First Lanreotide Injection: Any tips about diet and side effects?
Good morning, I am an 81 yr old female & was diagnosed with stage 4 NETS in my liver metastasized from my lung in Dec 2022. Like so many of us it was discovered by accident during a GI test. I received my first lanreotide injection July 6, 2023 with minimal instruction, only that I might have intestinal upset (I did) and that I would not be able to eat spicy food for the foreseeable future. I am to a have one injection every 28 days for the next 10 months. I stumbled on this site while trying to find some information about diet information and would appreciate any direction or experience the group can share.
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
nana120- I eat 1 boiled egg and 1/2 avocado a day without any symptoms. My surgeon and oncologist said that if I do not feel any uncomfortable effect I should eat it. I feel cramps and pain from brie, and pasta with red sause ( even very small amount).
@nana120 - I use protein powder, that I mix with yogurt and frozen fruits to boost my protein intake.
My oncologist’s nurse recommended I drink Boost for weight gain, but everything I’ve read says stay away from milk and Boost has milk in it. Has anyone had experience with it. She said there may be one that is lactose free.
Ok. How can folks here help then? There are a lot of knowledgeable people here.
Good morning, I just wanted to let you know that with your encouragement I had my first small piece of dark chocolate last night with apparently no bad side effects Yay! Onward & upward! Now I’ll get some cherry juice I hadn’t even thought of it. Thanks for sharing your diet!
Yes. I would like him to go for another but I think at this point he is not strong enough to travel very far.
Any second opinions?
Yes, he has.
Wow Allison. Sorry to hear that. That has to be so hard for both of you. Has he been seeing the same oncologist?
I have been on Lanreotide injections since March 2023. I have Stage 4 pNET with liver metastases. I found that avoiding tomatoes, watermelon, ripe bananas, aged cheeses, red meat works for me. I eat fish, chicken, yogurt, cottage cheese, mozarella, cream cheese, liver ( I am also anemic). A piece of dark chocolade a day. No alcohol, carbonated drinks or juices, except a glass of tart cherry juice in the morning.