First Visit to Mayo Clinic - Digestive Issues

Posted by ahoff @ahoff, Aug 14, 2023

Hi there! I have my first visit to Mayo Clinic on September 5th. I have been diagnosed by my current GI doctor with Celiac, Microcolitis, IBS, and SIBO. I’ve been on a strict gluten free diet for years and have had no relief from symptoms. I’m going to Mayo Clinic to hopefully get some answers on why I’m having such debilitating issues. I was told I need to be at Mayo Clinic in Rochester for 5 days. I got my schedule today and I only have 3 tests over 5 days… and I’m very confused on why I have such a small amount of tests to do. I’m doing Electrocardiogram Testing, a Hydrogen Breath test, and MR Enterography Imaging Exam. Will they schedule more tests while I’m there or is this all I’m doing? I’m super confused on why I need to be there for 5 days if I’m only doing 3 tests. Any insight would be wonderful! Thank you!

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@gallbladderless

Hello,

I'm a 35yo female looking for a Mayo Dr. in Rochester, MN that has experience in binge eating disorder, SIBO, and Celiacs. I'd like them to perform an endoscopy biopsy and review my Genova stool test, NutrEval, and blood work results.

Dr. Crowell's profile looks like a great fit, but then I saw he's in AZ.

Thanks tons!
Gina

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I have been having GERD so often that I bumped myself up to 40 mg Nexium twice a day. I have a hiatal hernia, abdominal discomfort, chronic constipation, A GI doctor told me I have IBS and non alcoholic fatty liver with no fibrosis. He wanted to do a Nissan fundoplication on me, and I asked him how many he had performed. The answer was three! I left and never went back. I want to go to Mayo in Rochester to really find out what is going on, and possibly have the linx procedure, so I can go off of the Nexium. Is there anyone in particular that people would recommend for a GI at Mayo Rochester?

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@fighter

I have been having GERD so often that I bumped myself up to 40 mg Nexium twice a day. I have a hiatal hernia, abdominal discomfort, chronic constipation, A GI doctor told me I have IBS and non alcoholic fatty liver with no fibrosis. He wanted to do a Nissan fundoplication on me, and I asked him how many he had performed. The answer was three! I left and never went back. I want to go to Mayo in Rochester to really find out what is going on, and possibly have the linx procedure, so I can go off of the Nexium. Is there anyone in particular that people would recommend for a GI at Mayo Rochester?

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Congratulations on this decision, @fighter. I am dealing with the same issues and several more involving gastro. There are other medications and tests and treatments before surgery. I see doctors at Mayo Florida, so I can't recommend a specific doctor, but I am sending you blessings and good wishes for your next steps in this journey. These doctors are the best and are not focused on surgery as a first solution. I've been so impressed with my care.
Blessings, elizabeth

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@fighter

I have been having GERD so often that I bumped myself up to 40 mg Nexium twice a day. I have a hiatal hernia, abdominal discomfort, chronic constipation, A GI doctor told me I have IBS and non alcoholic fatty liver with no fibrosis. He wanted to do a Nissan fundoplication on me, and I asked him how many he had performed. The answer was three! I left and never went back. I want to go to Mayo in Rochester to really find out what is going on, and possibly have the linx procedure, so I can go off of the Nexium. Is there anyone in particular that people would recommend for a GI at Mayo Rochester?

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Don’t schedule until you have a recommendation. I took “the first available” and was so disappointed. He ended up recommending Prilosec. And I had just spent 6 months trying to withdraw my body from its after effects. I was delusional thinking just because you are a Mayo Dr you good.

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@samiam19

Don’t schedule until you have a recommendation. I took “the first available” and was so disappointed. He ended up recommending Prilosec. And I had just spent 6 months trying to withdraw my body from its after effects. I was delusional thinking just because you are a Mayo Dr you good.

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@samiam19 did you explain your history to the doctor you worked with after he recommended Prilosec? If so, what did he share with you with regard to his decision?

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@amandajro

@samiam19 did you explain your history to the doctor you worked with after he recommended Prilosec? If so, what did he share with you with regard to his decision?

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Yes he knew my history. I have seen 3 or 4 gastro doctors over the past few years and they all have dismissed my concerns about Nexium and Prilosec. This has really surprised me.

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@samiam19

Yes he knew my history. I have seen 3 or 4 gastro doctors over the past few years and they all have dismissed my concerns about Nexium and Prilosec. This has really surprised me.

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@samiam19 have you requested/tried Prevacid? Also, can you share what side effects you were experiencing from Priolosec?

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Hello,

I'm a 35yo female looking for a Mayo Dr. in Rochester, MN that has experience in binge eating disorder, SIBO, and Celiacs. I'd like them to perform an endoscopy biopsy and review my Genova stool test, NutrEval, and blood work results.

Dr. Crowell's profile looks like a great fit, but then I saw he's in AZ.

Thanks tons!
Gina

REPLY
@gallbladderless

Hello,

I'm a 35yo female looking for a Mayo Dr. in Rochester, MN that has experience in binge eating disorder, SIBO, and Celiacs. I'd like them to perform an endoscopy biopsy and review my Genova stool test, NutrEval, and blood work results.

Dr. Crowell's profile looks like a great fit, but then I saw he's in AZ.

Thanks tons!
Gina

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Hi @gallbladderless, welcome. At Mayo Clinic, our team approach means that you'll never have to search for answers alone. Your Mayo Clinic team will be hand-picked according to your unique needs. It will likely include specialists within and across departments to evaluate your condition from fresh perspectives. For that reason, you will not need a specific doctor referral.

In the gastroenterology department, doctors and dietitians work closely with you to help you and specialists at Mayo Clinic work together to give you the expertise needed to work with your signs and symptoms. Your team has access to more than 4,700 Mayo Clinic physicians and scientists on three campuses. If there's a question, alternate ideas and emerging research are just a phone call — or hallway — away.

You can self refer by contacting Mayo Clinic online or by phone. Here's the contact information http://mayocl.in/1mtmR63

Fellow members like @amandaburnett @fourof5zs @astaingegerdm may be able to share more.

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@gallbladderless

Hello,

I'm a 35yo female looking for a Mayo Dr. in Rochester, MN that has experience in binge eating disorder, SIBO, and Celiacs. I'd like them to perform an endoscopy biopsy and review my Genova stool test, NutrEval, and blood work results.

Dr. Crowell's profile looks like a great fit, but then I saw he's in AZ.

Thanks tons!
Gina

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Oh wow, same day reply....and super helpful, comforting, hope-giving, AND ON A SUNDAY!?!?!? Thank yo so much @colleenyoung !!!!!

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ahoff @ahoff

Your correct in statement that more tests or appointments may be added before you arrive or after seeing provider or results of initial tests.

If check your portal closer to appointment dates, you may see additional appointments show up.

Is there a doctor appointment scheduled? Are current appointments all on same day?

If additional appointment are scheduled, may need an extra day to do prep for GI appointments.

Most hotels in area are flexible with reservations if you finish up your Mayo appointments early.

Laurie

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