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Fibromyalgia pain: Let's connect
Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo
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Those meds do have a range of side effects that have created issues for some people that I knew at the high school where I worked. The attendance secretary was prescribed Lyrica (can't recall for what) and she developed such pain in both feet that she could not stand or walk without feeling agony. From what she described, it was neurological in nature, so I urged her to see a neurologist but not to just stop cold turkey. She chose to stop taking the medication and did inform her primary care physician (who had prescribed it) but chose not to see a neurologist. The issues for which she had gone to her PCP in the first place continued, then exacerbated. She said she'd "just deal" because what the medication had done to her was worse than the symptoms...
For anyone who is able to take meds like Lyrica, Cymbalta, Humira, etc., that's great.
I fully acknowledge what I can and cannot do.
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1 ReactionI like you, have had FM over 40 years.. I'm sorry you are not able to take codeine but I understand because I tolerate no FM meds. I can't nap or don't sleep at night. I am able to take low dose clonazepam for sleep, perhaps you could try?
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1 Reactioni check all meds now per my genesight results, most are a big no; but will research. Thanks for suggesting.
I have not had FM as long as you, my doctor has me on Lyrica, Butran Patch 15 mg & Cymbalta. I have had one back surgery in 2010, now I am to have a second one in January. I have lots of back pain which I am hoping will ease with the surgery, I also feel exhausted daily and can fall asleep at the drop of a hat.
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2 ReactionsCan anyone tell me how to tell fibromyalgia pains from other pains.
It is constant pain that will move all over the body. There are 10 -12 trigger points that a good rheumatologist will just touch and you will want to scream in pain. My T3 will bring the pain level down but I am never free of pain because lyrica and all the usual medications cause too many side effects. The worst is my vision.
Thanks for the information. The Rheumatologist had my Family Physician do the testing and fill out the forms then sent them in to the Rheumatologist. I suffer from exhaustion, pains in my arms to the point I can't wash myself properly and then aches and pains all over, worst of all are the daily headaches.