident I have CIDP. I don’t want to take any more medicine unless the diagnosis is more solid.

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Profile picture for blowerk1216 @blowerk1216

Has your neurologist not suggested implanted electro stimulation?

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@blowerk1216
I have the NEVRO implant, it does work but not as good as I had hoped.

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As I understand it there is a variation of effectiveness depending on the person

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Profile picture for wsgayski123 @wsgayski123

@blowerk1216 No. He mentioned Plasma exchange, and Vvgart Hytrulo. I’m not convident I have CIDP. I don’t want to take any more medicine unless the diagnosis is more solid.

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@wsgayski123 gotcha!

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Profile picture for bvfrd @bvfrd

@blowerk1216
I have the NEVRO implant, it does work but not as good as I had hoped.

Jump to this post

@bvfrd as I understand it there is a variation in effectiveness from person to person

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Profile picture for blowerk1216 @blowerk1216

Has your neurologist not suggested implanted electro stimulation?

Jump to this post

@blowerk1216
I had a nevro spinal stimulator placed in my back over a year ago. It gave me very little relief. I am having it removed next month.

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