A guy who had a prostatectomy 30 years came into the weekly ancan.org Advanced Prostate cancer weekly online meetings talking about how his PSA started rising, but they couldn’t find anything with a scan.
That sure does sound similar.
I wonder if you just have a lot of small metastasis that the PSMA PET scan can’t see because they are smaller than 2.7 mm. At an online seminar I attended a UCSF radiation oncologist said that even 5 mm was tough to see.
This is the type of case where some doctors want to do salvage radiation, but other doctors would say, let it go and wait till the metastasis show up in a scan and then zap them (Dr. Scholz in Marina Del Ray at the last PCRI conference).
Did you have a prostatectomy 20 years ago? Has salvage radiation even been mentioned?
Just radiation. My urologist wanted to put me on hormone therapy. Did not want that. We did a pet scan. He didn't have a answer.waited 6 months did another still no sign
Just radiation. My urologist wanted to put me on hormone therapy. Did not want that. We did a pet scan. He didn't have a answer.waited 6 months did another still no sign
You are definitely in a sticky situation. You’ve got a high PSA, but they can’t find anything. As I mentioned before this is frequently because the metastasis are just too small. The benefit of hormone therapy is that it will usually prevent the metastasis from growing any further, For at least a couple more years.
I’ve been on hormone therapy for nine years, It’s not a lot of fun, but it’s kept me alive and people that I know have no idea that I have prostate cancer unless I tell them. That’s how little hormone therapy actually affects your appearance to others.
You could consider the other option, which is the Estradiol patch. It has many fewer side effects than ADT and is just as effective according to studies done in England. Look up the patch study if you want to find out more information. I know one doctor that does not like it because there are blood clot risks, You need to give a tested monthly to make sure your estrogen levels aren’t too high. There are videos over at ancan.org by Richard Wassersug PhD discussing the fact that he has been taking estradiol for over 10 years and how well it works. This could give you more information about this option.
You are definitely in a sticky situation. You’ve got a high PSA, but they can’t find anything. As I mentioned before this is frequently because the metastasis are just too small. The benefit of hormone therapy is that it will usually prevent the metastasis from growing any further, For at least a couple more years.
I’ve been on hormone therapy for nine years, It’s not a lot of fun, but it’s kept me alive and people that I know have no idea that I have prostate cancer unless I tell them. That’s how little hormone therapy actually affects your appearance to others.
You could consider the other option, which is the Estradiol patch. It has many fewer side effects than ADT and is just as effective according to studies done in England. Look up the patch study if you want to find out more information. I know one doctor that does not like it because there are blood clot risks, You need to give a tested monthly to make sure your estrogen levels aren’t too high. There are videos over at ancan.org by Richard Wassersug PhD discussing the fact that he has been taking estradiol for over 10 years and how well it works. This could give you more information about this option.
Thanks. Appreciate that response. I'll also be 74 in November. I have an appointment with my urologist next week. I guess we'll see where we go from there
Thanks. Appreciate that response. I'll also be 74 in November. I have an appointment with my urologist next week. I guess we'll see where we go from there
You are seeing the wrong doctor. You are way beyond the expertise of the urologist, They are in no way informed to give you an educated opinion about what to do with your case. Urologist handle urinary issues and may do prostatectomy. They love to make you think they can do more because they make a lot of money treating you, especially giving you drugs.
You need to get to a center of excellence or find a Genito Urinary Oncologist, The oncologist that specialize in prostate cancer. You don’t want a medical oncologist since they don’t specialized in prostate cancer and handle all different types of cancer. You have an advanced case, and it needs to be seen by a trained doctor,
Your life is dependent on getting this right. Don’t go to the wrong physician.
Of course, if you live in Canada, it’s a little more difficult to get the correct treatment for such an advanced case. But even there a urologist is not a doctor you should see.
Thanks. Appreciate that response. I'll also be 74 in November. I have an appointment with my urologist next week. I guess we'll see where we go from there
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Just radiation. My urologist wanted to put me on hormone therapy. Did not want that. We did a pet scan. He didn't have a answer.waited 6 months did another still no sign
You are definitely in a sticky situation. You’ve got a high PSA, but they can’t find anything. As I mentioned before this is frequently because the metastasis are just too small. The benefit of hormone therapy is that it will usually prevent the metastasis from growing any further, For at least a couple more years.
I’ve been on hormone therapy for nine years, It’s not a lot of fun, but it’s kept me alive and people that I know have no idea that I have prostate cancer unless I tell them. That’s how little hormone therapy actually affects your appearance to others.
You could consider the other option, which is the Estradiol patch. It has many fewer side effects than ADT and is just as effective according to studies done in England. Look up the patch study if you want to find out more information. I know one doctor that does not like it because there are blood clot risks, You need to give a tested monthly to make sure your estrogen levels aren’t too high. There are videos over at ancan.org by Richard Wassersug PhD discussing the fact that he has been taking estradiol for over 10 years and how well it works. This could give you more information about this option.
Thanks. Appreciate that response. I'll also be 74 in November. I have an appointment with my urologist next week. I guess we'll see where we go from there
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1 ReactionYou are seeing the wrong doctor. You are way beyond the expertise of the urologist, They are in no way informed to give you an educated opinion about what to do with your case. Urologist handle urinary issues and may do prostatectomy. They love to make you think they can do more because they make a lot of money treating you, especially giving you drugs.
You need to get to a center of excellence or find a Genito Urinary Oncologist, The oncologist that specialize in prostate cancer. You don’t want a medical oncologist since they don’t specialized in prostate cancer and handle all different types of cancer. You have an advanced case, and it needs to be seen by a trained doctor,
Your life is dependent on getting this right. Don’t go to the wrong physician.
Of course, if you live in Canada, it’s a little more difficult to get the correct treatment for such an advanced case. But even there a urologist is not a doctor you should see.
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2 ReactionsGreatly appreciated!
Perhaps a PET scan with a different tracer will show uptake. The older Axumin scan might show something.
I've never heard of zapping metastasis.
This is a VERY common thing.
I had one zapped on my spine (L4) 2 years ago.
I know one guy that had multiple sessions to zap 15 of them, unusual.
The doctors don’t usually like zapping more than 5.
If you check out PCRI videos on YouTube you will hear Dr. Scholz discussing wanting to do it with almost all metastasis.
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1 ReactionI watched the video wow he is good. I start chemo ( docetaxel) next weak along with elegard and nubeqa. Thank you for your help
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1 ReactionSo what do you think of the docetaxel?