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Finally have Appt at Mayo Jax Neurology drpt
After suffering 2.5 years with these debilitating symptoms and having several different specialists diagnose me with something totally different than the other specialist is diagnosed me with I'm still at square one as to what is really wrong with me and it's been 2.5 years of hell.
I finally have an appointment at Mayo clinic in Jacksonville for March the 9th. I will travel the 7-hour drive and get a hotel and hopefully these doctors there can help me.
They gave me the name of the neurologist that I will be seeing and I cannot recall his name but I looked up some of the patient reviews and a good majority of the patients gave him a very poor poor poor rating and review. That's all I need is to spend all this money to travel up to Mayo clinic and have a neurologist that 99% of the patient review comments are negative about him. I can't take much more of these symptoms these debilitating episodes I have almost on a daily basis now and not know what in the heck it is. One doctor says it's anxiety attacks and panic attacks, the other specialist says I have dysautonomia, then another specialist disagrees and says I have vasovagal, then another specialist disagrees with it all and says he does not know what's causing these episodes that affect me from head to toe with a multitude of horrible symptoms etc and these symptoms come on at a nowhere.
I sure hope with the little bit of money I'll be investing driving up to Jacksonville from Southwest Florida and getting a hotel room Tuesday night March 8th to be seen on March 9th I hope this neurologist that I've read gets poor reviews from patients is better than what all the prior patients have said about him because I cannot take any more delays or just being passed around and pushed around with almost three years now this insanity.
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Let me just add my good wishes for your upcoming visit. All of the help here should see you through to a better outcome.
how does one start the process to get an appointment at the mayo clinics
Do you mean that you return for annual checkups in Neurology? Or were you able to be seen at Mayo for primary care? If the latter, was it difficult to become a patient in primary care there? I have recently been a patient in Neurology at the Rochester campus.
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1 ReactionYes, my annual checkups are in Neurology due to having Chiari Malformation and Syringomyelia. This condition needs to be monitored annually for me. My primary care is still in my home state.
hi Nancy how do you get an appointment to the Mayo Clinic how long do you stay for treatment thanks George
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1 ReactionHi George. My orthopedic hand doctor referred me. My very first time at Mayo I was there five days. The next time I went was for surgery. Spent one day at the clinic for pre-op appointments and was hospitalized for five days. Since then the annual checkups are 2-3 days. I usually have two appointments with neurology and orthopedics dept and a MRI.
I've been trying for more than 6 months to get an appointment from Mass. General Hospital in Boston which is huge and has a large neurology department to no avail. Been diagnosed with motor-sensory peripheral. Same with Beth Israel. The medical industry is in Serious Trouble! And I'm here in Boston which has a huge medical community. No one is talking about very much needed reform. Many are leaving the field.
Hi Nancy. Thank you for your info, which clinic did you go,and how long did it take to get an appointment? What type of surgery did you have,? what kind of doctor?neuro surgeon ,or an orthopedic surgeon did your surgery. I hope the surgery helped you out! thank you George
I am a patient at the Rochester campus. It took my dr three months and three tries to get an appointment for me. I had brain decompression surgery. A neurosurgeon performed that surgery. I had an EIP Opponensplasty performed to improve the use of my thumb three years later. That was performed by a orthopedic hand surgeon. Both surgeries were successful. The brain surgery stopped the progression of my Chiari Malformation and Syringomyelia and kept me from being paralyzed and confined to a wheelchair. The hand surgery gave me back the use of my thumb. I absolutely love my medical team!!! I thank GOD everyday for my Mayo doctors and I ask HIM to bless them for the wonderful care and support they continually provide me.
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2 ReactionsHI Nancy. Thank you again for your info, I am glad you had so much success with your surgeries, I have had two surgeries on my lower back, fusion surgery L5 S1 did not work,2nd surgery to remove rods and screws, and tried to fix a nerve that was causing so much pain, made it even worse, pain on right side is now also on left side.My surgeon (orthopedic) said nothing more he could do, suggested I get a spine stimulator implanted in my back, did not do it, i know two friends that had it done, it did not work ,so I am at stand still, get shots in my back that have helped, but now not so much, had my last injection on February 15th, two weeks later my back and legend foot pain was back, and worse than ever, tried pregnasone six pack ,6 pills one day then one less for six days, pain less severe until I finished the pills now severe pain ,next step, speak to pain Dr. to discuss what we will do moving forward. thank you again for your info and letting me vent about one area of my sever pain I have cervical pain c5 c6 neck pain. also shoulder ( three sugeries) and arm and hand pain, left knee surgery(two) getting symviscous ,shots every six months, that aren't working as well as it use to(four years) do for my next injection in two weeks I hope it will give me relief, doctor talking about knee replacement surgery thanks again George