Foot neuropathy

Thanks for your input
Much appreciated
It helps me understand how to deal with my neuropathy..
Its a continual challenge isnt it?
Beguiling and aggravating besides being painful..
Keep us informed of your experiments
Hopefully they will eventually achieve success..
Stay strong

I’m going through a bad patch, I’ve stopped taking ALA and Benfotiamine due to stomach problems, l really don’t know what to do. There seems to be so many treatments,I could do with some advice. Can someone let me know a workable protocol that works for them and might work for me. I’ve read so much about peripheral neuropathy that my mind is in a knot. Here’s hoping John

I’ve started back on 200mg R-ALA and 300mg Benfotiamine, both purchased from Applied Nutrition.
I emailed the company to question the ALA dose ,explaining that the recommended dose is 600mg. Their advice was, do not exceed the 200 mg stated on the package. I have no intention of doing so until I get use to this lower dose but am I correct about working up to 600mg
John

Working your way up to the higher dose can help with nausea and stomach issues to allow your body to adjust. I take 600 mg R-ALA morning and evening but I would recommend you discuss all of the supplements you take with your doctor or pharmacist.

I’m doing all this on my own, my GP is not very supportive. I’ve done most of the research from the internet and this group. That’s why your answers are so helpful..
John I would welcome any advice. I’m not even sure how to navigate my comments and find the replies on this forum

Hi John @bigjohnscho, I really don't have any experience with issues taking R-ALA as I started at 1200 mg daily (600 morning and evening) with no stomach problems. I have read that others have had nausea trying to start at the full dose and worked their way up starting with 100 mg twice daily for a week and then increasing the dosage.

You might want to take a look at the step by step instructions on how to use Connect in the Help Center here - https://connect.mayoclinic.org/help-center/. It does a good job of explaining how to reply to members and post comments and more.

Hoping you find some answers.

Hi John, can you tell me how long it takes before you start to feel any improvement after starting the R ALA

John

I stopped my R-ALA and Benfotiamine about 6 weeks ago and so far I notice no worsening of symptoms with my radiculopathy that makes my feet feel numb and causes balance issues. I've been taking both supplements for over a year after reading about them online.... Has ANYONE noticed a remarkable difference when taking them? And if so, WHAT do you notice that is different?
So grateful for the support groups here at Connect!
Best wishes!
Mike

I can't speak to taking just R-ALA alone since it was just one of the supplements I am taking for neuropathy. I started taking the protocol regiment in Sept 2016 and didn't start noticing a difference until December of 2016. At that point in time it seemed like my numbness wasn't as bad and hadn't progressed any more. The numbness went from just below the knee down to just above my ankles during the 2 to 3 month time. Then just this past year I seem to have a little more feeling in my feet although they are still numb and tingling. This is really subjective on my part since no additional testing has been done.

This is a complete list of what I am taking.

I think it was actually about a month taking 200mg a day. However I have to say the improvement has waned and walking has become very difficult at about 9 month.i now need a cane. Finally gave in to using one. I can look into increasing ALPA and see if it's an option. After connecting dots I now realize that this Idiopathic Neuropathy started 30 years ago when powerwalking craze my feet slapped the ground and instead i just jogged on me toes.